|
More site info...
Oral Cancer Support - Survivor / Patient Forum - www.oralcancerfoundation.org | Site profile
|
|
Site profile page for http://www.oralcancerfoundation.org.
This report page has aggregated and summarized the online discussions from the Message Board located at http://www.oralcancerfoundation.org.
This site profile page outlines general site statistics such as: Users Activity, Site Activity, Site Rank, and Top Authors, which are reported in either a table or graph below for a given reporting time period.
Additional site profile information for http://www.oralcancerfoundation.org is also shown in the following divisions:
1) Top 10 Active Forums during Last Week
2) Top 10 Site Forums
3) Latest Active Threads
4) Hot Threads for Last Week
Warning: These statistics are generated using 'best efforts' and can experience delays and reporting errors at times. Please note that such statistics do not constitute a site's popularity and/or exact posting volumes at any given reporting period.
|
|
|
|
|
Posting activity table on Oral Cancer Support - Survivor / Patient Forum:
|
|
Week
|
Month
|
3 Months
|
|
Threads:
|
129
|
532
|
1,423
|
|
Post:
|
355
|
1,595
|
4,281
|
|
|
Authority Badge:
|
|
|
BoardReader Authority Badge code for Oral Cancer Support - Survivor / Patient Forum (http://www.oralcancerfoundation.org)
|
|
Put this code anywhere on your forum page:
|
|
|
|
|
|
|
|
Rating - The position measured by activity among all forum sites tracked by BoardReader.
If rating is 10 there are 9 forum sites which have higher activity.
Posts - Number of posts on forum site during last 7 days.
Threads - Number of threads on forum site active during last 7 days.
Authors - Number of authors which contributed to the site within last 7 days.
|
|
|
|
|
Oral Cancer Support - Survivor / Patient Forum posting activity graph:
|
|
http://www.oralcancerfoundation.org Alexa graph:
|
Top authors on Oral Cancer Support - Survivor / Patient Forum during last week:
user's latest post:
Just hit me and hit me bad -...
Published (2009-12-04 14:16:00)
Angelia, Please keep in mind that this is not for the rest of your life but really a very short 7 week period of discomfort. You can do it. You must do it. You do need to force yourself to eat and drink each and every day as you will only make matters much much worse if you don't. Ninety percent of us on this website went thru concurrent chemo/rad and we were not/are not super humans. We all felt like crap and we all bitched but looking...
user's latest post:
Just hit me and hit me bad -...
Published (2009-12-04 17:52:00)
Angelia It's hard indeed. sometimes we get so tired and its seems so hard, that in the dark recesses of our mind, we wonder if it is even worth it to keep living. But then the realization that yes, life is worth it, our family wants us, and that giving up is not optimal creeps back. Hang in there and vent all you want here. Charm
user's latest post:
Heartbeat - Oral Cancer Support...
Published (2009-12-04 17:18:00)
It is good to see you posting. Wish you were not in so much pain. Let us know about the MRI results.
user's latest post:
Hello forum - Oral Cancer...
Published (2009-12-04 10:06:00)
That does sound like me! I am 11 weks out today. Off the opiates for a couple of weeks. Mostly pain free. I eat like a mainack now steaks, fish, walffles with whipped cream, I even had onion rings the other day. I am still quite weak and do try and walk every day. It is a long journey back, I take it day by day. Next week is a biggie, I will have my PRG removed and my first PET scan. Steve
user's latest post:
Just hit me and hit me bad -...
Published (2009-12-04 14:46:00)
Angelia, I feel bad that you are already having a hard time. David is right, we all hate it. I wish I could trade places with you. Looking back, yes it was awful. But it is something that right now should be relatively easy. Its worth a few bad weeks to have a lifetime. Radiation accumulates in your body. It will unfortunately get progressively worse. At this point, since you are still able to eat, enjoy it. Most of us started feeling the...
user's latest post:
Just hit me and hit me bad -...
Published (2009-12-04 18:01:00)
Angelia, Many on these boards have used or recommend antidepressants. Some people don't. I'm of the mentality that you should use anything necessary to keep you into the fight. heck if you were in a state for it I'd say use medicinal marijuanna, vaporized of course to avoid releasing carcinogens. MJ has been known to raise spirits, increase appetite, settle nausea, decrease anxiety and of course the pain management. Do whatever...
user's latest post:
ChristineB - Oral Cancer Support...
Published (2009-12-04 17:14:00)
Geez Christine, Why is it you have to suffer so much ? You are such a special lady and so caring about everyone. I am on here looking for news of you and how you are doing. Maybe I will give you a call tomorrow afternoon early. Your forever Buddy,,,, Jim
user's latest post:
hypothyroidism - Oral Cancer...
Published (2009-12-04 10:14:00)
Ray, I too felt great other that I was freezing when the rest of the family was comfortable or I was running the air conditioner and they were bundled up trying to keep the icles away. Anyway, Thyroid meds have helped in resolving the problem - although it is taking awhile getting my thyroid numbers where the Dr wants them. I don't know if you are sporting a full head of hair - but a messed up thyroid can make your hair very unhappy and...
user's latest post:
Update on EzJim - Oral Cancer...
Published (2009-12-04 21:47:00)
Sigh ... wait and wait and wait some more. It drives me nuts. I'm rooting for you, Jim - you are like the Energizer Bunny - or an ornery coot - & I mean that in the nicest way:o) Hope your weekend is quiet. Marlene
|
|
|
Top 10 active forums on Oral Cancer Support - Survivor / Patient Forum during last week:
|
|
Top 10 forums on Oral Cancer Support - Survivor / Patient Forum:
General Board
- 7,319 posts
|
Introduce yourself
- 7,285 posts
|
Currently in Treatment
- 6,607 posts
|
After Treatment Issues
- 5,548 posts
|
Medications, Treatment, Procedures
- 5,144 posts
|
Symptoms and Diagnosis
- 3,621 posts
|
Coping / Anger and Fear
- 2,742 posts
|
Oral Cancer Recurrence
- 2,254 posts
|
Caregiver / Co-Survivor Forum
- 2,101 posts
|
Activism
- 1,167 posts
|
|
|
|
|
Latest active threads on Oral Cancer Support - Survivor / Patient Forum:
Started 3 days, 20 hours ago (2009-12-02 05:22:00)
by davidcpa
Pat, You really need to make sure your treating doctors are aware of your headaches. Have you had a recent PET scan? Where are you being treated? There are many here that have lost a significant portion of their tongue but I don't remember headaches like you describe being discussed.
Started 2 days, 19 hours ago (2009-12-03 05:26:00)
by davidcpa
Let us know as soon as you get the results and good luck!!
Started 3 weeks ago (2009-11-14 06:40:00)
by ChristineB
Jim this was the hardest post I have had to write. I am so sorry you are going thru this. If you have questions that I can help you with, please just ask. Im here for you. Dont forget the fact that everybody is different. Please dont compare yourself to what I went thru. Sending prayers and love your way!!!!
Started 3 months, 1 week ago (2009-08-25 02:50:29)
by suzanne98
Hi Margaret...thank you for the update. I wasn't sure when we would
hear...I've been checking throughout the day....
Started 1 month, 3 weeks ago (2009-10-09 20:15:00)
by ehall1
Hopefully the old saying about how the third time is the charm holds true. This is my third time around. First time in april 08 with a partial glossecotmy, 2nd time with a lump on the right neck and a modified neck dissection in January of 09 and now a lump on the left side, cofirmed by FNA. The good news is from the PET scan, the lump is the ONLY hot spot on me. Now they (the team) have to ...
Started 2 days, 7 hours ago (2009-12-03 18:21:00)
by Brian Hill
Being sleepy and not being able to stay warm. Classic hypo- thyroid
symptoms.
Started 1 day, 7 hours ago (2009-12-04 18:12:00)
by Dianne
Hi.....I had a radical left neck dissection in December 1992 followed by 30 days of radiation (5,780 RADS). Neck pain was controlled by Tegretol, a seizure medication. Tegretol works on the same nerve ending in the neck as in the brain and it calms the pain. I managed to continue working for 17 years after surgery and recently retired. Also, I have worked very hard on maintaining good oral ...
Started 1 day, 11 hours ago (2009-12-04 14:16:00)
by davidcpa
Angelia, Please keep in mind that this is not for the rest of your life but really a very short 7 week period of discomfort. You can do it. You must do it. You do need to force yourself to eat and drink each and every day as you will only make matters much much worse if you don't. Ninety percent of us on this website went thru concurrent chemo/rad and we were not/are not super humans. We all ...
Started 1 day, 14 hours ago (2009-12-04 11:01:00)
by misskate
and yes HPV16 is linked to oral cancer-- but that doesn't neccesarily mean that is what you have. Lets see what your Drs. say. K
Started 2 days, 7 hours ago (2009-12-03 18:20:00)
by Brian Hill
Well, lets make the assumption that your ticker is not having a problem. This you need to confirm with someone. I remember some acute panic attacks in which I had the same, very uncomfortable, sensation. It of course is amplified by your mind, and your mind can make it much bigger than anything really is. But I would want my docs to say this is not cardiovascular in nature. After that bring on ...
|
|
Hot threads for last week on Oral Cancer Support - Survivor / Patient Forum:
Started 6 days, 14 hours ago (2009-11-29 11:08:34)
by Charm2017
Angelia It never ends does it? I thought of you when watching Flashforward on TV last week as the song played: "The Worst Day since Yesterday" Quote: If there's one thing I have said Is that the dreams I once had, now lay in bed As the four winds blow, my wits through the door It's been the Worst Day Since Yesterday... Hell says hello, well it's time to I should go To pastures green, that ...
Started 4 days, 3 hours ago (2009-12-01 22:10:00)
by Bloop19
It sounds like I am having the same things radiated. They told me both sides of my neck, and under my chin and that area. They made one mask that just came to the bottom of my chin and then they didn't like it and had me come back in for one that goes down to my shoulders. So maybe they are adding some spots too. I still don't have my final plan but I'm afraid I have an infection in my PEG ...
Started 3 days, 15 hours ago (2009-12-02 10:14:00)
by EricS
Miralax worked for me, other then that dear I'm not sure what to tell ya
Started 4 days, 8 hours ago (2009-12-01 17:07:00)
by suzanne98
Hi Abomb and welcome to OCF. We cannot diagnose anything so if you have a white spot in your mouth that hasn't gone away after 2 weeks or so you should go to your dentist and ask them to look at it. If it turns out to be something, which I hope it isn't, you have found a great group of people. Hopefully you won't have to come back here. Congrats on not chewing..keep up the good work.
Started 2 weeks, 2 days ago (2009-11-19 17:06:00)
by ChristineB
Welcome to OCF. The fatigue is a common ailment most radiation patients endure. Unfortunately it can linger around for months after treatment ends. Congrats on finishing your treatments.
Started 4 months ago (2009-08-05 05:21:00)
by EzJim
We all seem to drool when we drink and can't help it and sometime with soft food we drool some too. When someone stares, I like to say I was raised with hogs and if youe ever saw a pig eat you saw them drool too.
Started 3 days, 19 hours ago (2009-12-02 06:04:00)
by davidcpa
Good to hear from you Jim and with your recovery going so well hopefully
you can spend some time on the site giving encouragement to the newbies.
Started 3 weeks ago (2009-11-14 06:40:00)
by ChristineB
Jim this was the hardest post I have had to write. I am so sorry you are going thru this. If you have questions that I can help you with, please just ask. Im here for you. Dont forget the fact that everybody is different. Please dont compare yourself to what I went thru. Sending prayers and love your way!!!!
Started 2 days, 7 hours ago (2009-12-03 18:20:00)
by Brian Hill
Well, lets make the assumption that your ticker is not having a problem. This you need to confirm with someone. I remember some acute panic attacks in which I had the same, very uncomfortable, sensation. It of course is amplified by your mind, and your mind can make it much bigger than anything really is. But I would want my docs to say this is not cardiovascular in nature. After that bring on ...
Started 2 months, 1 week ago (2009-09-23 06:57:00)
by davidcpa
Jon, Of course we'll be here, that's what this site is all about. If you were in the US I would definitely tell you to get another opinion from a Comprehensive Cancer Center (CCC) but over there I doubt that's possible. My main concern and yours to is the recommendation for BOT to cut that part of the tongue out and now your saying the voice box as well. Certainly I'm not a doctor and you ...
|
|
Oral Cancer Support - Survivor / Patient Forum
Size: 338 bytes
