Thread: All Should Me Sister Wait For Surgery!!! messages

Dear Gr8ful, It does sound very normal. I know that it takes longer and the journey is more winding and loopy than most of us could have ever imagined. If you just can't get past that one image and that one moment though, you might benefit from a little compassionate counselling. I was stuck for a long time on the post-op agony of my son. Even though he couldn't even remember it, and was doing better and better, I was stuck. My...

Never heard of this.  When my husband had progression it was clear with contrast even when he was on Avastin.  I'd go with the Duke guy and the NS.  Anyone else you can ask.  What does radiologist say? Take care, Peace, JMB

I have heard that Avastin restricts the blood flow to the tumor and that it may be there but isn't getting blood so therefore can't be seen.  I wish I could remember where I read that.

I agree with Chessie.  PET scans check things on the cellular level and reveal activity or lack thereof.  We went to Duke for treatment and that's what they ordered.  Good luck and take care. janni

I'm no doc, but I was put on 16mgs decadron a day just to prevent headaches prior to my second surgery last spring, and I wasn't even presenting the way your sister is. As the others said, don't hesitate to play around with the dex a bit. It can't hurt her anymore than she's already hurting. I have had that headache. The agony! My heart goes out to you. I'm an old-timer here. Been reading and posting for over 2...

Hello everyone, My sister is scheduled for her second craniotomy on Tuesday. Her NO is on vaca. It`s for recurrent GBM and she was dx on 7/28/09. Here`s the question...unrelenting headache last night so no sleep she also seems very removed from what`s going on around her. detached almost. She has gone from walking ,working etc two days ago and now has the terrible headache pain. They cut her decadron down to almost nothing and we are...

I think it's just human nature to want to know the "why" of what is happening to us.  Certainly knowing why is not going to change the course of treatment or probably even the eventual outcome, but it helps explain things to us. We have had a number of farmers from Nebraska as patients and a few firefighters.  We feel there is a definite connection to the use of chemicals in these professions that can have an effect...

I wish I had an answer for those questions.  Martin has memory loss and confussion also.  He has one more dose of Temodar and I hope those side effects leave.  His dr.'s have said the side effects could go away or stay forever and we won't know until later. Sorry I am not much help good luck kozyyak

Rob spent his childhood on farms and by profession was an electrician.  Both of these are suspected of being areas of high incidence of brain cancer.  Don't know if other cancers as well.  I hope someday they will figure it out and the only thing we can do at this point is help fright on a personal level for a safer work environment and overall environmental issues particularly in the farming industry and the green movement...

Have they done a PET scan?  That should show hypermetabolic activity and the degree of progression. Just a thought. Good luck and God Bless