Thread: Move on to Tysabri?

Yeah, you WILL need that hand for the upright!  They're sooo cool, though. GG

Hey Gurl, Oh, my. I'm sorry you have to consider this ontop of everything. Not an easy decision I'm sure. It was my thought that the interferons took at least 3 months to build. Especially since they titrate the dose for all those weeks initially.   Since your still on the fence, (not to steer you away) just thowing that out there incase your lining up questions for the Dr. It's one I'd ask him about...

Oh, that's no fun at all.  And a little discouraging...  I know how you feel about grasping at straws - right after my diagnosis, my right hand was really weak.  It came back a little - enough that I was able to go back to my regular activities.  Recently it's started being weak again.  I hope that it'll come back - I'm learning how...

Hi GG, there is such a mixed review on tysabri - there was a woman at a seminar I went  to last week that had been on it for almost two years.  She has done very well.  And then we  know of folks who have not responded at all. It is such a tough, personal call.  You have to assess the downside and decide what you are willing to risk.  ...

Hi, Just wanted to let you know I was thiniking of you and sending only good and positive thoughts your way as you make your decision.  So sorry to hear of the need for changing your treatment and the increase in symptoms. Hang in there! Warm wishes for a sense of peace as you make your decision, Ren

I just wanted to say I hope you feel better soon and get some help with this.. it sounds like you are reacting to the meds not well.... I hope you find something to help you. let us know how you are doing and what choice you made... I don't know anything about the meds your taking so can't give much ideas or ?? take care of yourself wobbly dx PPMS

Hi GG, It’s a tough call, however I am right behind you all the way! There are pros and cons to taking this drug, some people have found it marvellous, while others can only cope with s/e for a few months! this does not include the infamous PML, (JC Virus). What I have found out is that you can be tested to see if you are a carrier of the JC Virus.  It’s a regular urine and blood test.  This can be done...

I can't imagine what you are going through. Hang in there, Alex

I discussed Tysabri with my Neuro recently since I failed with Copaxone with flu like symptoms (go figure!) and they don't want me on an interferon since I am a cancer survivor. Their solution was no tysabri at this point but to try IVIG infusions. My neuro is a bit off the beaten track, but she did her fellowship at NIH and believes strongly in IVIG for lots of these Neurological things. So I am putting my faith in her and going to...

Hi there, I know nothing about the disease modifying drugs, so i can't offer advice and everybody is different and their reaction and I have had no experience with any of these but I just wanted to say I am thinking of you, and I understand it must be a difficult decision for you to make and scary that you are losing your strength so fast. Cyber hugs your way.  I do hope you are feeling better soon. Udkas.