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NSF Forums - powered by vBulletin - www.scoliosis.org | Site profile
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user's latest post:
Success! Down to 24 degrees! -...
Published (2009-12-05 10:49:00)
Quote: Originally Posted by hdugger Would it be possible to move this discussion to some other topic, and give a teenager and her parent some space to celebrate a happy occasion? I think we should follow this guideline in this thread
user's latest post:
Extended Wong comments - Page 2...
Published (2009-12-05 22:15:00)
Quote: Originally Posted by concerned dad In the 6 page rebuttal, they say: 1) The authors in this study and the facility at which patients were treated with SpineCor are not qualified to a proficient standard in the SpineCor treatment system. They should not be providing this treatment therapeutically to patients, let alone conducting research into its efficacy. We believe this to be seriously unethical and detrimental to the patients...
user's latest post:
Torso Rotation Strength Training...
Published (2009-12-05 17:04:00)
Medicine Ball Torso Rotation This exercise might be beneficial for kids with Scoliosis. It works the paraspinal muscles, it's good for coordination and it's easy for young kids to do. I had my 6 year old try this and he could do it safely, without difficulty. We used a 2 pound medicine ball that looks like a basketball. We modified this exercise slightly by placing a small disc behind his back. We used the disc to hold the ball....
user's latest post:
need advice
Published (2009-12-05 17:24:00)
Welcome to the forum and I'm so sorry that your pain brings you here. No, you are not crazy for wanting to feel comfortable with your surgeon. Some people get second, third and fourth opinions and more until they feel sure that this person will give them the best result. This is your spine, and your future, so take your time and find the surgeon in whom you'll feel confident. You don't mention that this current dr. has run any...
user's latest post:
Extended Wong comments
Published (2009-12-05 09:26:00)
I havent followed all the threads about spinecor...but i do know this... when has a manufacturer said bad things about their product, unless ordered to tell the truth by a court of law? what is a statement by a manufacturer worth... they certainly dont want to put themselves out of business! it is completely expected that a corporation will defend their product.... to the end!! jess
user's latest post:
Torso Rotation Strength Training...
Published (2009-12-05 21:02:00)
Quote: Originally Posted by Dingo Although there is a lot of evidence that muscle imbalance either causes or plays a part in Scoliosis there isn't definitive proof. But you have to ask yourself, why wouldn't muscle imbalance cause Scoliosis? Not long ago Japanese women would bind their feet. This would create a force that altered growth and over time caused deformity. Tell me this picture doesn't remind you of Scoliosis...
user's latest post:
Happy Belated Birthday Linda R.
Published (2009-12-04 17:35:00)
What a perfect job for you Linda. Being happy with your job is such a blessing.
user's latest post:
Happy Belated Birthday Linda R....
Published (2009-12-04 19:20:00)
Quote: Originally Posted by loves to skate Congratulations Linda. The job sounds very interesting and is obviously right up your alley. Why the pay decrease? Is it because it's a research job? Once they find out that they can't get along without you, maybe they will give you a bonus. I guess you won't be holding your breath. I worked in medical all of my life and it was a vow of poverty, but was very rewarding. I always said I...
user's latest post:
Happy Belated Birthday Linda R.
Published (2009-12-04 17:48:00)
Happy Birthday, i hope you had a great day. Congratulations on your new postion. Will you still be moderating this forum? I haven't been here long, but commenced reading this site back in January. Your knowledge and helpful advice is second to none in my opinion and for this i thank you. Once again best wishes.
user's latest post:
Happy Belated Birthday Linda R.
Published (2009-12-04 19:00:00)
Quote: Originally Posted by LindaRacine Thanks very much everyone. I gave myself a great gift this year. On my birthday, I was offered, and accepted, the position of Staff Research Associate at the UCSF Orthopaedic Spine center. The change in career will require a vow of poverty, but I feel like the passion I have for the job will offset the big decrease in pay. I'll start sometime in January, and will specifically be working on the...
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Top 10 active forums on NSF Forums - powered by vBulletin during last week:
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Top 10 forums on NSF Forums - powered by vBulletin:
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Latest active threads on NSF Forums - powered by vBulletin:
Started 4 months, 3 weeks ago (2009-07-13 01:26:48)
by Pouncy
Congratulations! That is great that he is doing so well. How old is Alexander? I am coming up on 13 years after surgery but so far the best anniversary was last year since it marked living with rods and what not for half my life.
Started 2 days, 12 hours ago (2009-12-05 08:01:00)
by mamamax
P lease read the rest of the tread - regarding the Spinecor manufacturer's rebuttal to the controversy. If you read the six page rebuttal - Spinecor states that the 3 team members, while they had "certificates", these certificates were introductory level training certificates only - not certificates of full training which would deem them fully certified .
Reading the six page rebuttal:...
Started 5 months, 3 weeks ago (2009-06-15 08:39:00)
by MissEmmyF
I think I read somewhere on the forum that these types of exercises are more helpful for someone with thoracic scoliosis vs. lumbar scoliosis, right? In other words, the exercises target the muscles higher up in the back and not as much in the lower portion of the back?
Started 2 months, 1 week ago (2009-09-25 14:27:00)
by hdugger
Hi,
We're still pre-surgery so I can't give you too much good advice, but I have a son near your age with a curve in the 50s (although his is in his upper back). Right now, it's stable, but we may be looking at surgery if it progresses.
Did you dr. tell you that you wouldn't be able to play sports afterwards? I know there is some restriction on sports immediately after, but I've seen ...
Started 3 years, 7 months ago (2006-04-13 02:51:00)
by gerbo
Quote:
If you're familiar with the " vicious cycle" theory, this means that both of these techniques do help correct the "asymmetrical loading", but until the root cause is addressed or the asymmetrical loading totally reversed, the curvature will probably restart the cycle
have you got any references to (decent) literature on this?
Started 1 day, 3 hours ago (2009-12-06 16:58:00)
by Pooka1
That's amazing. Like Candid Camera amazing... people could be filmed just for their reaction to reading that.
So Clear is entirely a non-profit? No business side? How can we check?
I hope all the patients who are "contributing" to this "charity" deduct the treatment costs as charitable contributions.
Started 23 hours, 38 minutes ago (2009-12-06 20:30:00)
by Pooka1
I think you will agree that this ramp up to surgery is the hardest part.
Your daughter will come through this faster than you might imagine.
Stay focused. Eyes on the prize.
Good luck.
Started 3 weeks, 4 days ago (2009-11-12 19:26:00)
by nancystreasures
I am a mom & I have to say you kids are breaking my heart - my little boy is going to be 11 in Feb & his scoliosis has been severe & noticable ever since he started school at 4 yrs old - he is special needs -he has Smith Magenis Syndrome & wore a full upper body brace for his scoliosis for 3 years straight - his classmates called it his chest armor LOL (it didn't help so we stopped) - I feel ...
Started 1 month, 1 week ago (2009-10-25 19:18:00)
by JenniferG
I just wanted to say how sorry I am to hear that Sally. I hope the test points directly to the problem spot and that Dr. Rand can fix it without delay. It's a bummer, but it sounds like it can be fixed without too much drama and you can continue your life painfree.
One good thing, at least your fusion is intact. Sending very best wishes.
Started 2 years, 10 months ago (2007-01-31 00:53:01)
by LindaRacine
Hi...
My one BIG recommendation would be to wait until Dr. Paul has done at least 8-10 of these procedures. There has been quite a bit written about learning curves, especially in terms of thorascopic procedures. For example:
http://www.ncbi.nlm.nih.gov/entrez/...l=pubmed_doc sum
http://www.ncbi.nlm.nih.gov/entrez/...l=pubmed_Doc Sum
http://www.ncbi.nlm.nih.gov/entrez/...l=...
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Hot threads for last week on NSF Forums - powered by vBulletin:
Started 2 days, 12 hours ago (2009-12-05 08:01:00)
by mamamax
P lease read the rest of the tread - regarding the Spinecor manufacturer's rebuttal to the controversy. If you read the six page rebuttal - Spinecor states that the 3 team members, while they had "certificates", these certificates were introductory level training certificates only - not certificates of full training which would deem them fully certified .
Reading the six page rebuttal:...
Started 2 months, 2 weeks ago (2009-09-24 14:16:00)
by Pooka1
That's really wonderful!
I am glad you posted that because I can't think of another testimonial about Spinecor producing that much reduction in AIS. So that's great from that standpoint also.
Accumulating data one testimonial at a time! We should all be able to publish in about 250 years!
Started 5 months, 3 weeks ago (2009-06-15 08:39:00)
by MissEmmyF
I think I read somewhere on the forum that these types of exercises are more helpful for someone with thoracic scoliosis vs. lumbar scoliosis, right? In other words, the exercises target the muscles higher up in the back and not as much in the lower portion of the back?
Started 3 days, 21 hours ago (2009-12-03 22:59:00)
by jrnyc
I'd like to second that "happy birthday" to you, Linda...with many thanks for all you do for this forum & all who write to it....hope you celebrated royally...
jess
Started 1 week, 1 day ago (2009-11-29 14:04:00)
by JenniferG
Being young, I expect you'll get a good correction Bethany. I am sure you'll be happy with the result.
Glad you don't have long to wait, because waiting's the hardest part. Take care, eat well and exercise daily, if you can. Good luck!
Started 4 days, 5 hours ago (2009-12-03 14:39:00)
by mariaf
I don't think you could have asked for any better results for Savannah. I'm happy to hear how well she's doing.
Congrats!!
(And I'm sure her sister will follow in her footsteps.)
Started 3 days, 10 hours ago (2009-12-04 09:57:00)
by LindaRacine
Hi...
I ended up being intubated for 5 days post op. All I know is that i wasn't breathing well enough on my own. I've heard of others who have had to be intubated, but I would say it's relatively rare. It was scary for me, as I wasn't prepared for it to happen.
Regards,
Linda
Started 2 months, 1 week ago (2009-09-25 14:27:00)
by hdugger
Hi,
We're still pre-surgery so I can't give you too much good advice, but I have a son near your age with a curve in the 50s (although his is in his upper back). Right now, it's stable, but we may be looking at surgery if it progresses.
Did you dr. tell you that you wouldn't be able to play sports afterwards? I know there is some restriction on sports immediately after, but I've seen ...
Started 1 week, 1 day ago (2009-11-28 23:25:00)
by JenniferG
Rich, I found the fear of losing mobility was far worse than the reality. No, you can't bend at the waist, but you can bend at the hips and knees. No, you can't twist round in the driver's seat, but you can sit on a satin pillow case, which allows you to move slightly to see over your shoulder. Most things are doable, even if slightly differently. Don't let the fear of losing your mobility ...
Started 1 week ago (2009-11-30 01:52:00)
by jrnyc
HI Donna
it is now almost 3 a.m. monday morning on east coast of U.S.
my prayers go out for Gabby for a smooth, successful surgery & the start of a smooth healing process....may she come to have a life free of pain & full of health & happiness...
best of luck
jess
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