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CyberKnife® Patient Support Group - www.cyberknifesupport.org | Site profile

Site profile page for http://www.cyberknifesupport.org. This report page has aggregated and summarized the online discussions from the Message Board located at http://www.cyberknifesupport.org. This site profile page outlines general site statistics such as: Users Activity, Site Activity, Site Rank, and Top Authors, which are reported in either a table or graph below for a given reporting time period. Additional site profile information for http://www.cyberknifesupport.org is also shown in the following divisions:

1) Top 10 Active Forums during Last Week
2) Top 10 Site Forums
3) Latest Active Threads
4) Hot Threads for Last Week

Warning: These statistics are generated using 'best efforts' and can experience delays and reporting errors at times. Please note that such statistics do not constitute a site's popularity and/or exact posting volumes at any given reporting period.

Title: CyberKnife® Patient Support Group - http://www.cyberknifesupport.org CyberKnife® Patient Support Group
Url: http://www.cyberknifesupport.org
Users activity: 2 posts per thread
site activity: 4 active threads during last week
Site rank: 41,705 (go to rank page)
Domain info for: cyberknifesupport.org
 

Posting activity table on CyberKnife® Patient Support Group:

  Week Month 3 Months
Threads: 4 19 125
Post: 6 30 265
 

Authority Badge:

CyberKnife® Patient Support Group | Forum Authority Badge

CyberKnife® Patient Support Group posting activity graph:

Posts by:  day  week  month 
 

http://www.cyberknifesupport.org Alexa graph:

Top authors on CyberKnife® Patient Support Group during last week:

Name
Posts
tualatinavm
3
user's latest post:
Is there hearing and peripheral...
Published (2009-11-29 08:09:00)
Dear Dr. Medbery III: I live in the Portland, OR area, and Stanford is no longer on my insurance. Having a sit down with Dr. Chang is not quite possible. I was prepared for brain swelling, headaches, for side effects after CK, but I do not remember any other discussions of other side effects. I was hoping this site might provide more experiences or a list of other side effects from ck on the brain. I heard from a lady this morning and she had...
radsrus
2
user's latest post:
Is there hearing and peripheral...
Published (2009-11-29 11:15:00)
But Dr. Chang is the one who knows what you had and what was done. THe side effects are not generic. They depend heavily on the size, location, and shape of the AVM as well as the method of treatment. I know DR. Chang well enough to know that his not getting paid is not going to preclude his giving you his best opinion. That is why I suggested talking with him. At the time of the above response, I did no know where you were treated nor by...
 

Top 10 active forums on CyberKnife® Patient Support Group during last week:

AVM - 5 new posts AVM - forum profile
 

Top 10 forums on CyberKnife® Patient Support Group:

General Questions - 2,621 posts General Questions - forum profile
Lung - 2,039 posts Lung - forum profile
Patient Support - 1,900 posts Patient Support - forum profile
Others - 830 posts Others - forum profile
AVM - 353 posts AVM - forum profile
Kidney - 214 posts Kidney - forum profile

Latest active threads on CyberKnife® Patient Support Group:

CyberKnife® Patient Support Group
Started 1 year ago (2008-11-28 05:27:00)  by radsrus
It is really not possible to comment with any degree of confidence because we don't know enough about your AVM and its treatment. It sounds like it was probably pretty large. That increases the risk of radiation damage and decreases somewhat the chance of control with radiosurgery. You should have a sit-down with your CK team and see what they say.
Forum:  AVM AVM - forum profile
Thread:  Show this thread (8 posts) Thread info: Is there hearing and peripheral vision loss from cyberknife or avm andcyberknife? Size: 599 bytes
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CyberKnife® Patient Support Group
Started 2 years, 5 months ago (2007-06-26 15:47:00)  by radsrus
These are uncommon problems. Stanford has the most experience, and in fact we had a recent case that we sent there. It is a potentially dangerous place to treat, but treatment may be safer than leaving it alone. If I were you, I would get the CT and/or MRI images and send them to Stanford. You can find their contact information at http://www.accuray.com/SiteLocations/index.aspx. I can't ...
Forum:  AVM AVM - forum profile
Thread:  Show this thread (5 posts) Thread info: AVM - Abnormal tangle of vessels C3 C4 spinal cord level Size: 689 bytes
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CyberKnife® Patient Support Group
Started 2 years ago (2007-11-14 19:37:00)  by radsrus
Sept 08 is probably good. Most obliterate by two years, although some take longer.
Forum:  AVM AVM - forum profile
Thread:  Show this thread (10 posts) Thread info: 14 months post CK treatment Size: 331 bytes
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CyberKnife® Patient Support Group
Started 2 weeks, 4 days ago (2009-11-13 14:26:00)  by katieleen
Hi, my name is Kathleen Longos and I have nf 2. I was diagnosed with billateral acoustic neuromas years ago that have only been monitered up till now. I fell like my symptoms have slightly worsened and I am looking for treatment. I am only 22 and am not ready to give up my ability to hear. I am a music major and cant see meaning in a life without my passion. If there is anyone who has recieved ...
Forum:  Patient Support Patient Support - forum profile
Thread:  Show this thread (2 posts) Thread info: acoustic neuromas associated with neurofibromatosis 2 Size: 567 bytes
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CyberKnife® Patient Support Group
Started 1 year ago (2008-11-11 10:42:00)  by davebiol
I recently received cyberknife 20 gy given as four fractions to 75% isodose. Is this a high enough dose to cure naso pharangeal cancer? Regards Dave Back to Top
Forum:  General Questions General Questions - forum profile
Thread:  Show this thread (3 posts) Thread info: Increased dizziness after CK Size: 543 bytes
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CyberKnife® Patient Support Group
Started 1 year ago (2008-11-09 22:43:00)  by Jerome J. Spunberg, M.D.
Prognosis for control of these small lesions is excellent. however a fiducial marker (gold seed) will need to be placed in or near each or most of these lesions for tracking purposes. I do not think that CK will alter the natural course of the disease, but may delay future symptoms or problems. There are probably numerous others just below the radar, too small to visualize as of yet.
Forum:  Kidney Kidney - forum profile
Thread:  Show this thread (8 posts) Thread info: stage IV renal cell with lung metastases Size: 637 bytes
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CyberKnife® Patient Support Group
Started 3 weeks, 1 day ago (2009-11-09 07:15:00)  by jimisoc
49 year old male general ealth Excellent Jan 2006 pathological fracture of femur Diagnosis to be osteosarcoma. Test found Cancer was contained to femur. First noticed discomfort in femur May 2005 while running. Feb 2006 - May 2006 Chemo. May 2006 Leg amputeed. Continued with three more rounds of Chemo had to stop treatment do to complications with Kidneys. Jan 2007 CT scan revealed a nodule ...
Forum:  Lung Lung - forum profile
Thread:  Show this thread (2 posts) Thread info: repeat CK lung Size: 1,543 bytes
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CyberKnife® Patient Support Group
Started 3 weeks, 1 day ago (2009-11-09 06:35:00)  by mlanie
My 7x6mm acoustic neuroma diagnosed in late dec,2007 showed no growth in MRI taken in may,2008. Next MRI I plan on scheduling in december. I attended an AN miniconference two weeks ago in New Jersey reaffirmimg my decision to wait and watch unless new symptoms appear,(only some hearing loss on left side now), or if MRI monitoring shows a steady growth rate. In those cases, I was advised to have ...
Forum:  Others Others - forum profile
Thread:  Show this thread (2 posts) Thread info: Uterine fibroids Size: 763 bytes
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CyberKnife® Patient Support Group
Started 1 year ago (2008-11-08 03:18:00)  by radsrus
I don't think that there is anything that is curative that can be offered. It is not that no one cares, and it is likely not a question of insurance. We treat about 15% of our patients with no hope of ever getting paid, and most doctors do the same. It is just that sometimes we do not have the answers that people want. I understand your anguish, and wish we could help. But I don't think CK...
Forum:  Kidney Kidney - forum profile
Thread:  Show this thread (6 posts) Thread info: Kidney cancer.... Size: 878 bytes
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CyberKnife® Patient Support Group
Started 1 month ago (2009-10-30 10:06:00)  by Jessi
I had one month ago Cyberknife radiation.My next follow up is in March.I can do this one still in Munich,but we're going to the states after that.We don't know yet where the Military is sending us.I need 3 Tesla MRT according to the Munich Cyberknife place.I called at Walter Reed and there is no 3 Tesla MRT there or at the other clinics working with the military.Do you have any clue if the ...
Forum:  AVM AVM - forum profile
Thread:  Show this thread (4 posts) Thread info: Follow up's after CK treatment Size: 987 bytes
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Hot threads for last week on CyberKnife® Patient Support Group:

AVM
Started 1 year ago (2008-11-28 05:27:00)  by radsrus
It is really not possible to comment with any degree of confidence because we don't know enough about your AVM and its treatment. It sounds like it was probably pretty large. That increases the risk of radiation damage and decreases somewhat the chance of control with radiosurgery. You should have a sit-down with your CK team and see what they say.
Forum:  AVM AVM - forum profile
Thread:  Show this thread (8 posts) Thread info: Is there hearing and peripheral vision loss from cyberknife or avm andcyberknife? Size: 599 bytes
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Customize:  Customize "RE: Is there hearing and peripheral vision loss from cyberknife or avm andcyberknife? :: AVM :: CyberKnife® Patient Support Group"
AVM
Started 2 years, 5 months ago (2007-06-26 15:47:00)  by radsrus
These are uncommon problems. Stanford has the most experience, and in fact we had a recent case that we sent there. It is a potentially dangerous place to treat, but treatment may be safer than leaving it alone. If I were you, I would get the CT and/or MRI images and send them to Stanford. You can find their contact information at http://www.accuray.com/SiteLocations/index.aspx. I can't ...
Forum:  AVM AVM - forum profile
Thread:  Show this thread (5 posts) Thread info: AVM - Abnormal tangle of vessels C3 C4 spinal cord level Size: 689 bytes
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Customize:  Customize "RE: AVM - Abnormal tangle of vessels C3 C4 spinal cord level :: AVM :: CyberKnife® Patient Support Group"

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