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HER2 Support Group Forums - her2support.org | Site profile
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Site profile page for http://her2support.org.
This report page has aggregated and summarized the online discussions from the Message Board located at http://her2support.org.
This site profile page outlines general site statistics such as: Users Activity, Site Activity, Site Rank, and Top Authors, which are reported in either a table or graph below for a given reporting time period.
Additional site profile information for http://her2support.org is also shown in the following divisions:
1) Top 10 Active Forums during Last Week
2) Top 10 Site Forums
3) Latest Active Threads
4) Hot Threads for Last Week
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Posting activity table on HER2 Support Group Forums:
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3 Months
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241
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2,486
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Post:
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609
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2,673
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7,520
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BoardReader Authority Badge code for HER2 Support Group Forums (http://her2support.org)
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Rating - The position measured by activity among all forum sites tracked by BoardReader.
If rating is 10 there are 9 forum sites which have higher activity.
Posts - Number of posts on forum site during last 7 days.
Threads - Number of threads on forum site active during last 7 days.
Authors - Number of authors which contributed to the site within last 7 days.
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HER2 Support Group Forums posting activity graph:
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Top authors on HER2 Support Group Forums during last week:
user's latest post:
Herceptin (Traztuzumab)
Published (2009-11-08 13:38:00)
This article is a description of how Herceptin works. Hopefully it is helping you. It says even if it doesn't stop your cancer 100%, it should be continued, maybe with the addition of Lapatinib (Tykerb) or other chemotherapies.
user's latest post:
Lani - Vaccine based on Smallpox
Published (2009-11-07 21:52:00)
No, Joe I am not from Scandinavia, but often travel there. Have been following Bavarian Nordic posts here for several years. I thought you might have posted this as during the last week or so I posted on treatment utilizing salmonella and measles and may have previously posted on treatments based on other infectious agents
user's latest post:
SAVI Breast Cancer Radiation...
Published (2009-11-07 02:22:00)
The SAVI? 6-1Mini breast brachytherapy applicator is the only brachytherapy solution for patients with small breasts, hard-to-reach lumpectomy cavities, or cavities close to the skin surface, according to a new study. Physicist and lead researcher Serban Morcovescu, MS, DABR, presented these findings on the 6-1Mini device at the recent annual conference of the American Society for Radiation Oncology (ASTRO). More...
user's latest post:
glad to find 'my people'!
Published (2009-11-07 22:39:00)
Welcome, Valerie. 'V' is for 'victory' - a strong spirit will ward off cancer, trust me! (It helps release Endorphin -> improve immune system - > keep cancer cell away...) Sorry about your husband and your pet. It's got to be hard on you. But 'Everyday is new...', you have found a big, caring family here. These 'sisters' (and a few 'brothers') will take care of you. Be sure to let us...
user's latest post:
We buried our beautiful Maine...
Published (2009-11-08 14:43:00)
Thanks Bonnie, I know many of us appreciated our pets more during our cancer treatments as I did Ellie, I had a bone scan and one suspicious area showed on the thoraic so the Dr wants to follow up with an mri just in case. Thanks
user's latest post:
future--maybe it might not be...
Published (2009-11-06 07:21:00)
Lani, This is very exciting. I hope the research progresses. Thanks for posting. Hopeful
user's latest post:
vickie h update - Page 2 - HER2...
Published (2009-11-06 13:57:00)
Dear Cap - I am still chanting that mantra - Vickie, Idaho, Vickie, Idaho. There is a topical cream that has helped a lot of women with skin mets called IMIQUIMOD. I learned about a trial that is using it with Abraxane here in Seattle at the Tumor Vaccine Group open house I attended last night. The doctor in charge says that those with expensive skin mets don't do as well, but that cream is used off label. Still the best results I have...
user's latest post:
Waiting on Trial, got Brain...
Published (2009-11-06 13:10:00)
I kinda wish I had an way to just burn it all from my mind. His Mormon beliefs disgust me to this day, (sorry to any Mormons I may have offended) and I feel like I will forever be the victim of my own lack of judgment. I find it hard to forgive myself for the man that I chose.
user's latest post:
Plz point me in the right...
Published (2009-11-07 08:36:00)
Hi, we are all here for you, please visit my story at www.caringbridge.org/visit/margierose , see my dr. phone #, I know you are far from Florida - my dr. fellowship at Moffit Cancer Center - its worth a call, mention my name - he may have some answers for you - I was on tax., herc., carb. as soon as they found it in my liver - i blinked my eye and thats how fast I was on my chemo. I fly to Seattle from Fl for vaccine. Go to...
user's latest post:
Hi all from Eric
Published (2009-11-08 13:49:00)
Hi Eric, Thanks for checking in. Keep doing what you're doing - trying keep yourself and your kids moving forward, one step at a time. That is what Caryn would have wanted for you. Be patient and gentle with yourself. Take care Chris
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Top 10 active forums on HER2 Support Group Forums during last week:
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Top 10 forums on HER2 Support Group Forums:
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Latest active threads on HER2 Support Group Forums:
Started 1 day, 16 hours ago (2009-11-08 11:46:00)
by Lien
Oh, Tricia, I'm so sorry. Pets are like family members and I know the anguish of a pet gone missing. It's just so sad that he hasn't come back alive. He must have had a wonderful life with you, because it's obvious you loved him dearly.
About the MRI: there's a good chance the suspicious area is something harmless.
I'm sending waves of calmness from the Netherlands Europe. The gather ...
Started 1 day, 17 hours ago (2009-11-08 10:34:00)
by WomanofSteel
Eric, so good to hear from you. I know it is hard, but I am glad that you
are all hanging in there. It does take time. My thoughts and prayers are
always with you and your family. It means a lot to know that you are
thinking of all of us when you are going through something so difficult.
God bless you. Jacquie
Started 3 days, 7 hours ago (2009-11-06 20:00:00)
by Laurel
Blind leading the blind here, Bill, but whenever I get an invite I do not have to give my email password, no. I just cannot get into the whole facebook, twitter jive and never answer anything or write on any walls. I just do not have the time. Everyone loves it, though so I guess it has its merits. Good luck!
Started 4 months, 2 weeks ago (2009-06-23 12:16:00)
by Rich66
Cannabinoids and cancer
1: Cancer Lett. 2009 May 11. [Epub ahead of print] Links
Cannabinoids in the treatment of cancer.
Alexander A , Smith PF , Rosengren RJ .
Department of Pharmacology and Toxicology, University of Otago, Dunedin 9001, New Zealand.
Cannabinoids, the active components of the hemp plant ...
Started 1 day, 14 hours ago (2009-11-08 13:28:00)
by cynthia1962
hello rich
in plan english what does this means. because I read the posting everyday day. This is what I am taking every three weeks does this trastuzumab leads to tumors. Because my mri states deep white matters due to early small vessel desease or chemotherapy. I am going to a neurologist on 11/19 because I am afraid I may have some type of tumor in my brain.
Started 6 months, 3 weeks ago (2009-04-16 18:38:00)
by eric
Since I've read about cancer stem cells I've felt that killing them is the
key to curing or managing the disease.
Started 2 days, 7 hours ago (2009-11-07 20:47:00)
by ElaineM
Welcome aboard. I am glad you found us.
I am sorry you and your family have had such a rough year.
I applaud you for being an informed patient. Keep learning as much as you can. It all helps you take better care of yourself.
Please feel free to visit anytime you feel like it.
Good luck with your treatment.
Started 3 days, 7 hours ago (2009-11-06 19:55:00)
by TSund
This is interesting. I have a friend that is trying to help a woman with osteoperosis in Kosovo and cannot afford the usual bone building drugs. I will foward to her.
THanks
TRS
Started 4 days, 15 hours ago (2009-11-05 12:23:00)
by Yorkiegirl
On my gosh yes my head was so sore when it was getting to the hair loss thing. With me it did seem to lessen after I shaved my head.
I also washed my bald head every day as if I still had hair.
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Hot threads for last week on HER2 Support Group Forums:
Started 1 week ago (2009-11-02 09:10:00)
by Ellie F
Hi
I just don't have the words to express how sorry I am that you are facing this difficulty after such a long struggle to get on a trial. I have read a lot about p53 but didn't know they could actually test to see if it was knocked out. I am aware that some people believe vaccines given to children in the late 50's and 60's has been linked to this problem.
Please try not to despair. From your...
Started 1 week ago (2009-11-02 17:37:00)
by Barbara H.
Congratulations, Steph!! You have been through a lot, but I'm so pleased that you are doing so well at this time.
Best,
Barbara H.
Started 3 days, 12 hours ago (2009-11-06 15:10:00)
by Brenda_D
Can you at least do the Herceptin and still do surgery?
Personally, if it were me, I'd do the chemo first.
Started 5 days, 11 hours ago (2009-11-04 16:33:00)
by Rich66
Started 6 days, 17 hours ago (2009-11-03 10:04:00)
by schoolteacher
Shelia,
After they go to San Antonio, will you please let them come to Georgia to visit me?
Amelia
Started 4 days, 15 hours ago (2009-11-05 12:23:00)
by Yorkiegirl
On my gosh yes my head was so sore when it was getting to the hair loss thing. With me it did seem to lessen after I shaved my head.
I also washed my bald head every day as if I still had hair.
Started 1 week, 2 days ago (2009-10-31 06:46:00)
by DanaRT
Mary Anne, I am happy you posted that you're beginning the Neratinib Trial. I am going to talk to my onco in January about it. Thanks to Sheila for helping me pronounce it correctly!
I will be following your progress, Mary Anne. I am anxious and excited for you. Give your sweet granddaughter a small squeeze, what a lucky girl she is to have you. 10 years old, I love that age.
Started 1 week ago (2009-11-02 10:49:00)
by tricia keegan
Rhonda, I just see my med onc once a year, surgeon once a year for mammo results and haven't seen my rad onc since a year after diagnosis when he agreed to allow my med onc to take over.
I think I remember hearing after five years it becomes less and less but am a few months behind you so not sure.
Started 5 days, 7 hours ago (2009-11-04 20:38:00)
by hutchibk
Can't read the article as I don't have access to Medscape... but just FYI, if it is used to justify treatment denials, Medicare will use it first to deny, and then private insurers will follow their lead. That is typically how it works.
I just learned that Medicare has been denying payment to my doctor for about 1/3 of the fractions he deems necessary to treat my brain mets with targeted IMRT ...
Started 1 week ago (2009-11-02 11:46:00)
by Cal-Gal
Yes--concur w/Tricia--what is a HER2 Blanket??
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