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Continued prayers!! ------------------------- Cris, Mom to Alyssa diagnosed 9/6/05 with complex partial seizures with secondary generalization. Re-diagnosed 8/24/06 TLE - possibly from Mesial Temporal Sclerosis. Also has learning disorders. Lamictal 250 mgs.,Topamax 100mgs. Metadate CD 20 mgs. Detrol LA 2mgs. Lactolose 3 TBSP. I love PM's!!<br /><br />Romans 8:28<br />www.net-haven.net Icon:...

((((((((((Jeremiah & Family)))))))))) *heart/rose*

Oh Wren, I'm so very sorry. I don't even know what to say. (((((hugs))))) ------------------------- Cristina, mom to Matthew, 4 years old, Doose Syndrome and SID, taking Clobazam and Felbatol. Gone: Topamax, Depakote, Lamictal, phenobarbital, Tranxene, Trileptal, and Klonopin. He has atonic, myoclonic, tonic and tonic-clonic seizures.

((((Wren, J & Family)))) I'm so sorry for what you've been through. Many prayers and hugs. ------------------------- Delaine, mom to wonderful 3.5 yr old girl. Dx IGE 1/08. Typical absence seizures (simple/complex). Myoclonus at 18 mos. Tried/failed Depakote. LGIT ao 7/08.

((((Wren and Jeremiah)))) My heart aches for you!! Prayers for healing Ginny ------------------------- Advocacy Makes a difference!! Psa34:17-18 the righteous cry out, and the Lord hears them; He delivers them from all their troubles. The Lord is close to the brokenhearted and saves those who are crushed in spirit. Seize the Facts

I am so sorry for all this pain. I can identify though. My dd had a reaction to a med that did make her psychotic - crying, sudden flips in bed, talk that made no sense, etc. They wanted to give her antipsychotics (risperidal, haldol) and I would not let them till they found the cause of the behavior. Not just medicate it. I am so sorry for you and your little one. I hope you get this figured out. I come from Ks to Colo for care now so I am...

We came home yesterday. I have been constantly going since then. Tonight its all hitting me. My heart hurts so bad, I cant even begin to tell you the pain I feel for what we have endured this week. I thought if I wrote and expressed myself it would be better. Jeremiah is very fragile and not doing so good. I think Monday hurt him more than anyone knew and It makes me so angry, I cant even begin to tell you how angry I am. So this is the story...

(((((((Wren and Jeremiah))))))) My heart goes out to you. I'm so sorry. Peace and prayers. I'm also for reporting it to patient relations. Elizabeth ------------------------- Elizabeth, mom of Travis, age 10, dx with PGE, probable GEFS+ - Depakote 500 mg AM and PM, L-Carnitine 330 mg AM and 660 mg PM, 5 mg Focalin XR, Nasonex, Flovent, Xopenex - // "Courage is being scared to death and saddling up anyway." John...

I can't begin to comprehend what you are feeling at this time. You and Jeremiah are in my prayers. Thinking of you often. Leah ------------------------- Leah--mom to Max 2 dx myoclonic sz Jan 2008; currently on Depakote and Felbatol; failed Keppra, Topamax and Klonopin

what a terrible ordeal! So sorry you all had to go thru it. I am up and can't sleep cause we spent last night in the ER after calling 911. I just know the minute I p***** out Vivian will wake up with an episode. I am tired but not broken.... Blessings for some peace~ ------------------------- Mom to Vivian age 6 with complex partials on Trileptal and clonidine, Macy 3 and Baby Kate 2 years.