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Interstitial Cystitis & Painful Bladder Support... - www.ic-network.com | Site profile
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Interstitial Cystitis & Painful Bladder Support - Powered by vBulletin posting activity graph:
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Top authors on Interstitial Cystitis & Painful Bladder Support - Powered by vBulletin during last week:
user's latest post:
urniation and catheter problems
Published (2009-11-23 02:51:00)
That sounds so painful. After my hysterectomy/cystocyle and rectocele(I had a prolapse) in 1975 I had a catheter in for five days and then they took it out and I could not pee. I walked,submerged myself in a hot tub of water and anything that was suggested I tried. They did not come to put the catheter back in until 10PM.They had taken it out at 6AM!! From 7Pm on I called for them to put it back in,my husband went to the desk twice to ask for...
user's latest post:
Recently diagnosed with IC, need...
Published (2009-11-23 14:25:00)
It sounds like you are on the right track to begin feeling better. If you absolutely can't give up that one cup of coffee, you might try one of the low acid brands of coffee. There are some available in the ICN Shop. I can have one cup of low acid coffee in the morning and I really enjoy it. Sending healing thoughts, Donna
user's latest post:
I am too scared now
Published (2009-11-23 10:08:00)
I have never Pee'd my pants on road trips , But , I have had diarrhea accidents due to my IBS-D. It's horrible to have to " SIT IN IT" till you can get to someplace and clean up and change your clothes. And every time that happens , I get a Bad UTI that requires Cipro for Ten Days. I am not afraid to go anyplace if I want or need to go. I just do it. Now I won't wear Depends or anything like that. But it may be...
user's latest post:
Ok, is this a coincidence or is...
Published (2009-11-23 19:00:00)
I don't know. But sounds good to me. I like Ginger and may get me some. I have noticed that when I'm sick like month ago I had the H1n1 and my bladder did not bother me at all. Maybe I was to sick to even care DIAMIC65
user's latest post:
Help!! Scared!!
Published (2009-11-23 13:33:00)
My IC can make my retum area very sore. Right now everything down there is inflamed. I call it my baboon butt(LOL). But everything down there is so close together, I think just IC can do that! It feels like my bladder is laying on my colon giving me spasms. hugs and blessings
user's latest post:
Pelvic Tilt exercises
Published (2009-11-23 15:21:00)
My doctor just gave me two pelvic tilt exercises to do...has anyone had any luck with these? For the first one you lay on your back and push your lower back to the floor. For the second one you rotate your hips on an exercise ball. I'm hoping it helps with my frequency...when I sit in class all day I have to go much more than I do any other time.
user's latest post:
Anyone got any good Christmas...
Published (2009-11-23 18:45:00)
I'm planning to really enjoy baking & giving treats to people this holiday season Anyone got a good recipe they could share? I got some really cute cookie cutters and my mom gave me our old cookie press that I grew up with
user's latest post:
Help!! Scared!!
Published (2009-11-23 13:18:00)
Yeah, seriously, I do it sometimes especially if my poo is harder OR softer than it should be. You just never can tell. Go to your doc just for peace of mind. I've talked to my gyn and he wasn't worried at all.
user's latest post:
"No Cure"?? - Page 4 -...
Published (2009-11-23 13:26:00)
Quote: Originally Posted by bnckpetz I just do not get how people can go from having a normal life, then all of a sudden have an UTI or an infection and then all of a sudden IC shows up. Doctors cannot explain this to me either and I have seen 5 different doctors. I know. I think it's like the ultimate proof that life isn't fair. I do think "some day" they will figure out why this happened to us and a cure will...
user's latest post:
Are you a smoker?
Published (2009-11-19 12:55:00)
My mom started smoking when she was 13 years old. I can remember taking vacations and having to breath e in the smoke all day long in the car. Of course she smoked when she was pregnant with all of us also, since the docs didn't know enough to discourage it. I have felt for a long time that my allergies, asthma, GERD, and possibly my IC are connected to that early, heavy exposure to "second-hand" smoke. The insane thing...
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Top 10 active forums on Interstitial Cystitis & Painful Bladder Support - Powered by vBulletin during last week:
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Top 10 forums on Interstitial Cystitis & Painful Bladder Support - Powered by vBulletin:
Newly Diagnosed With Interstitial Cystitis
- 22,562 posts
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Interstitial Cystitis Diet
- 15,741 posts
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Symptoms of IC
- 10,137 posts
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Pain Management For Interstitial Cystitis
- 10,028 posts
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Help! I'm in an interstitial cystitis flare!
- 8,994 posts
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Share Your Interstitial Cystitis Story
- 7,923 posts
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Prayer Requests
- 7,282 posts
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Other Related Conditions
- 5,824 posts
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Not Diagnosed Yet with Interstitial Cystitis?
- 5,739 posts
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Cystoscopy & Hydrodistention For Interstitial Cystitis
- 5,340 posts
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Latest active threads on Interstitial Cystitis & Painful Bladder Support - Powered by vBulletin:
Started 1 day, 4 hours ago (2009-11-24 19:39:00)
by Elacey
I definitely know how you feel.I have horrible abdominal and lower back pain.Aching is definitely the word to describe it.I'll think that I have back problems when really it's the IC.I'm pretty sure it's different for everyone but,I definitely feel that way.Now the burning when you urinate,that is a good question because sometimes I feel as though I have a burning sensation but,I chalk it up to ...
Started 2 days, 5 hours ago (2009-11-23 18:30:00)
by kadi
Are there dyes in the medication? That can sometimes provoke a flare. I don't have any experience with morphine & I'm allergic to percocet so I can't speak to that, but I have had trouble with dyes in medicines bothering my bladder. Now, I usually make sure to get white pills only.
Wishing you better days soon,
Started 3 days, 3 hours ago (2009-11-22 20:23:00)
by musiclover
I think it just depends on the doctor and the patient's symptoms. I think some do offer them right off the bat to jump start the Elmiron and to give some symptom relief from the marcaine or lidocaine. I'm talking about rescue instills, not DMSO. My doctor didn't mention them, so a few months after being diagnosed I requested a round. I did one a week for six weeks. It did numb the bladder ...
Started 11 months, 3 weeks ago (2008-12-08 10:35:00)
by curlette
Yes, I have had a history of sexual abuse and physical abuse, went as far as kicking me in the stomach when I was 6 months pregnant with his "steel-toed" Dayton work boots on and Yes! I had to have an emergency appendectomy a week following this, this surgery was botched, when they removed my gall bladder, there were complications. I have had 2 abortions, one was a nightmare and I almost died. ...
Started 2 days ago (2009-11-23 23:50:00)
by ICPrincess
I just went through this yesterday and am very frustrated. I swear I seem to have radar for infections because I had a feeling it was not a regular flare. I just ended a very heavy period and forgot to take my preventative dose of Cipro. I was fine the day before, but yesterday I began to get that awful feeling where you want to jump out of your skin. I can almost always tell now when its an ...
Started 1 day, 11 hours ago (2009-11-24 12:19:00)
by ICNDonna
Is the elmiron keeping your symptoms under control? Sometimes we have to make some difficult decisions. I have heard, but don't have any confirmation at all, that taking a break from the elmiron helped some people. I also know several people who stopped taking it due to hair loss.
I had a different side effect (headache) and had to stop taking it.
Donna
Started 4 months, 2 weeks ago (2009-07-09 01:49:00)
by ICNDonna
This is yet another lesson on why it's important to read labels. I drink tap water at home because we have a deep well and an ultraviolet filter in the pump house, but clorinated water is a problem for me so I do buy bottled water when we're away from home. I do read labels and only buy bottled spring water with no additives.
Donna
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Hot threads for last week on Interstitial Cystitis & Painful Bladder Support - Powered by vBulletin:
Started 1 week ago (2009-11-18 14:18:00)
by Julie B
My daughter has had two laps for endometriosis and they definitely helped. The second one was quite and extensive surgery requiring an overnight stay, but she has been pain free since January.
I wish you luck in your decision.
Gentle hugs,
Started 6 days, 21 hours ago (2009-11-19 02:09:00)
by nottoc4
i do fine with it,lots of ice. I also have put vanilla icecream in it and it was yummy.
Started 1 month ago (2009-10-24 04:15:00)
by Glenda2
I get up to go 5 to 7 times a night.
Usually Once an hour.
I hate that.
Now I have bad insomnia. Sooooooooo Tired.
Started 1 week, 2 days ago (2009-11-16 09:06:00)
by LithEruiel
I hope it goes well for you. Best wishes
Started 3 months, 3 weeks ago (2009-08-05 04:50:00)
by 77amy
hydroxyzine did make me crave sugar... but as I would take it 30 min before bed, I'd just drink some herbal tea (blueberry is my fav), then brush my teeth and go to bed.
I've heard 5 HTP helps w/ food cravings, but you want to talk to a dr or nutritionalist before taking it -I'm not a dr or anything.
Started 1 week ago (2009-11-18 09:46:00)
by VickiB
Oh, I am so sorry this is happening. How scared you must be!
I will certainly keep your daughter in my prayers.
Vicki
Started 1 week, 2 days ago (2009-11-16 13:18:00)
by 123456
Ugh. I'm so sorry. Just know that you are not alone! Your symptoms sound close to what mine were. Definitely see the urologist as this is the very best first step. I wish you the best. I hope it is only a bladder infection, but if it isn't we're all here to support you!
Started 2 weeks, 4 days ago (2009-11-07 02:17:00)
by em1
Have you tried the bioidentical hormone cream or gel to see if it irritates you. I understand you can also get it in a water based gel that is non allergic.
I tried the cream & made it 2 days without a migraine. It seemed to help my bladder in that length of time but I won't be able to take it anymore. I wasn't aware there was a vaginal pill.
Started 1 week ago (2009-11-18 14:15:00)
by Julie B
Did you order the Desert Harvest aloe? If so, that should be ok. They prepare it especially for IC patients. :-)
Started 1 week, 3 days ago (2009-11-15 05:48:00)
by 123456
I sometimes get a head rush when I stand quickly or move around. I've been on Elmiron for a month as of tomorrow. At first I was really worried about all the possible side effects. I'm happy to inform you that other than the first few days of an angry colon, I haven't had any (besides being light headed every so often). No hair loss or anything. Keep on going b/c I thing you'll notice that ...
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