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General Message Board for Ankylosing... - www.spondylitis.org | Site profile
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Site profile page for http://www.spondylitis.org.
This report page has aggregated and summarized the online discussions from the Message Board located at http://www.spondylitis.org.
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1) Top 10 Active Forums during Last Week
2) Top 10 Site Forums
3) Latest Active Threads
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Posting activity table on General Message Board for Ankylosing Spondylitis and Related Diseases :
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3 Months
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159
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612
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1,795
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Post:
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490
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2,049
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6,589
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Rating - The position measured by activity among all forum sites tracked by BoardReader.
If rating is 10 there are 9 forum sites which have higher activity.
Posts - Number of posts on forum site during last 7 days.
Threads - Number of threads on forum site active during last 7 days.
Authors - Number of authors which contributed to the site within last 7 days.
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General Message Board for Ankylosing Spondylitis and Related Diseases posting activity graph:
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http://www.spondylitis.org Alexa graph:
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Top authors on General Message Board for Ankylosing Spondylitis and Related Diseases during last week:
user's latest post:
Pain Relief... - Spondylitis...
Published (2009-11-10 19:28:00)
Let the Humira have a chance. It helped my pain immensely and it might do the same to you. If you have a pain dr, the rhuemy won't touch you..some concern about addicts and mixing drugs. good luck, hope you feel better soon. a
user's latest post:
spryder - Spondylitis...
Published (2009-11-10 14:29:36)
If your disappearance is my fault please PM me. I would rather leave the forums than have you leave.
user's latest post:
Getting H1N1 shot tomorrow -...
Published (2009-11-10 20:43:00)
I agree, and realize it could all be coincidence..but it does scare me. I hope it has nothing to do with the vaccine. They were seemingly a few isolated cases..and like you said, it is better to at least have a live mother than both mom and baby gone from the flu itself..the whole thing is scary and I wish it would just go away. Mrye, I am happy your family member is ok, as well as her baby.
user's latest post:
Article about TNFs, AS/PsA of...
Published (2009-11-10 17:46:00)
Well done again. Note their (Sharma, Choi, et al) conclusions: "Our observations are the first to implicate SPARC, SLPI, and NLRP2, a component of the innate immune system, in the pathogenesis of SpA." So it is another published paper showing new discoveries into the genetics and development of AS and related SpA.
user's latest post:
Getting H1N1 shot tomorrow -...
Published (2009-11-10 20:18:00)
I have someone in my family that got the shot and ended up at the hospital, made her horrible sick and could have lost heer baby. She is ok now, but it sure scared her.
user's latest post:
just diagnosed, - Spondylitis...
Published (2009-11-09 18:47:00)
"How long did it take for your spine to completely fuse?" I was diagnosed in 1985, but had symptoms going back to about 1980. I think I was completely fused by 1989, so it seemed fast, but was actually over the course of about ten years. "What medications are working for you?" Right now, I am on Remicade and Sulfasalazine. "Are these medications covered by insurance?" Yes, my insurance does cover them. "What...
user's latest post:
dumb and dumber - Spondylitis...
Published (2009-11-10 23:01:00)
http://au.news.yahoo.com/thewest/a/-/wa/6451351/alleged-robber-asks-to-be-sent-to-jail/ http://au.news.yahoo.com/thewest/a/-/offbeat/6451649/man-provides-photo-for-his-own-wanted-poster/
user's latest post:
Backdoor in top iPhone games...
Published (2009-11-10 04:48:00)
Hot on the heels of that; the worlds first iPhone worm. So far it seems to be contained within only Australia but that doesn't prevent other tech crooks taking it and reworking it; Quote: iPhone owners in Australia awoke this weekend to find their devices targeted by self-replicating attacks that display an image of 1980s heart throb Rick Astley that's not easily removed. The attacks, which researchers say are the...
user's latest post:
does anybody crack their.........
Published (2009-11-09 17:32:00)
Not me im not one of them that can even wiggle their ears without aid of a finger.
user's latest post:
Getting H1N1 shot tomorrow -...
Published (2009-11-10 10:49:24)
I believe Kelly said it all, and well, right here. We are all scared of this damn flu and wish it would go away. I could not agree more. Originally Posted By: KellyChristal I agree, and realize it could all be coincidence..but it does scare me. I hope it has nothing to do with the vaccine. They were seemingly a few isolated cases..and like you said, it is better to at least have a live mother than both mom and baby gone from the flu...
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Top 10 active forums on General Message Board for Ankylosing Spondylitis and Related Diseases during last week:
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Top 10 forums on General Message Board for Ankylosing Spondylitis and Related Diseases :
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Latest active threads on General Message Board for Ankylosing Spondylitis and Related Diseases :
Started 9 hours, 3 minutes ago (2009-11-11 18:31:00)
by Pigbaby
I will try and be brief. I am a 39 year old male. I was diagnosed with AS when I was 19 years old after suffering a swollen right knee for no apparent reason. Fluid was drained off the knee. No more problems...until three years ago. Mid 2006 I noticed a sharp pain from down the rear of my left leg. It felt as if there was a rope inside my leg and someone was attempting to pull it out from ...
Started 1 day, 16 hours ago (2009-11-10 10:49:24)
by spryder
I believe Kelly said it all, and well, right here. We are all scared of this damn flu and wish it would go away. I could not agree more. Originally Posted By: KellyChristal I agree, and realize it could all be coincidence..but it does scare me. I hope it has nothing to do with the vaccine. They were seemingly a few isolated cases..and like you said, it is better to at least have a live ...
Started 1 day, 14 hours ago (2009-11-10 13:22:00)
by anamac
Hello! My name is Ana I am 31 years old and newly diagnosed with possible AS. I started having symptoms a few months after the birth of my twins (who are now a year old) I have only had problems with my left ankle and my right knee. Saw a bunch of docs, went to physical therapy for my ankle, which is much better now, but have continued struggling with my knee since the summer. It is ...
Started 14 hours, 27 minutes ago (2009-11-11 13:07:00)
by mrye4709
I have night splints and berkinstock insoles. Roll a cold can or bottle of
soda on the floor with you feet. Mine was reallly bad and they are better
now, but they also get better with injections in my SI joints or S1 L5, not
sure which one does it. I was working on concrete all day and they are no
better not working. There are also stretches you can do, you can find them
online.
Started 17 hours, 53 minutes ago (2009-11-11 09:40:50)
by NWbrooktrout
for me its definatly the disease when i was unable to take my humira it got worse and worse and finally back on humira and its getting better. While off humira I lost a brick of cheddar cheese. couldnt find it but just thought "oh maybe its in the back of the fridge" I finally found it after 2 weeks...... on top of the fridge!!!!! I never put food on top of fridge. grrrrrr. And i bought a coffee ...
Started 8 hours, 39 minutes ago (2009-11-11 18:55:00)
by drizzit
I got to thinking about my family doc asking where I was on my TNF shot schedule before giving me my H1N1 shot today. He was a bit worried about if the shot would work I think. rheumy says to take it in middle of cycle. Since simponi is a once a month shot I was to take it two weeks after a shot and two weeks before the next. I told family doc I would wait two weeks before shooting up the ...
Started 11 months, 1 week ago (2008-12-05 13:31:00)
by reinke
my dad gave me his 1975 harley FLH. it is original condition. since i have
not worked since early march i decided to do a restoration on it. i am
keeping it original color. basically i am gonna make it look like it is
brand new.
Started 2 days, 13 hours ago (2009-11-09 14:21:00)
by Spenser23
Hi David. AS comes in many forms and levels of severity, so it's hard give a definitive answer as to what the future holds. Not everyone fuses completely, or becomes so disabled they can not work. And some do, of course. I have been completely fused, both neck and spine, for over 20 years, and I continue to work full-time. Did I have to make adjustments? Yes, of course. But Life is like that...
Started 1 day, 9 hours ago (2009-11-10 18:12:00)
by KellyChristal
umm... do it anyway. my lack of libido is more from the physical pain and fatigue than anything else. My husband has needs though..and I am not going to let it get in the way of our marriage.
Started 2 weeks, 3 days ago (2009-10-25 14:42:00)
by gramtam
Hi to everyone. I haven't been on the message board for months now. Obviously I should have been. Lately I have been feeling like I live this very boring and isolated life. I am now on Remicade,asacol,tramacet,zytram. For the most part I feel much better but the symptoms are all here but aleviated. It seems like by the time I get up,do some housework and maybe walk abit thats it for the day I am ...
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Hot threads for last week on General Message Board for Ankylosing Spondylitis and Related Diseases :
Started 6 days, 5 hours ago (2009-11-05 22:25:33)
by Banana
You will adapt. I only stand at the easel about 30-45 minutes and then take a break. I can't stand for hours either. You might want to ensure you aren't using bad chemicals, like turp. I spent many years being very careless about chemicals when I was in photography, dumb me. Cheap latex gloves should always near by so you can grab them if you need them. I don't use turp but the natural kind. ...
Started 1 day, 16 hours ago (2009-11-10 10:49:24)
by spryder
I believe Kelly said it all, and well, right here. We are all scared of this damn flu and wish it would go away. I could not agree more. Originally Posted By: KellyChristal I agree, and realize it could all be coincidence..but it does scare me. I hope it has nothing to do with the vaccine. They were seemingly a few isolated cases..and like you said, it is better to at least have a live ...
Started 1 week, 4 days ago (2009-10-31 11:54:35)
by Rach
Thanks for the interesting info, mrye I think that spondy IMITATES fibro, and that there is a lot of misdiagnosis as a result. This can have terrible consequences because of people being given the wrong or insufficient treatment. I was once told I had fibromyalgia, but humira and steroids help all my symptoms, sometimes making me pain-free. Steroids and ant-tnfs treat inflammatory conditions, ...
Started 1 week ago (2009-11-04 04:55:00)
by Banana
Euuu, is right. Only butter for me but.. If that is true, why are the pharma co's trying to prevent generics? Why are they spending millions in Congress trying to get even more years of "secret" recipe if true, safe generics weren't possible? I have been watching Congress (and Obama) deal with this issue and obviously the pharma co's don't want it to happen. Tells me it must be safe. Now, I ask...
Started 1 week ago (2009-11-04 08:17:00)
by Banana
Unfortunately, I have a lot of experience with rib pain. It is completely different depending on which ribs. Like I briefly had sternum pain and gosh, it felt like a heart attach. It at first did not feel like the sternum bone at all. It radiated from my heart area. Most of my problems are with my lower right ribs and it is a burning ache that gets worse if I wear woman "garments"- er, bra. Much...
Started 5 days, 5 hours ago (2009-11-06 22:25:00)
by Mark D
I basically agree with Jen, except that I would try out different NSAIDs
before going on to the biologics. MRI might help, but in most cases it
doesn't at this stage. I believe you have AS but it may take a while
(perhaps years) for it to show on x-rays. After damage is done! Pay close
attention to your CRP (any elevation is a sign of active inflammation).
Treat the symptoms including pain. A lot...
Started 4 days, 10 hours ago (2009-11-07 16:51:00)
by TennisAce
Well, my daughter had lots of enthesis issues. She has no clinical markers at all...nothing in any of her bloodwork now or ever. She was stiff in the morning, but didn't neccessarily feel better with exercise....given the level she was trying to execute. Her diagnosis was based on posiitve response to NSAIDS, but mostly she's been a posterchild for sulfa. She responded to sulfa within 6 weeks...
Started 2 days, 13 hours ago (2009-11-09 14:21:00)
by Spenser23
Hi David. AS comes in many forms and levels of severity, so it's hard give a definitive answer as to what the future holds. Not everyone fuses completely, or becomes so disabled they can not work. And some do, of course. I have been completely fused, both neck and spine, for over 20 years, and I continue to work full-time. Did I have to make adjustments? Yes, of course. But Life is like that...
Started 1 week ago (2009-11-04 04:35:00)
by nisey
Ashiegirl, I am not your age. I am 39. I just want you to know that you are not alone! I began experiencing symptoms at your age but went undiagnosed until I was 37. Don't give up on finding a treatment that works. I take Enbrel and it seems to help some. Talk to your doc and tell them how you are feeling. Don't give up! Blessings, Nisey
Started 4 days, 13 hours ago (2009-11-07 13:36:00)
by JenInCincy
Happy happy birthday - hope you got to do just what you wanted
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General Message Board for Ankylosing Spondylitis and Related Diseases
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