Thread: How to approach pedi about getting a gtube?

Quote: Originally Posted by Mama2Xander I know this doesn't address all of your concerns, but can you try making your own fruit leathers with no apple in them? I have heard you can make them in a food dehydrator or just on a cookie tray with the oven on very, very low. I have never actually tried this myself though, so I can't vouch for the results I actually did try once, I won't be repeating that again My mom made really good...

yeh, cosleeping with wires and tubing didn't work out for us either. You sleep in a puddle of bile, and no matter how much you scrub that smell is just stuck in your nose for a while. Much less mess when we stopped cosleeping as there was only one of us to disconnect the tubing instead of 4.

to all the babies with tubes, and the mothers coping with them.

If she can do soy, Zensoy's chocolate pudding tastes good and hides stuff well, too.

Why can't the 3yo have a sandwich at night if she can have them during the day? And what are your plans for when she weans? At 3 she's not going to be nursing a whole lot longer, it's not like you'll be nursing her forever ykwim? How do others with similar metabolic issues handle night feedings? What does your doctor recommend? Going to a tube is a BIG deal, not a matter of convenience. And a tube isn't more...

Quote: Originally Posted by Satori I wish we could do fruit leather! I've only found 2 that don't have apple in them and neither of which will she touch. Apple is on our food trial list next though, she used to be ana to them as an infant but her last 2 exposures not much happened that I can remember, maybe some yukky poop? I don't remember, it was several months ago (maybe a year) when my mom fed her apples thinking it was ok....

I keep coming back to this thread to read the replies, I know nothing about FOD, and very little about g-tubes (just that we're doing everything in our power to avoid one) so I've been learning a lot. My question...why are you approaching the pedi about it? She has a metabolics dr and a GI, right? One of them would be the one to talk to.

Quote: Originally Posted by Liba613 Am I the only one who gave up co-sleeping because of the tube? Not only did we get all tangled and I worry my son's tube would get pulled out more easily with the extra people around I kept on waking up in the morning in a puddle . I am one of those sound sleepers who could co-sleep through a tube leak. In the AM I would have multiple sets of bile and formula filled clothing, a queen size set of...

So you have a 9 year old responsible for the diet of a 3 year old who needs constant glucose monitoring?

I have to say that our g-tube experience was a long time ago, or maybe it's just that sleep was so hard to come by before the tube, that the amount of trouble we had afterwards seemed negligible, but my son used a g-tube overnight from 9 months to 2 1/2 and it just wasn't the huge hassle people seem to be describing here. He slept in bed with me, so I positioned him on the other side of the bed and ran the tube under my body, I...