Thread: Canadians on Tysabri ?

So tomorrow is infusion #3 for me Haven't really noticed many differences as of yet but here's hoping that good changes are around the corner Have had several side effects after the other 2 infusions so I'm hoping this time goes a bit better. My boss doesn't seem to understand that i'm pre-emptively booking off the next 2 days as sick days. Wish me luck!

Hi Stacey, I didn't see any change for myself. Same symptoms + the symptom of the empty pocket ) I did hear nurses say "you'll see changes after 3" and I believe that some people do. In fact you can find many excited video journals on YouTube and those people are real (I believe they are) and are more then happy to talk. As for me, I decided to just accept the fact that I may have attacks and deal with the fear...

Quote: Originally Posted by cadiman1 Interestingly I just read about it yesterday and have asked my neurologist to send me more information. I tried Rebif but only lasted three months as the side-effects were worse than the disiease (in my case). So I will anxiously await the results of your theraby with this drug and see if it something I want to pursue. Keep us posted and have a safe journey! Brian Looks to me like hope26 is the only...

Ya right! I just had my third infusion and was with a different nurse than the previous two. She asked if I had noticed any difference and when I said "nothing significant" she said it seems to take 6 or 9 injections to really notice. So hang in there! Hopefully your side effects wear off by then too - what kind of side effects are you getting? I've been having some of my old annoying problems return the past month or...

kahry How'd your infusion go? How are you feeling? hope all is well MySprav, I don't know about the Quebec insurance coverage, but you can check out some info here: [url]http://www.ramq.gouv.qc.ca/en/citoyens/assurancemedicaments/index.shtml[/url] Do you live in Quebec? There's usually a long waiting period for new residents...

Hi there alexs-momma, I noticed you're from Sudbury. I've been getting tysabri infusions in Sudbury as well, so I can only assume we have the same infusion centre. Can I ask you which MS clinic you use? I'm finding it challenging being so far up north sometimes!

Quote: Originally Posted by hope26 Google my name "Paulette O'Leary" and you will see my experience with it! Good luck! hi Paulette, Well that google was well worth it. I see this was a big commitment for you, and glad of the outcome. I too have had good results. Hilda. ***Copy and Pasted material prohibited with MSWorld Guidelines. Thank you for your understanding!***

Hi Stacey, I didn't see any change for myself. Same symptoms + the symptom of the empty pocket ) I did hear nurses say "you'll see changes after 3" and I believe that some people do. In fact you can find many excited video journals on YouTube and those people are real (I believe they are) and are more then happy to talk. As for me, I decided to just accept the fact that I may have attacks and deal with the fear...

Aparently they have put tysabri forward for coverage witht eh BC Gov't and so far it's bee rejected 3x. That's our tax dollars hard at work! *Shakes fist at Gordo* I am actually SHOCKED that it's not being done at a hospital and only at a walk in clinic. *boggles* It would seem for something so new, they would want to cover their butts by having you at the hospital. Personally, that would make me nervous, knowing how...

Paul used to be my doc for many years,great guy.I can't say enough good things about Tysabri. I too didn't react well to my 5 years on rebif and short time on copaxone. Google my name "Paulette O'Leary" and you will see my experience with it! Good luck!