Posts Topics Forums Images
Search videos from message boards Videos Search messages from microblogs Microblogs Search messages from imdb.com Imdb Search messages from yuku.com Yuku Search messages from lefora.com (free forums) Lefora
My account: Login | Sign Up
Loading... 

Thread: medicaid actually happening?

Started 1 month, 2 weeks ago by sillybird
This is sooo complicated and unnerving and waiting and waiting and waiting. Any time frame, and what about Part D and prescription supplemental? We're ramping down Mom's Risperdal, .25 mg, and she's either very sleepy or vocal and agitated, nothing in between. Die, honey, I love you, but just die, already!
Site: Alzheimers Association Online Community  Alzheimers Association Online Community - site profile
Forum: Caregivers Forum  Caregivers Forum - forum profile
Total authors: 8 authors
Total thread posts: 13 posts
Thread activity: no new posts during last week
Domain info for: alz.org

Other posts in this thread:

Newbie Caregiver replied 1 month, 2 weeks ago
Lots of people have looked at this posting, however no one is responding. I'm not sure if you are wanting advice, or just venting as you are very stressed out. We can all feel your frustration. If your last sentence is a reflection of your frustration with money issues -- as indicated by your topic --I think a lot of people probably understand your feelings whether or not they have the courage...

sillybird replied 1 month, 2 weeks ago
I'm wanting to get the Medicaid thing finalized, and it doesn't seem to be happening. Will call caseworker Monday, just wondered if others had dealt with this bureaucracy (sp?). Also am watching Mom suffer in her own shell, no interaction or context at all, just random words and phrases and then skittering into distressed "blahblahblah!" The NH staff kicked her out of Mass last week, even, too ...

Newbie Caregiver replied 1 month, 2 weeks ago
Is there anybody on here who could help this person in Mass? I think she really needs some support -- how about some kind words for her ever if you don't have any answers. I am so sorry for your pain and your situation. I hope you can get the care your mother needs and the some peace for yourself.

brightwings replied 1 month, 2 weeks ago
Did you ever contact a hospice (You asked about it in an earlier post)? You can call them directly and ask them to assess your mother (the NH may have certain hospices that they usually work with.) The hospice is there for you emotionally as well as for your LO. They know that sometimes we're ready for our LO to die and will help you make decisions (choosing a drug for her agitation) and ...

Johanna C. replied 1 month, 2 weeks ago
Waiting for confirmation from Medicaid that everything has successfully been implemented is indeed frustrating. With my mother, the MediCal Field Office told me it would take one to two months to hear that everything was approved. If there is nothing missing from the application, the approval process would be a bit faster. We received approval in a bit less than a month. Such a a relief. The...

brightwings replied 1 month, 2 weeks ago
SBird- I looked back at your older posts. I don't know when you transferred your mother's assets to the trust but the lookback period is now five years for all trusts and money transfers. The law changed in 2006. There are some other changes in the laws as well, concerning how the lookback goes into effect-- if you google: Medicaid Five Year Lookback you can learn more.

Jim Broede replied 1 month, 2 weeks ago
I took my dear Jeanne to a chapel service at the nursing home around Christmas time. And during the singing of 'Silent Night,' she would inject blue-streak cuss words. Really, I had to laugh. Still do when I think about it to this day. It's a part of Alzheimer's. One learns to accept it. Without embarrassment. Look at the funny side. --Jim

maebee replied 1 month, 2 weeks ago
I am hoping and praying too, Sillybird, for a resolution to the Medicaid situation you are in. I have no first-hand experience, but the advice given seems sound. As for the Mass, it can be distressing for all concerned, and not laughable, at all. Johanna gives a good suggestion, on an alternative that may help everyone. Do keep us posted!

M.Schreib replied 1 month, 1 week ago
I don't have any words of advice but empathize with what you said. My mom is a shell. She has been battling this disease for ten years, with the last two+ just spiraling down, down down. I visit and she is all hunched over and has little to no response. It is not my place to judge but is this a life? She eats, she can shuffle at times, she breathes and sleeps. Sometimes, selfishly I would like ...

Carolina Songbird replied 1 month, 1 week ago
Count me in on the "why isn't this over?" opinion. Mom hasn't eaten solid food in 10 weeks, consumes less than 200 calories a day of Boost, sleeps most of day and rest of time is in deep stare. She is curled into a fetal position. She's on pain medication for untreatable gallstones, but she recoils every time I touch her. Occasionally we get a lucid moment where she can answer a simple question, ...

 

Top contributing authors

Name
Posts
Newbie Caregiver
3
user's latest post:
medicaid actually happening?
Published (2009-11-16 21:01:00)
When it starts taking weeks - or even months - for your love one to pass (not eating, etc.) do start to become almost numb to the situation? Do you cry less as the person lingers on and your loved one continues to live for no apparent reason?
sillybird
3
user's latest post:
medicaid actually happening?
Published (2009-11-18 19:39:00)
Finally got the retroactive Medicaid thing worked out. We're tweaking the Risperdal dosage. Church is not really an issue, for she has no clue, it's being in a common area and is disrupting others, as Alice B. Toklas noted, there's no There there, like LA. Random words and expressions unrelated to anything. The thousand-yard stare is most disconcerting.
brightwings
2
user's latest post:
medicaid actually happening?
Published (2009-11-15 11:09:00)
SBird- I looked back at your older posts. I don't know when you transferred your mother's assets to the trust but the lookback period is now five years for all trusts and money transfers. The law changed in 2006. There are some other changes in the laws as well, concerning how the lookback goes into effect-- if you google: Medicaid Five Year Lookback you can learn more.
Johanna C.
1
user's latest post:
medicaid actually happening?
Published (2009-11-15 10:58:00)
Waiting for confirmation from Medicaid that everything has successfully been implemented is indeed frustrating. With my mother, the MediCal Field Office told me it would take one to two months to hear that everything was approved. If there is nothing missing from the application, the approval process would be a bit faster. We received approval in a bit less than a month. Such a a relief. The field office worker did tell me that they would pay...
Jim Broede
1
user's latest post:
medicaid actually happening?
Published (2009-11-15 11:50:00)
I took my dear Jeanne to a chapel service at the nursing home around Christmas time. And during the singing of 'Silent Night,' she would inject blue-streak cuss words. Really, I had to laugh. Still do when I think about it to this day. It's a part of Alzheimer's. One learns to accept it. Without embarrassment. Look at the funny side. --Jim
maebee
1
user's latest post:
medicaid actually happening?
Published (2009-11-15 12:00:00)
I am hoping and praying too, Sillybird, for a resolution to the Medicaid situation you are in. I have no first-hand experience, but the advice given seems sound. As for the Mass, it can be distressing for all concerned, and not laughable, at all. Johanna gives a good suggestion, on an alternative that may help everyone. Do keep us posted!
M.Schreib
1
user's latest post:
medicaid actually happening?
Published (2009-11-16 08:24:00)
I don't have any words of advice but empathize with what you said. My mom is a shell. She has been battling this disease for ten years, with the last two+ just spiraling down, down down. I visit and she is all hunched over and has little to no response. It is not my place to judge but is this a life? She eats, she can shuffle at times, she breathes and sleeps. Sometimes, selfishly I would like the burden she is, to be lifted. Unselfishly,...
Carolina Songbird
1
user's latest post:
medicaid actually happening?
Published (2009-11-16 08:59:00)
Count me in on the "why isn't this over?" opinion. Mom hasn't eaten solid food in 10 weeks, consumes less than 200 calories a day of Boost, sleeps most of day and rest of time is in deep stare. She is curled into a fetal position. She's on pain medication for untreatable gallstones, but she recoils every time I touch her. Occasionally we get a lucid moment where she can answer a simple question, but she recognizes no...

Related threads on other sites:

Thread profile page for "medicaid actually happening?" on http://www.alz.org. This report page is a snippet summary view from a single thread "medicaid actually happening?", located on the Message Board at http://www.alz.org. This thread profile page shows the thread statistics for: Total Authors, Total Thread Posts, and Thread Activity