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HER2 Support Group Forums - her2support.org | Site profile
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Site profile page for http://her2support.org.
This report page has aggregated and summarized the online discussions from the Message Board located at http://her2support.org.
This site profile page outlines general site statistics such as: Users Activity, Site Activity, Site Rank, and Top Authors, which are reported in either a table or graph below for a given reporting time period.
Additional site profile information for http://her2support.org is also shown in the following divisions:
1) Top 10 Active Forums during Last Week
2) Top 10 Site Forums
3) Latest Active Threads
4) Hot Threads for Last Week
Warning: These statistics are generated using 'best efforts' and can experience delays and reporting errors at times. Please note that such statistics do not constitute a site's popularity and/or exact posting volumes at any given reporting period.
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Posting activity table on HER2 Support Group Forums:
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3 Months
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Threads:
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256
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829
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2,848
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Post:
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683
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2,256
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8,178
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Authority Badge:
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BoardReader Authority Badge code for HER2 Support Group Forums (http://her2support.org)
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Put this code anywhere on your forum page:
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Rating - The position measured by activity among all forum sites tracked by BoardReader.
If rating is 10 there are 9 forum sites which have higher activity.
Posts - Number of posts on forum site during last 7 days.
Threads - Number of threads on forum site active during last 7 days.
Authors - Number of authors which contributed to the site within last 7 days.
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HER2 Support Group Forums posting activity graph:
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http://her2support.org Alexa graph:
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Top authors on HER2 Support Group Forums during last week:
user's latest post:
Fewer, Larger Radiotherapy Doses...
Published (2010-02-08 10:12:00)
Women with breast cancer may benefit more from fewer, larger doses of radiotherapy. More...
user's latest post:
Gemzar
Published (2010-02-08 20:20:00)
Gemzar link HERE Scroll down to see some supplements that might help. What was the issue with Tykerb?
user's latest post:
Anyone with Vertigo
Published (2010-02-08 23:26:00)
Weety, Have you ever mentioned it to your oncologist? If you've had it while on chemo, there could be still some lingering effect even though you are now only on Herceptin. I think there's a thread called 'Herceptin side effect - real or perceived'. You can use the 'Search' field to look for it. When I was undergoing chemopause, I was so tired from the chemo/Herceptin treatment plus teaching full-time, I...
user's latest post:
2 year gamma-versary today
Published (2010-02-08 23:00:00)
Flori, It's just wonderful to hear such good news...we all need some of that right now. Ok...hang on it's time for the happy dance. Alright I'm back now...let me just say congratulations on your two yr gamma-versary! Brain mets is such a concern for us Her2's...so it gives us such hope hearing that you and Steph both had success with Gamma Knife. Wooo hooo. Go out and celebrate! Chelee
user's latest post:
Reconstruction
Published (2010-02-08 15:49:00)
I hope you feel better today. Take good care of yourself.
user's latest post:
HER2 Serum Test
Published (2010-02-08 13:41:00)
I wanted to let all of you know that the oncologist nurse called me Friday, and let me know that my HER2 level has gone from 22.3 to 16.7. I hope when I took my Herceptin the day of the blood test that the level went even lower. I started taking Salmon oil three days before the HER2 test. I will continue to take it until tomorrow. I have my lung biopsy on February the 16th. Could my vaccine have helped to lower my level or could it be the fish...
user's latest post:
Not sure what to title this
Published (2010-02-08 11:53:00)
I'm sorry you're missing this little guy so much Patricia, and there's no doubt the positive effect our pets have on us through cancer. Tricia x
user's latest post:
2 year gamma-versary today
Published (2010-02-08 10:51:00)
Thanks so much for posting this, Flori! I often think of you when fear for my children grips me and pray that I can be strong like you and other brave sisters in this group. Congratulations! May you be blessed with many many more years of good health! hugs, shobha
user's latest post:
Need help on posting
Published (2010-02-05 11:17:00)
Re: Need help on posting Gee, a rescue so quickly. You guys are great! ma __________________ MA in TX. Grateful for each and every day.... Diag. 12/05 at age 60 Stage II, Grade 3, 4.5 cm primary tumor ER/PR- Her2 +3 strongly positive Her2 by FISH 7.7 amplified vascular invasion Ki67 20% borderline Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew April '06 Rt Modified Radical Mas, 7 of 9 nodes positive April -...
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Top 10 active forums on HER2 Support Group Forums during last week:
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Top 10 forums on HER2 Support Group Forums:
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Latest active threads on HER2 Support Group Forums:
Started 1 day ago (2010-02-09 01:23:00)
by News
Amgen today announced that a pivotal, Phase 3, head-to-head trial evaluating denosumab versus Zometa® (zoledronic acid) in the treatment of bone metastases in 1,901 men with advanced prostate cancer met its primary and secondary endpoints.
More...
Started 1 day, 1 hour ago (2010-02-09 00:16:00)
by jackandrews
Hi Everyone,I'm not sure if "General Cancer News" is the right place to post this. I'm curious about all those ads I've seen promising I can make money online answering surveys. Has anyone done it and actualyl gotten paid? Thanks!
Started 2 years, 2 months ago (2007-11-22 21:38:00)
by Faith in Him
Has anyone experienced vertigo while on herceptin?
Just wondering.
Thanks
Started 1 day, 16 hours ago (2010-02-08 09:08:00)
by Flori
Good News...I had "no signs of metastatic disease" on my brain MRI from last weekend!
Today marks TWO years since my gamma-ramma zap.
Despite the weirdness of having a stabilizing halo -literally- screwed into my head, the fear surrounding a brain! met, this procedure still strikes me as such a miracle of modern medicine.
To arrive at the Gamma Center at 7 AM and be home by 11:00AM ...
Started 2 days, 2 hours ago (2010-02-07 23:39:00)
by Jean
early stage and wondering about their treatment choices and what decisions to make....
http://journals.lww.com/oncology-tim...Small__.1.a spx
Don't take a small tumor lightly!
Jean
Started 1 day, 12 hours ago (2010-02-08 13:41:00)
by schoolteacher
I wanted to let all of you know that the oncologist nurse called me Friday, and let me know that my HER2 level has gone from 22.3 to 16.7.
I hope when I took my Herceptin the day of the blood test that the level went even lower.
I started taking Salmon oil three days before the HER2 test. I will continue to take it until tomorrow. I have my lung biopsy on February the 16th.
Could my ...
Started 1 day, 8 hours ago (2010-02-08 17:44:00)
by Angela
My tumors are growing and spreading. I will be taking Gemzar starting next week. Has anyone been on this chemo drug before? If so, what kind of side effects did you experience? Any information you can provide would be most helpful.
Thanks!
Hugs and Smiles
Angela
Started 1 week, 6 days ago (2010-01-27 08:33:00)
by sunshine
Am new to this sight, so am just getting my feet wet. I've been dealing with bc since 2003, with mets in the lung, bone, lymph nodes and liver. They were all small and managable. I now have one at the base of my brain and I go into surgery tomorrow to remove it. My spirits have always been strong...but I am looking for any advice or a shared experience on this one. I also have questions dealing ...
Started 1 week, 2 days ago (2010-01-31 17:42:00)
by Sandra in GA
Hi Everyone,
After completing my Herceptin and lapatinib in Nov., I have been involved with what I am calling"repair work." Dec. 8th and 29th I had cataracts that grew because of the Decadron during the reg. chemo repaired. That went very well. Then, on Jan. 19th, they did a latissimus dorsi flap with expanders on the left side. At the time of my initial surgery, I opted for a double mastectomy ...
Started 1 day, 13 hours ago (2010-02-08 12:21:00)
by Emelie B
I just wanted to share the treatment plan my new onc. has suggested.
Back to Herceptin with Taxol instead of Taxotere.
On to Tykerb and Xeloda for maintainence once we get rid of these nodes in my chest area and clear up "crystals" in my lungs.
Getting PET scan on Wed. and start "H" on Thurs.
Getting brain MRI the following Mon.
After reading many posts this seems like a logical plan. I ...
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Hot threads for last week on HER2 Support Group Forums:
Started 1 week, 1 day ago (2010-02-01 17:00:00)
by chrisy
Dear friends,
This has been such a horrible couple of months with terrible losses...and despite feeling well I couldn't help but feel a sense of dread about my 4-month scans. I know we're all in serious need of some good news...
so I will share some.
I haven't seen the reports yet from my Pet/CT and Echo last week, but there was a message on my answering machine at home that used the ...
Started 6 days, 11 hours ago (2010-02-03 14:50:00)
by tricia keegan
Hi everyone,
I had my repeat mri today having waited two months after the last one and it's clear and negative
The suspicious spot they were watching has vanished, and as the earlier pet/ct was negative my onc is happy this is not cancer and I dont see her until December for my usual check up
Tricia xx
Started 1 week, 1 day ago (2010-02-01 12:53:00)
by Sheila
Just wanted you to know the update I posted...you all give me strength and hope! Thank you....
Re: Scanxiety Confirmed, Progression Shown
A quick update and thank you for all your support and information...the Avastin is approved, and I will begin tomorrow, so far no other agent. My muga last Thursday showed a major drop of 15 points, and now below 50....dont know if it was because I ...
Started 1 week, 1 day ago (2010-02-02 01:29:00)
by Chelee
Tricia, Wishing you a VERY HAPPY BIRTHDAY, with many more to come. You only get one per year so make the most of it. I hope you have a wonderful day with lots of chocolate cake included. Indulge...have MORE then one piece.
Enjoy!
Chelee
Started 1 week, 1 day ago (2010-02-01 07:13:00)
by RhondaH
When I was diagnosed with breast cancer 5 years ago today I found VERY little long term stories (until I found this wonderful site...thank you Joe and Christine) for people with my "similar" dx and have always maintained that even as we get further away from our dx and life becomes "more normal" we should STILL come back to HER2 Support every year and update our stats if ANYTHING but to give ...
Started 1 week, 2 days ago (2010-01-31 10:31:00)
by bejuce
Hi my HER2 family,
I have been a little overwhelmed reading all the stories
of recurrence and the emotional postings by those who lost their loved ones to this dreadful disease - MightyOak, Irene, Julierene, and many others.
I'm sitting here in my family room with my youngest - who's only 3 - and trying hard not to cry over the losses we've had on this board and over the fights that ...
Started 6 days, 6 hours ago (2010-02-03 19:26:00)
by Faith in Him
My scans look good according to my onc's message. He does want me to call back to review a couple of things.
I hope he wants to give me a chemo break.
I'm praying for those who need prayers and some good news too.
Tonya
Started 4 days, 4 hours ago (2010-02-05 21:40:00)
by Chelee
to change chemo combo or give it more time? I started on Herceptin/Zometa the last wk of Sept. but as most of you know couldn't add chemo until I had my femur surgery & recovered. But now it's been two months since we added the Navelbine and I see there is "only" a slight decrease in axilla area. The mild activity that was seen on liver is now gone ...so that's good. Also mentioned is ...
Started 1 day, 16 hours ago (2010-02-08 09:08:00)
by Flori
Good News...I had "no signs of metastatic disease" on my brain MRI from last weekend!
Today marks TWO years since my gamma-ramma zap.
Despite the weirdness of having a stabilizing halo -literally- screwed into my head, the fear surrounding a brain! met, this procedure still strikes me as such a miracle of modern medicine.
To arrive at the Gamma Center at 7 AM and be home by 11:00AM ...
Started 1 week ago (2010-02-02 07:22:00)
by Ellie F
I wondered if anyone was receiving this type of vaccine for metastatic breast cancer.
A patient at my centre is travelling to Alabama to get this. I understand it is not her 2 specific but works by targeting a protein found in large quantities in breast and other cancers.
My own oncologist is not optimistic about vaccines but I know there are others that feel this is a positive way forward as ...
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