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General Message Board for Ankylosing... - www.spondylitis.org | Site profile
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Site profile page for http://www.spondylitis.org.
This report page has aggregated and summarized the online discussions from the Message Board located at http://www.spondylitis.org.
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1) Top 10 Active Forums during Last Week
2) Top 10 Site Forums
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Posting activity table on General Message Board for Ankylosing Spondylitis and Related Diseases :
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Month
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3 Months
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Threads:
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142
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552
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1,760
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Post:
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446
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1,631
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6,433
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Rating - The position measured by activity among all forum sites tracked by BoardReader.
If rating is 10 there are 9 forum sites which have higher activity.
Posts - Number of posts on forum site during last 7 days.
Threads - Number of threads on forum site active during last 7 days.
Authors - Number of authors which contributed to the site within last 7 days.
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General Message Board for Ankylosing Spondylitis and Related Diseases posting activity graph:
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http://www.spondylitis.org Alexa graph:
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Top authors on General Message Board for Ankylosing Spondylitis and Related Diseases during last week:
user's latest post:
IBD serologies in AS patients: a...
Published (2009-11-24 19:34:00)
Interesting - not surprising since it works the other way as well (inflammatory arthritis occurs in Crohn's Disease)
user's latest post:
Be Prepared! - Spondylitis...
Published (2009-11-25 17:30:00)
We should at least blame the junkies a little bit, right? The odds are they see many more junkies then people like us. She should have had a wallet insert or something about the MS. I got a bracelet but don't wear it much. I mention steriods too. In my wallet, I keep it updated because the meds change so often. They should know if you are on TNFs, any immune surpressants, NSIADs (bleeding) and steriods along with the disease. Anna
user's latest post:
confused why would i need a...
Published (2009-11-25 11:50:00)
I dont know the answer...my question is if I have a bracelet, will er physicians even know what AS is, or how to treat me differently from a normal patient?
user's latest post:
What Happened to Simponi? -...
Published (2009-11-20 06:10:00)
MTX - sounds dangerous and many medical papers say there is no proof it helps AS. Why risk the severe side effects of MTX when there is no link between AS and MTX working?
user's latest post:
Dr. suggested adapting to AS.......
Published (2009-11-25 12:10:00)
I certainly didn't mean to imply that it was only in Houston. I actually am very thankful to have the Houston medical center in my backyard! I've had several problems that I would've had to see a doctor out of state to take care of if I didn't live in this fabulous city! I've lived in Houston almost my entire life. I spent 3 years of my adult life in south louisiana. That is where my son's father is from and where...
user's latest post:
Went to the dr and more confused...
Published (2009-11-24 19:57:00)
you need vit D as well as calcium to make bone, most people make enough vit D from being in the sun but people with autoimmune diseases often have low vit D heard of rickets? that was because of low vit D low bone density is also common with AS, that's why we're more prone to spinal fractures, a number of people on the list have medic alert bracelets in case of an accident have you watched the first responders training video?
user's latest post:
Be Prepared! - Spondylitis...
Published (2009-11-25 10:41:00)
I have a friend with MS. She did not have a bracelet or anything and went into the ER with Ear pain. She had a burst ear drum but was accused of poking her ear with a pencil then told she came in to the ER just for the pain meds because she was a drug addict! I called the Hospital and told them what happened and voiched for my friend and also spoke to the ER desk. My friend did not have a bracelet or anything to let people know that she had...
user's latest post:
NEED HELP PLEASE!!!! -...
Published (2009-11-25 17:28:00)
sounds like its time for a pain management doc.
user's latest post:
fatigue - Spondylitis...
Published (2009-11-25 07:09:00)
THat's me! My son keeps bugging me saying I need to move around and get some exercise b/c it helps. (we think he has AS and he finds he gets really stiff if he sits around too much) But dang - the fatigue is doing me in! I'm lucky if I can do the minimal around the house w/out feel like I've been hit by a mack truck (energy wise). UGH!
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Top 10 active forums on General Message Board for Ankylosing Spondylitis and Related Diseases during last week:
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Top 10 forums on General Message Board for Ankylosing Spondylitis and Related Diseases :
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Latest active threads on General Message Board for Ankylosing Spondylitis and Related Diseases :
Started 3 weeks, 1 day ago (2009-11-05 22:25:33)
by Banana
You will adapt. I only stand at the easel about 30-45 minutes and then take a break. I can't stand for hours either. You might want to ensure you aren't using bad chemicals, like turp. I spent many years being very careless about chemicals when I was in photography, dumb me. Cheap latex gloves should always near by so you can grab them if you need them. I don't use turp but the natural kind. ...
Started 3 days, 8 hours ago (2009-11-25 11:50:00)
by KellyChristal
I dont know the answer...my question is if I have a bracelet, will er
physicians even know what AS is, or how to treat me differently from a
normal patient?
Started 2 days, 23 hours ago (2009-11-25 20:49:52)
by DJS
Im sorry to hear that cookie. I wish you and your family well during this
tough time
Started 3 days, 9 hours ago (2009-11-25 11:09:00)
by KellyChristal
This is so sad. I hate the treatment we get because of the pain we live with. I want to know what happened to compassion? Doctors take an oath to help those that are hurt..but they end up hurting us worse in the end. I had my own sister tell me yesterday that she didnt believe anything was wrong with me and I was just a hypochondriac. Hmm...wish that was really true. If only I could hand my...
Started 3 days, 9 hours ago (2009-11-25 11:32:00)
by mcda
OK so let's talk about a quack...my rummy's office just called to let me know that she would not give me enbrel b/c she was waiting for an mri of the c-spine to come (this was done 5yrs ago)she has also had me do several mri's since the one she is waiting for and every one of them showed more damage and fusing now she needs to prove that I have AS I was dx in 2002/2003 and am hla-b27 pos she has ...
Started 1 week, 2 days ago (2009-11-19 12:34:00)
by JHallOhio
I decided not to get it against the advice of my GP. H1N1 scares the
bah-jesus out of me but I am equally as scared by a vaccine that has been
mass produced over such a short period of time. Especially with minimal
testing prior to inocculating the masses...I don't know what to think
anymore.
Started 4 days, 4 hours ago (2009-11-24 16:32:17)
by kera4
Dear Amanda, Oh, how totally frustrating! I hate it when docs completely waste my time like that. It sounds like your original rheumy is the best for treatment options. At the very least you know what options are out there-and which doc you don't want:) Maybe your first rheumy can switch TNF blockers? I got to the point where Enbrel wasn't working well a few years ago and when I switched to ...
Started 2 months, 2 weeks ago (2009-09-14 12:12:00)
by catwoman
Hi, Judy!! I love animals!! I have kitties and grew up with cats and dogs, and, at 16, friends gave me a horse that they kept for me. Why not go riding once and see how it feels for you?? I say do not give up on it!!
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Hot threads for last week on General Message Board for Ankylosing Spondylitis and Related Diseases :
Started 1 week, 1 day ago (2009-11-19 20:59:00)
by jewelz
smcca Did you take methotrexate with your TNFs?
Started 1 week, 1 day ago (2009-11-20 07:19:00)
by mrye4709
LOL, been there. It is funny we feel the need to post or send email while
in that condition. Your post is fine though, let us know if the new med
works.
Started 1 week, 1 day ago (2009-11-19 22:04:00)
by smcca945
Started 1 week, 2 days ago (2009-11-19 10:17:00)
by CindyLou
I tried it without success. I was on it for three months and it actually made me feel worse. I felt more pain and nausea and the fatigue was terrible. Glad I got off of it!
Started 1 week, 2 days ago (2009-11-19 12:34:00)
by JHallOhio
I decided not to get it against the advice of my GP. H1N1 scares the
bah-jesus out of me but I am equally as scared by a vaccine that has been
mass produced over such a short period of time. Especially with minimal
testing prior to inocculating the masses...I don't know what to think
anymore.
Started 1 year, 7 months ago (2008-04-04 19:54:00)
by jonathon
Started 1 week, 2 days ago (2009-11-19 08:08:00)
by lilbluesmurf
I really don't have your answer. I do know the twitches all too well. I
have noticed when I'm worn down and extremely fatigued I will have them
constantly at rest. AS thing? I haven't had the nerve to bring it up with
docs, I have enough going on right now, the last thing I want to hear is I
need to see yet another specialist.
Started 2 weeks, 3 days ago (2009-11-11 10:25:00)
by Jean Angel
I think you can have AS without the genetic marker. Fibro is common with autoimmune diseases-I have it and touch pain is there. Neurontin helps me with that. Glad the Naproxen is helping. Stress can make symptoms worse. Try to be as active as you can. Swimming is wonderful. There are many posts with symptoms. Mine are pain everywhere! Eyes can be effected-pain. Colon trouble is common....
Started 5 days, 2 hours ago (2009-11-23 18:02:00)
by TraceyH
Hi David, I'm so, so sorry to hear about your pain and anguish. It's so very hard sometimes with pain and depression - I can totally relate. Sometimes our minds can take us to dark places, but there's always, always support and so much to live for, even if we're in pain. Fear is our greatest enemy. Remember to breathe and get help if you need it. You're in a good place here. For me, I hurt ...
Started 4 days, 4 hours ago (2009-11-24 16:32:17)
by kera4
Dear Amanda, Oh, how totally frustrating! I hate it when docs completely waste my time like that. It sounds like your original rheumy is the best for treatment options. At the very least you know what options are out there-and which doc you don't want:) Maybe your first rheumy can switch TNF blockers? I got to the point where Enbrel wasn't working well a few years ago and when I switched to ...
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General Message Board for Ankylosing Spondylitis and Related Diseases
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