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HER2 Support Group Forums - her2support.org | Site profile
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Posting activity table on HER2 Support Group Forums:
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3 Months
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298
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2,512
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Post:
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904
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2,851
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7,676
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Rating - The position measured by activity among all forum sites tracked by BoardReader.
If rating is 10 there are 9 forum sites which have higher activity.
Posts - Number of posts on forum site during last 7 days.
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Authors - Number of authors which contributed to the site within last 7 days.
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HER2 Support Group Forums posting activity graph:
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http://her2support.org Alexa graph:
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Top authors on HER2 Support Group Forums during last week:
user's latest post:
Allergic reaction to taxotere
Published (2009-11-20 23:13:00)
Hmmm...are they talking about CMF w/o Herceptin? I would think the Herceptin would go along with whatever traditional chemo regime you switch to.
user's latest post:
Blocking Tissue Stiffening...
Published (2009-11-20 12:10:00)
A team of scientists from the US and the UK have shown that blocking an enzyme called lysyl oxidase (LOX) that causes tissue to stiffen reduces the likelihood of abnormal but non-malignant breast tissue turning into tumors, suggesting that LOX and similar enzymes could be new targets for effective anti-cancer drug therapies. More...
user's latest post:
A Message from Dr. Love about...
Published (2009-11-20 20:46:00)
Well, if it was, Rich, I recommend Fish Oil, and a host of anti-inflammatory supplements! I think the discussions are great. I am enjoying the process, personally. As for the Times, well, I've always considered it an over-priced rag, but that's just me. When I lived on Long Island many years ago my boyfriend and I would go to Jones Beach on Sundays with the Times, of course. I'd read through my favorite sections, take a long...
user's latest post:
Toolbox makeover?
Published (2009-11-20 13:28:00)
This is a very interesting discussion. Metronomic chemo with cox 2 inhibitors/antianigogenisis therapies is something we can ask our docs about. I took Herceptin every week instead of every 3 weeks. I read a smaller dose every week is easier on the heart. The doc asked me if I want Herceptin every three weeks several times and I said, "No. I prefer weekly."
user's latest post:
How can you tell if it's...
Published (2009-11-18 00:24:00)
Flori, I don't have much time because I have surgery in the morning on femur...but real quickly wanted to say Dr. Slamon was going to have me in a TDM1 trial and I have bone mets to femur, ilium, & sacrum. So I don't think that will disqualify you. I also agree that a bone scan and hopefully a bisopy of the area would give you a answer that you need. I'll be praying that it's necrosis. Hope all turns out well. Chelee
user's latest post:
The new guidelines sparked the...
Published (2009-11-20 16:36:00)
Margie, I can see through your words how upset you're over this and am so sorry. I live in Ireland and the routine free screening including mammo's start at 50 and always have. of course if someone younger is concerned they can of course be referred for one sooner by their family Dr which is what happened in my case at 46. I hope your fears are ungrounded in the future and maybe people are looking at the worst case scenario in view...
user's latest post:
A Message from Dr. Love about...
Published (2009-11-20 16:28:00)
Have I got this right? "Cost-sharing" when the mobile mammography vans go around to poorer and underserved parts of cities and rural America attempting to reach higher risk parts of our population? Will these screenings still be free, or even available? I have so many questions. How will I be able to give support with a clear conscience if I do not stand up for the right of everyone to have some way to assess their breast...
user's latest post:
Toolbox makeover?
Published (2009-11-20 15:07:00)
Quote: I am currently confused on the growth factor issue, having seen it portrayed as everything from detrimental to a therapy option in its own right. Not sure if it has to do with the difference between G-CSF and GM-CSF. Becky researched this heavily for her adjuvant therapy and went with GM-CSF. If you have info at hand, serve it up. Here are a few threads from this board with links to various articles and discussions:...
user's latest post:
protein Trim62 regulates p27,...
Published (2009-11-20 11:18:00)
and sensitivity to it Specifically for her2+ breast cancer Protein Trim62 regulates p27, affecting HR+ breast cancer prognosis [American Association for Cancer Research] It is well known that levels of a protein called p27 are related to breast cancer outcomes, but less is known about the reasons behind this. Researchers at the Fred Hutchinson Cancer Research Center (FHCRC) in Seattle have determined that another protein, called Trim62,...
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Top 10 active forums on HER2 Support Group Forums during last week:
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Top 10 forums on HER2 Support Group Forums:
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Latest active threads on HER2 Support Group Forums:
Started 20 hours, 7 minutes ago (2009-11-21 19:10:00)
by WolverineFan
Laurel...I am with you completely. I don't understand this at all, but would sure like to be enlightened.
Started 3 days, 2 hours ago (2009-11-19 12:45:00)
by hutchibk
Wish I could be at SABCS to see the roast of her stance.
Started 21 hours, 31 minutes ago (2009-11-21 17:46:00)
by hutchibk
I didn't have to stop Tamox, but after a year of it my doc switched me to aromasin...
However, he has been talking about Faslodex too, as another option when it appears Tamox has stopped working. So, even though you didn't quit Tamox from it not working, I wonder if Faslodex might be an option for you in place of it? Worth the ask, I say.
Started 22 hours ago (2009-11-21 17:17:00)
by tricia keegan
I'm not sure Dianne, but maybe the herceptin was affecting it and it has'nt corrected itself yet?
My echo's went down to 58 by the time I finished herceptin.
Started 1 day, 9 hours ago (2009-11-21 05:30:00)
by Ellie F
Hi Rhonda
I have just read you post with sadness.
This board unites us all through a common struggle against a dangerous enemy.
Everyones contribution is valuable in a different way and I believe the only way forward for the world is that we embrace these and move on.
I hope you will reconsider your decision to leave the board.
Ellie
Started 1 day, 3 hours ago (2009-11-21 11:45:00)
by StephN
Dear chelee -
Hoping to hear that your surgery went well and the surgeon can give you a good report.
Lots of hugs and prayers were sent for a successful operation, and healing.
Started 1 day, 1 hour ago (2009-11-21 14:09:00)
by bejuce
Joe,
I am very sorry about your wife. I'm struggling to go through these holidays myself, worried about what the future may hold for my family and I. I don't even know what to say to you that may bring you comfort. You see, I've been with my husband for 19 years now and we're each other first loves. We cannot imagine life without each other. So I hope you take comfort in your spiritual ...
Started 1 year, 9 months ago (2008-02-16 06:26:00)
by Marlys
Bringing this forward just in case some of us may have missed it.
Love & hugs,
Marlys
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Hot threads for last week on HER2 Support Group Forums:
Started 1 week ago (2009-11-15 04:31:00)
by Ellie F
Hi Chelee
I have had two bone scans. My first was routine following diagnosis and my second was earlier this year around the time of my recurrence. On my second one they thought I had a suspicious area on my skull. Eventually it was seen by a specialist onc radiologist and was found to be related to cysts.
I have since asked my onc when I will have my next one. His reply was since I am having ...
Started 4 days, 18 hours ago (2009-11-17 20:21:00)
by Cannon
Chelee,
I am praying for an easy surgery, a quick recovery, and loving care from all those rotten doctors!
You have fought everyone and everything to get to this point - try to let go of "should have" and look forward to the next fight.
I wish I could do more, but I am thinking of you.
Rebecca
Started 3 days, 2 hours ago (2009-11-19 12:45:00)
by hutchibk
Wish I could be at SABCS to see the roast of her stance.
Started 6 days, 4 hours ago (2009-11-16 11:14:00)
by suzan w
Dear Marie, I just know that you are going to be a Fighter Extraordinaire...Through your sharing on this board I feel like a true sister of yours, funny how we can know so much about other people without really "knowing" them!!! Our struggles do make us stronger. Please keep in touch!! XO Suzan
Started 2 days, 20 hours ago (2009-11-19 18:25:00)
by chrisy
Ha ha Rich! Bloviate on!
Without attempting to tackle the details (just a suggestion, "white space" is good), I agree that less can be more.
Started 5 days, 18 hours ago (2009-11-16 21:11:00)
by Joe
Is there anything on the Young Suirvivors Board about this?
Regards
Joe
Started 6 days, 2 hours ago (2009-11-16 12:25:00)
by tricia keegan
Oh Shoba I can relate, and just had an mri for back pain which came back inconclusive! I'm now awaiting a pet scan, I too would welcome anything but cancer and know how you feel.
Keeping good thoughts for both of us for nothing less than NED!
((((HUGS)))))
Started 4 days, 9 hours ago (2009-11-18 05:29:00)
by ahdubose
I missed the news on this one but caught up to it on this board. I'm quite
surprised as well. I keep telling everybody though based on my own story
not to only rely on a mamogram but to use it as a baseline that everything
was OK at that point and religiously perform self exams!
Started 1 week, 2 days ago (2009-11-13 13:29:00)
by hutchibk
I am really curious about this reasoning which seems somewhat absurd. I read on other forums (breast, ovarian and osteosarcoma) about patients who have infused chemo (often tough ones on the WBC like carbo and taxol) pretty immediately (maybe a week) leading up to surgery and then again starting 10 days to 3 weeks post surgery...
Have you asked about maybe adding Xeloda orally to the Herceptin...
Started 1 week, 1 day ago (2009-11-13 19:13:00)
by ammebarb
Hi Tricia. I am so sorry you have the stress of waiting for another scan. I don't have any experience with MRI, so I don't have any insight about why it would be inconclusive, but wanted you to know that I am thinking of you and hope that you are able to schedule the required PET very soon.
Barb A.
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