Thread: LCIS

( Hi Devina:  It's okay to be bitter and sorry you are having these issues.  Did you have LCIS and DCIS?  Did you have sentinel node biopsies or node dissection? The cancer clinic where I live has a physiotherapist that deals with lymphedema patients. \(I live in Ontario\).  Have you PM'd Binney \(I believe she is our resident expert on lymphedema\).  She may be able to help. , )

( Hi, I am sorry I don't know anyone with PLCIS.  I switched from the Royal Victoria Hospital to the Jewish General Hospital.  I do know that the Jewish General Hospital in Montreal has a High Risk Clinic.  PM me if you want. , )

( Hi upcreek, No, I had no node removal I aked my Dr and he said no I posted and Binney replied to some of my posts. I did not think it was possilbe to have lymphedema when I had no nodes removed under my arms. I was not aware of the Big picture at that time. I did have both LCIS and DCIS. I guess that is rare but it made things a little more complicated in someways but I was advised to have both breasts removed one was preventative and they...

( Hi fellow Canadians I am still finding my way around these boards.  I didn't even know there was a separate area for Canadians only.  Anyway, I was recently diagnosed with LCIS and multifocal ALH.  I would be curious to know how many others in Canada that there are.  When I asked my oncologists if he has other LCIS patients, he said he has lots. Right now I will be having a breast mri, which we...

( Mary--I'm not Canadian \(upstate NY\),  but I have LCIS and will be thinking of you tomorrow and praying they find nothing more going on  in there. Let us know how it goes. anne , )

upcreek:  There is an "ILC forum" on this site,  and there are some women there in US got pleomorphic ILC  (not LCIS),  and some of them are very knowlegable.   Nash is definitely a very knowlegable lady there, you can ask her about this subtype of ILC.

Hi devina, I'm in B.C. also. I was diagnosed with ILC last month (found on a screening mammogram) and when I found out an enlarged lymph node that showed up during the ultrasound also showed cancer that scared me more than the cancer in the breast. My mother had lymphedema. I did understand though that there was no way around it, I would require an axillary node dissection along with lumpectomy.I had the surgery Oct 27. The breast...

Devina, hello! I'm horrified that you're still struggling with trying to get treatment for the stupid lymphedema. I sent you a private message. Be well! Binney

upcreek: Did you join the Cancer society in Canada? It's a kind of "peer's support" for BC women.  I was told by them that very few ladies got ILC even,  so I guess there are very rare LCIS women in Canada.