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Thread: I Need Support Guys, Any Help Wanted...

Started 2 months ago by MxDisasterGrl
Okay, so I'm a T12 incomplete (barely)...But god has seriously blessed me. I currently have strong quads, very weak(almost non-existing) hips (abductors), good adductors, and my left foot can go towards the left and down, also w/ being able to move all 5 toes downwards and pinky toe outwards. I can feel a majority of the bottom of the same foot. I have slowly been able to tell that it's ...
Site: Quadriplegic & Paraplegic Spinal Cord Injuries  Quadriplegic & Paraplegic Spinal Cord Injuries - site profile
Forum: General Spinal Cord Injuries Discussions  General Spinal Cord Injuries Discussions - forum profile
Total authors: 20 authors
Total thread posts: 39 posts
Thread activity: no new posts during last week
Domain info for: apparelyzed.com

Other posts in this thread:

E-DOG replied 2 months ago
Sounds like there's this rock and right up next to it is a hard place. With you kinda in the middle. I'm not quite sure how long you've been injured but I'll tell you this much; after two or three years most SCI's have gotten the majority of motor function back that will come back. Of course we occasionally hear about folks who experience vast spurts of improvement at odd times in their ...

MxDisasterGrl replied 2 months ago
ya know what? I've read a lot of your "replys" and frankly i don't ever like them. I am definitely an optimistic person. I'm only a year and a half post accident, and i see much improvement from just little things i do. i really haven't done much at all other than live day to day, and that alone has been helping my situation. I hate negative comments. I get enough from other people w/out ...

AndrewB replied 2 months ago
You know, E-DOG really is trying to help (in his own way) That's all we can do is try and use our own personal experience with this thing and offer a little insight, he really is not trying to be offensive... i think?? Besides that.. It sounds like your having some good return, and while sitting around waiting for the finances to get some therapy, you could use what you do have. With ...

dangerousdave replied 2 months ago
Sorry but E-Dog is right What we ned to know is when she wa injured 2 years regen nerve period is correct with some exceptions But the exercise thing is totally down to the individual capability From the info she has givn us I would personaly look at a general "York" gym and rowing machine Right up until I had to give up exercise I had the use of our local tenants centre gym. But she says ...

qbounce replied 1 month, 4 weeks ago
How long has it been since you were working? You mentioned going back for 6 mo's. If you just stopped recently, you may still be elligible to file for COBRA. It's an out of work insurance, allowig you to continue receiving your companies benefits for up to 18 months (I believe) post employment. Ask about it at your previous place of employment . . . . and best wishes to you. By the way...

StillFingers replied 1 month, 4 weeks ago
Hi MxDisasterGrl, Given your medicare/insurance status and two kids, you're kinda on your own...there's just no free ride here in the USA...it sucks having to wait two years post injury to get further assistance, but we all do. However, since you seem to be wanting to push your physical recovery further you are going to have to get creative with your own exercise regime. Stretching, ...

StillFingers replied 1 month, 4 weeks ago
Hi MxDisasterGrl, Given your medicare/insurance status and two kids, you're kinda on your own...there's just no free ride here in the USA...it sucks having to wait two years post injury to get further assistance, but we all do. However, since you seem to be wanting to push your physical recovery further you are going to have to get creative with your own exercise regime. Stretching, ...

Ches replied 1 month, 4 weeks ago
I think continuing to seek therapy when you are obviously still making progress is a very logical thing to do. Gyms and exercise at home is going to be your best bet. If you really want it bad enough tho, you'll figure out a way. And I dont mean walking, just the getting to therapy. Do you even know where you would like to continue with therapy? Have you shopped around for a deals or ...

dangerousdave replied 1 month, 4 weeks ago
Dangerous, she said it's only been 18 months now. In my eyes, and most anyone who's read her post with their eyes open can see she's looking for help and advise to CONTINUE therapy. This also means, regardless of being from a small town, she obviously was able to get therapy before, and is still in need to continue it. Sorry missed that 18 months Yes .. anything under 2 years .. fight ...

CR_L1 replied 1 month, 4 weeks ago
Hi MxDisasterGrl, First of all I don’t believe for a moment E Dog was putting you down or being bitter in anyway, his opening statement was “bloody hell lady sounds like your stuck between a rock & a hard place” & is it any wonder why you don’t get any, or very little help from people around you if your going to go off the deep end every time you don’t get the sugar coated response you ...

 

Top contributing authors

Name
Posts
MxDisasterGrl
10
user's latest post:
I Need Support Guys, Any Help...
Published (2009-11-12 22:44:00)
QUOTE (qbounce @ Nov 11 2009, 02:38 PM) Have you tried a TENS unit, or an electrical stimulation device of some kind? The starting price for one is pretty inexpensive . . . . .you know, 'cause your so cheap and all.--lol Anyway, I'm no expert on firing muscles, either. Maybe others can offer you more on that subject. Good luck in your recovery, and glad you FINALLY joined in the forum discussions. you know i had a...
twisted_ophelia
3
user's latest post:
I Need Support Guys, Any Help...
Published (2009-11-10 04:29:00)
MxDisaster, why are you so defensive?? Jeez. Chill out. I agree with Ches. Did I misread your first post or are you asking people to donate money to you at the end of it? Anyway, regardless, good for you for trying and where there is a will there is a way. I think with very incomplete injuries, there is always a chance for getting quite a lot of function back. Personally, I think being realistic yet optimistic is the way to go. Putting all...
qbounce
3
user's latest post:
I Need Support Guys, Any Help...
Published (2009-11-11 19:38:00)
Have you tried a TENS unit, or an electrical stimulation device of some kind? The starting price for one is pretty inexpensive . . . . .you know, 'cause your so cheap and all.--lol Anyway, I'm no expert on firing muscles, either. Maybe others can offer you more on that subject. Good luck in your recovery, and glad you FINALLY joined in the forum discussions. This post has been edited by qbounce : Today, 07:39 PM
StillFingers
2
user's latest post:
I Need Support Guys, Any Help...
Published (2009-11-08 12:02:00)
Hi MxDisasterGrl, Given your medicare/insurance status and two kids, you're kinda on your own...there's just no free ride here in the USA...it sucks having to wait two years post injury to get further assistance, but we all do. However, since you seem to be wanting to push your physical recovery further you are going to have to get creative with your own exercise regime. Stretching, strength building, weight bearing, cardio are all...
dangerousdave
2
user's latest post:
I Need Support Guys, Any Help...
Published (2009-11-08 15:59:00)
Dangerous, she said it's only been 18 months now. In my eyes, and most anyone who's read her post with their eyes open can see she's looking for help and advise to CONTINUE therapy. This also means, regardless of being from a small town, she obviously was able to get therapy before, and is still in need to continue it. Sorry missed that 18 months Yes .. anything under 2 years .. fight for .. cause those signals are seeking...
Pwuff
2
user's latest post:
I Need Support Guys, Any Help...
Published (2009-11-09 17:24:00)
Rough tough Creme Puff: "My hips seem to pop a lot when i walk and it's a little scary." There are some other places in the forum where people mention this. Read for them, though I don't recall anyone getting much understanding. My right one does and I stopped paying attention to it. My knee fires like a 22- scares me, but the MD doesn't worry unless it cause pain. They know how to address pain but they simply...
Ratticis
2
user's latest post:
I Need Support Guys, Any Help...
Published (2009-11-10 03:47:00)
At this point all I want to do is say good luck with your recovery and leave it at that. This bears a bad stink to a simaler thread none too long ago. That being said, I'm not trying to compare anyone to certian other douchebags, just the whike premise stinks of familiarity. Good luck with your recovery!
rue2you
2
user's latest post:
I Need Support Guys, Any Help...
Published (2009-11-10 21:50:00)
April, I really want you to find support on here and I want to support you. I was just trying to give you a head's up about all of us on here. I'm sure if you have been reading, then you already know they want lurkers to speak up so we are glad you joined in. I was just trying to give some helpful advice about the best way to glean from this site and get support. Some of us find humor the best therapy we have and so we joke around...
wheeliebear75
2
user's latest post:
I Need Support Guys, Any Help...
Published (2009-11-11 09:35:00)
If you're trying to keep your ankles from allowing the feet to flop then the ankle braces do do the job. But I quit using them like 10+ yrs ago........they routinely made sores on my Achilles tendon, & you said you didn't have insurance & they do need to be properly fitted by an ortho or PT.
AndrewB
1
user's latest post:
I Need Support Guys, Any Help...
Published (2009-11-08 08:37:00)
You know, E-DOG really is trying to help (in his own way) That's all we can do is try and use our own personal experience with this thing and offer a little insight, he really is not trying to be offensive... i think?? Besides that.. It sounds like your having some good return, and while sitting around waiting for the finances to get some therapy, you could use what you do have. With someones help you could try and find some parallel...

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