This is sooo complicated and unnerving and waiting and waiting and waiting. Any time frame, and what about Part D and prescription supplemental? We're ramping down Mom's Risperdal, .25 mg, and she's either very sleepy or vocal and agitated, nothing in between. Die, honey, I love you, but just die, already!
Lots of people have looked at this posting, however no one is responding. I'm not sure if you are wanting advice, or just venting as you are very stressed out. We can all feel your frustration. If your last sentence is a reflection of your frustration with money issues -- as indicated by your topic --I think a lot of people probably understand your feelings whether or not they have the courage...
I'm wanting to get the Medicaid thing finalized, and it doesn't seem to be happening. Will call caseworker Monday, just wondered if others had dealt with this bureaucracy (sp?). Also am watching Mom suffer in her own shell, no interaction or context at all, just random words and phrases and then skittering into distressed "blahblahblah!" The NH staff kicked her out of Mass last week, even, too ...
Is there anybody on here who could help this person in Mass? I think she really needs some support -- how about some kind words for her ever if you don't have any answers. I am so sorry for your pain and your situation. I hope you can get the care your mother needs and the some peace for yourself.
Did you ever contact a hospice (You asked about it in an earlier post)? You can call them directly and ask them to assess your mother (the NH may have certain hospices that they usually work with.) The hospice is there for you emotionally as well as for your LO. They know that sometimes we're ready for our LO to die and will help you make decisions (choosing a drug for her agitation) and ...
Waiting for confirmation from Medicaid that everything has successfully been implemented is indeed frustrating. With my mother, the MediCal Field Office told me it would take one to two months to hear that everything was approved. If there is nothing missing from the application, the approval process would be a bit faster. We received approval in a bit less than a month. Such a a relief. The...
SBird- I looked back at your older posts. I don't know when you transferred your mother's assets to the trust but the lookback period is now five years for all trusts and money transfers. The law changed in 2006. There are some other changes in the laws as well, concerning how the lookback goes into effect-- if you google: Medicaid Five Year Lookback you can learn more.
I took my dear Jeanne to a chapel service at the nursing home around Christmas time. And during the singing of 'Silent Night,' she would inject blue-streak cuss words. Really, I had to laugh. Still do when I think about it to this day. It's a part of Alzheimer's. One learns to accept it. Without embarrassment. Look at the funny side. --Jim
I am hoping and praying too, Sillybird, for a resolution to the Medicaid situation you are in. I have no first-hand experience, but the advice given seems sound. As for the Mass, it can be distressing for all concerned, and not laughable, at all. Johanna gives a good suggestion, on an alternative that may help everyone. Do keep us posted!
I don't have any words of advice but empathize with what you said. My mom is a shell. She has been battling this disease for ten years, with the last two+ just spiraling down, down down. I visit and she is all hunched over and has little to no response. It is not my place to judge but is this a life? She eats, she can shuffle at times, she breathes and sleeps. Sometimes, selfishly I would like ...
Count me in on the "why isn't this over?" opinion. Mom hasn't eaten solid food in 10 weeks, consumes less than 200 calories a day of Boost, sleeps most of day and rest of time is in deep stare. She is curled into a fetal position. She's on pain medication for untreatable gallstones, but she recoils every time I touch her. Occasionally we get a lucid moment where she can answer a simple question, ...
When it starts taking weeks - or even months - for your love one to pass (not eating, etc.) do start to become almost numb to the situation? Do you cry less as the person lingers on and your loved one continues to live for no apparent reason?
Finally got the retroactive Medicaid thing worked out. We're tweaking the Risperdal dosage. Church is not really an issue, for she has no clue, it's being in a common area and is disrupting others, as Alice B. Toklas noted, there's no There there, like LA. Random words and expressions unrelated to anything. The thousand-yard stare is most disconcerting.
SBird- I looked back at your older posts. I don't know when you transferred your mother's assets to the trust but the lookback period is now five years for all trusts and money transfers. The law changed in 2006. There are some other changes in the laws as well, concerning how the lookback goes into effect-- if you google: Medicaid Five Year Lookback you can learn more.
Waiting for confirmation from Medicaid that everything has successfully been implemented is indeed frustrating. With my mother, the MediCal Field Office told me it would take one to two months to hear that everything was approved. If there is nothing missing from the application, the approval process would be a bit faster. We received approval in a bit less than a month. Such a a relief. The field office worker did tell me that they would pay...
I took my dear Jeanne to a chapel service at the nursing home around Christmas time. And during the singing of 'Silent Night,' she would inject blue-streak cuss words. Really, I had to laugh. Still do when I think about it to this day. It's a part of Alzheimer's. One learns to accept it. Without embarrassment. Look at the funny side. --Jim
I am hoping and praying too, Sillybird, for a resolution to the Medicaid situation you are in. I have no first-hand experience, but the advice given seems sound. As for the Mass, it can be distressing for all concerned, and not laughable, at all. Johanna gives a good suggestion, on an alternative that may help everyone. Do keep us posted!
I don't have any words of advice but empathize with what you said. My mom is a shell. She has been battling this disease for ten years, with the last two+ just spiraling down, down down. I visit and she is all hunched over and has little to no response. It is not my place to judge but is this a life? She eats, she can shuffle at times, she breathes and sleeps. Sometimes, selfishly I would like the burden she is, to be lifted. Unselfishly,...
Count me in on the "why isn't this over?" opinion. Mom hasn't eaten solid food in 10 weeks, consumes less than 200 calories a day of Boost, sleeps most of day and rest of time is in deep stare. She is curled into a fetal position. She's on pain medication for untreatable gallstones, but she recoils every time I touch her. Occasionally we get a lucid moment where she can answer a simple question, but she recognizes no...
@ KevinKMJr yes... I realized that what I imagine is... @ KevinKMJr yes... I realized that what I imagine is happening is rarely what is actually happening. In truth, things are better than I think 2:30 PM Jul 28th from Twinkle
"A problem only exists if there is a difference... "A problem only exists if there is a difference between what is actually happening and what you desire to be happening" Kenneth Blanchard
07:43 PM October 08, 2008
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