Topic profile page for Tysabri.
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Started 22 hours, 57 minutes ago (2008-10-14 19:40:00)
by godivatruffles6
Recs: 38 Biogen Turns Down Dying Patients Request For Tysabriand Explains Why (don't know if this version of the story was posted yet - sorry if it has ----- the overall stock market is distracting me from my time obsessing and focusing on Elan) http://www.xconomy.com/boston/2008/10/14/biogen-tu rns-down-dying-patients-request-for-tysabri-and-.. .
Started 1 day, 2 hours ago (2008-10-14 16:32:00)
by yarbonero
Recs: 10 Thanks so much for your email and the Tysabri Biogen Idec story; link. Below is our Abigail Alliance posting at http://dembot.com/post/54498664/open-letter-to-jam es-c-mullen-ceo-of-biogen Thinking of you, Frank From: Abigail Alliance for Better Access to Developmental Drugs What we are seeing in this article is yet another reason we need to...
Started 1 day, 7 hours ago (2008-10-14 11:10:00)
by frito720766
Dear Patient, Wouldn't it be great to hear first-hand about TYSABRI ® (natalizumab) therapy from people who are taking it? Well now you can. Introducing the TYSABRI Teleconference Series. Each month, real patients will share their personal experiences with you—from what impact TYSABRI has had on their lives to managing side effects to how they receive infusions. In addition to a panel...
Started 2 days, 4 hours ago (2008-10-13 14:35:00)
by Anonymous
Ok so ive looked and looked online to find some info on this but came back clueless.. I know Tysabri hasnt been on the market for very long and there are not a ton of studies..but what im wondering is there risks regarding pregnancy if my husband is on tysabri? has anyone read or heard anything regarding this? maybe i should call the company...im such a worrier and a planner and ...
Started 5 days, 18 hours ago (2008-10-10 00:00:00)
by bamajhh
Hey Y'all!! I went for Tysabri #15 this morning. No hives or other problems!! I took a book and worked on some Sudoku. Came home, had lunch and a nap!! All that sitting is exhausting!! I seem to have a little more energy after infusions and the 'brain fog' seems to clear. I recommend Tysabri to anyone who asks!! We've had some rain and cooler weather. Not like Dave's but...
Started 1 week ago (2008-10-08 13:37:00)
by Alive Again
Hello to all of you, I don't post much anymore because I'm too busy just living life. I just wanted stop by to brag about my newest MRI results. I've been on Tysabri for 2 years now. I go for #29 next Tuesday and still looking forward each & every one. I went for my annual 3tesla MRI and just found out that there have been "NO CHANGES" since last year!!!!! Last year was a great MRI ...
Started 1 week, 1 day ago (2008-10-07 16:45:00)
by alittletired
I have an option to switch from Rebif to Tysabri and I am having a hard time with the decision. On a monthly basis I would have to: Drive 350 miles (seven hours on the road) Pay for fuel ($50?) Pay $200 for the infusion out of pocket (rest would be covered by insurance) Right now I'm on Rebif, and even though I hate it, I am thinking I might just stay on it. What do ...
Started 1 week, 2 days ago (2008-10-06 11:48:00)
by squiffy2
Québec's Régie de l'assurance maladie du Québec (RAMQ) announced that effective October 1, 2008, Tysabri(TM) was added to its provincial formulary making Québec the first province in Canada to list the medication. This treatment has been shown to reduce the frequency of clinical relapses, delay the progression of disability and decrease the number and volume of active brain lesions. ...
Started 1 week, 3 days ago (2008-10-05 00:00:00)
by CarolineV9T6R9
Hi Peg, I was just wondering what your view on Tysabri was? I just had my 1st infusion Oct. 2nd. Everything went well...but I keep worrying myself about PML. I do suffer with extreme anxiety already. I just keep trying to tell myself that there are approx. 30,000 on this treatment now.....and it's doing it's job. Thanks Peg. I know I'm a worry wort. I just think the more I talk and ...
Started 4 days, 18 hours ago (2008-10-11 00:00:00)
by bamajhh
Replying to: Tysabri #15 Hi, Megan!! I hope to be able to help you feel more comfortable about the "big T." I've lived with this MonSter for 20+ years. Did A, B, R, Novantrone and now Tysabri. I'm 55 and still moving (slowly with cane, occasional scooter, rarely a transport chair, and my red Segway!) I haven't gained or lost weight due to T. I had hives a ...
Started 3 days, 21 hours ago (2008-10-11 20:39:00)
by alittletired
Many thanks for the replies. Maybe (probably) fear of Tysabri makes it easier for me to lean towards sticking with Rebif. In reading Natatude's rely (and MSGeorges posts) I feel like I definitely need to do more research on switching. Time and money could be a small price to pay for longer mobility,working,etc. I'd like to be there for my wife and kids as long as possible. ...
