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Epilepsy Forum - www.coping-with-epilepsy.com | Site profile
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Posting activity table on Epilepsy Forum:
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3 Months
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2,282
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7,765
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Rating - The position measured by activity among all forum sites tracked by BoardReader.
If rating is 10 there are 9 forum sites which have higher activity.
Posts - Number of posts on forum site during last 7 days.
Threads - Number of threads on forum site active during last 7 days.
Authors - Number of authors which contributed to the site within last 7 days.
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Epilepsy Forum posting activity graph:
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http://www.coping-with-epilepsy.com Alexa graph:
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Top authors on Epilepsy Forum during last week:
user's latest post:
H1N1 Nasal Vaccine Anyone had it?
Published (2009-11-29 16:37:00)
typically get that lucky when I get shots, Ruth. I struggle to keep my immune system up, and that's with a LOT of vitamins........my body has become deficient in quite a few of them because of one of my health issues. So, I won't take the flu shots and create more stress on my body than there already is.....LOL. I know it sounds odd, but that's the way it has to be.
user's latest post:
Hello all!
Published (2009-11-29 22:52:00)
Hi Pipsee, welcome to CWE! We have a few other members from Down Under, and folks from all over the world have found this to be a great place for support and information. There are other parents of children with epilepsy on the site, and I'm sure they'll chime in soon. Below is a link that has formatting instructions for posting, including a way to link to video. http://www.coping-with-epilepsy.com/....php?do=bbcode Best, Nakamova
user's latest post:
Tiger Woods, seizures?
Published (2009-11-29 14:57:00)
Originally Posted by Meetz1064 : believe that he has to answer any questions that the police put forth--but that's it. Nope. He doesn't have to tell the police or media anything. It's none of our business really.
user's latest post:
Epilepsy, anxiety and depression...
Published (2009-11-29 19:27:00)
Something happened to me today that has really put me in a deep depression. I do not want to go into it. That will only make me feel worse.
user's latest post:
Nocturnal Seizures and grinding...
Published (2009-11-29 11:21:00)
Originally Posted by Meetz1064 : the electrographic seizures are simply the brain seizing all night, with no physical manifestations at all, Meetz, I don't know if this is the same but it reminds me of when I was in the hospital doing my EEG and my neurologist came in Friday and said, "You will definitely not make it though the weekend without seizing since there's a lot of activity. So be careful of your surroundings and...
user's latest post:
Painting with cats - Page 2 -...
Published (2009-11-29 11:51:00)
Originally Posted by Chatter-box : Can a poodle slide in here or is it all for cats? My poodle, Puddles, (the name says it all!) has been a prolific pee-er. I never thought she'd be house-broken. I was looking on Ebay to buy her a catheter. But now she goes outside. There's hope for us all. Of course you can slide a poodle in! All pets are welcome in the pet bemusement thread Yay for puddles making it outside!
user's latest post:
Memory problems!!!!!!!
Published (2009-11-29 15:32:00)
I look forward to hearing how it goes
user's latest post:
Telling Others about your...
Published (2009-11-27 16:55:00)
I phoned my mum one night, in tears. Chad wasnt home and I was feeling really really seizureish. I told her I didnt feel good, and thought i was going to have a seizure.She told me to calm down in a harsher oice, and said it can't be that bad. you had them before. I was so mad at her for thinking that its something you get used to doing. especially seeing as I only told her about teh grand mals after i landed in the hospital. which was...
user's latest post:
!@#$% I had another one!!!
Published (2009-11-29 19:42:00)
really sorry to hear about your setback. I hope you begin to feel yourself again soon.
user's latest post:
Vitamin D
Published (2009-11-29 12:43:00)
Any vitamin pills I've tried to take have interfered with my diabetes. My glucose level skyrockets every time I try to take any type of vitamins, and sometimes, the same happens with certain medications. So I try to get my vitamin D from the sun, here in Colorado in the winter time enjoying time in the snow and in the summer sun.
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Top 10 active forums on Epilepsy Forum during last week:
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Top 10 forums on Epilepsy Forum:
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Latest active threads on Epilepsy Forum:
Started 1 day, 9 hours ago (2009-11-29 20:08:00)
by Pipsee
Oh I forgot to add that I am looking out for anyone who has seen or heard of or has this kind of seizure - it's like brain hiccups sort of! I have heaps of video of her having them that I had to take for the Neurologist and was wondering if I should up load them a post a link - they aren't disturbing at all and she can't hurt herself when she has them - most of the time she just keeps doing ...
Started 4 days, 13 hours ago (2009-11-26 16:11:00)
by TempusFugit
Hey there tecknojoe - and firstly, welcome to CWE
Having epilepsy should not mean that you can't live and enjoy an independent lifestyle. That said, it really does depend on what type of seizures your girlfriend has and whether they are suitably under control.
Off the top of my head, I would recommend a 'call in' system - for example, she (or yourself) agree to call at certain times of ...
Started 1 week, 3 days ago (2009-11-20 21:03:00)
by Rae1889
hmm, it could be an "aura" type seizure.
Started 1 day, 8 hours ago (2009-11-29 21:28:00)
by IslandLiz
Originally Posted by jldavidson321 :
Can I ask about the type of seizure / epilepsy you have? I'm on Topamax and I think the doc likes it because it also is an AMPA / Kainate receptor antagonist, and I think it's the only drug on the market other than Felbamate that does that. But it messes with my mood. I have left temporal lobe seizures... Wondering if that is the ...
Started 2 days, 2 hours ago (2009-11-29 03:07:00)
by epileric
So sorry to hear about what happened. I know how other people can make things so much harder with their ignorance of the situation.
Started 1 day, 15 hours ago (2009-11-29 14:46:00)
by Meetz1064
been my experience. For me, that usually occurs with the supplements that I'm taking, or a possible UTI. If it's darker than what I normally have with the supplements for no reason at all, I start drinking unsweetened cranberry juice.... things usually clear up to where they're supposed to be, no matter what the reason was.
Started 3 weeks ago (2009-11-09 12:29:00)
by CathyAnn31
Thanks for this post. The past week I have been hit hard from severe depression. I cant sleep, I cant keep anything down when I eat, i am shaky, and i just want to be left alone and lay in my bed and cry. My family can't figure out whats wrong with me. I've lost 3 pounds in the last 4 days.
I am so close to snapping and should probably be in treatment somewhere. But the thought of that ...
Started 4 days, 16 hours ago (2009-11-26 13:11:00)
by Loopy Lou
I have problems with memory at the moment. I had to ask my mum how to spell "Arm" earlier, because i couldn't remember which way it was supposed to go! So much for being a lover of literature and doing really well at school (ok, most of the time haha... Wait, maybe some of the time )
At work, i forget about paperwork a lot of the time. My boss knows about it, and it makes me feel 10 times ...
Started 1 week, 6 days ago (2009-11-17 19:34:00)
by epileric
Funny you should ask just as the news reports on the side-effects in Canada. http://www. ctv.ca/servlet/ArticleNew...b=TopStorie sV2
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Hot threads for last week on Epilepsy Forum:
Started 1 month, 2 weeks ago (2009-10-12 11:09:00)
by Ruth
Hi compcoll, I am sorry to meet you under such trying circumstances. This forum was made out of love by Bernard for his wife Stacy.
It is not the purpose of this forum or any Epilepsy Support group to say that something is a cureall. We talk about things that are related to epilepsy.
Some things here work for some and not for others. I am glad you got an attorney. It sounds like she ...
Started 6 days, 20 hours ago (2009-11-24 09:55:00)
by bernard
I think they do these for everyone who is being evaluated for brain surgery.
Started 4 days, 16 hours ago (2009-11-26 13:11:00)
by Loopy Lou
I have problems with memory at the moment. I had to ask my mum how to spell "Arm" earlier, because i couldn't remember which way it was supposed to go! So much for being a lover of literature and doing really well at school (ok, most of the time haha... Wait, maybe some of the time )
At work, i forget about paperwork a lot of the time. My boss knows about it, and it makes me feel 10 times ...
Started 1 week ago (2009-11-24 02:49:00)
by epileric
I used to have friends that would tell me that if it is Karma, then you should be happy that your bad karma is being worked through.
Good luck, Let us know how it goes tomorrow.
Started 4 days, 13 hours ago (2009-11-26 16:11:00)
by TempusFugit
Hey there tecknojoe - and firstly, welcome to CWE
Having epilepsy should not mean that you can't live and enjoy an independent lifestyle. That said, it really does depend on what type of seizures your girlfriend has and whether they are suitably under control.
Off the top of my head, I would recommend a 'call in' system - for example, she (or yourself) agree to call at certain times of ...
Started 1 week, 4 days ago (2009-11-19 11:49:00)
by CathyAnn31
Hmmm, whatever floats your boat I guess.
I would think seeing something like this would only terrify her audience instead of educating them. Then again I wonder how many would show up to watch... Doesn't sound like something I'd schedule my day to go see.
I kind of hope she doesn't have a seizure during that time so she looks like a big ol "insert word here".
Started 1 week, 4 days ago (2009-11-19 23:39:00)
by Nakamova
Well, I'm glad you figured it out! It's a bit of a curse that you have to remember which pill to take when. And the pill makes your memory worse...
Started 6 days, 6 hours ago (2009-11-24 23:45:00)
by epileric
We got a hero here at CWE.
Good going Vapour.
Started 6 days, 15 hours ago (2009-11-24 14:19:00)
by TempusFugit
Aww Ruth Please get well soon. *hugs*
Looks as if you doctor is on the ball re: the CT scan but 3500mg of Keppra is a slightly high dose (recommended amount is 3000mg?).
Plenty of rest is in order young lady... switch of the PC for now and relax.
Started 5 days, 14 hours ago (2009-11-25 15:21:00)
by occb
Yeesh! Your last week sounds like the script of a farce. I can't imagine how stressed you must be -- reducing it is easier said than done.
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