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Multiple Sclerosis: Support Group | Forum profile
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Forum profile page for Multiple Sclerosis: Support Group on http://www.webmd.com.
This report page is the aggregated overview from a single forum: Multiple Sclerosis: Support Group, located on the Message Board at http://www.webmd.com.
This forum profile page summarizes the general forum statistics such as: Users Activity, Forum Activity, and Top Authors, which are reported in either a table or graph below for a given reporting time period.
Additional forum profile information for "Multiple Sclerosis: Support Group" on the Message Board at http://www.webmd.com is also shown in the following ways:
1) Latest Active Threads
2) Hot Threads for Last Week
Warning: These statistics are generated using 'best efforts' and can experience delays and reporting errors at times. Please note that such statistics do not constitute a forum's popularity and/or exact posting volumes at any given reporting period.
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Posting activity on Multiple Sclerosis: Support Group:
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Week
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Month
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3 Months
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Threads:
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93
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359
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1,098
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Post:
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229
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988
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3,079
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Multiple Sclerosis: Support Group Posting activity graph:
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Top authors during last week:
user's latest post:
Journal of Neurology statement...
Published (2009-12-05 16:28:23)
Replying to: Journal of Neurology statement on Arlene, Multiple Sclerosis is on the list of qualifying diseases for medical marijuana in my neck of the woods, too. Here in Michigan, it has become legal, but the process is complicated and expensive, and does not allow officials to recommend a source for the drug. We do need a script from our doctor, but then we must have that approval sent to a state certification center and pay a $200...
user's latest post:
Newly Diagnosed, Any Tips? -...
Published (2009-12-05 16:18:50)
Replying to: Newly Diagnosed, Any Tips? Hello Bridget, Let me be the first to welcome you to our community! I am sorry though that you have MS. It is a rotten disease to have but...life goes on, maybe a little different than we imagined it would be. It sounds like you are doing the right thing, getting started on a med that should help to slow the progression of the disease. Hopefully the "hand weirdness" will resolve itself and get...
user's latest post:
Justducky65 - Multiple...
Published (2009-11-29 15:33:58)
Replying to: Justducky65 Hi Kathy, I just read this post...I try to give people their privacy when a post is addressed to a certain person. So I never read this one. I just wanted to tell you I'm so sorry you went through all that! I'm sooo happy to hear that you're doing ok! That is sooo scary! I had ON but it was super duper painful. How is your eye now? Has it improved? Kathy, I'm so sorry......it's soooo hard with...
user's latest post:
giving blood - Multiple...
Published (2009-12-06 21:35:17)
Replying to: giving blood They put blood through "washing machines" to clean it all up so it sparkles like new. Search blood on WebMD and there is more technical information posted. It would be nice if the moderators could refer these simple, technical things to the medical staff that is supposedly reading these messages every so often. Jude
user's latest post:
CCVSI: what does the doc say? -...
Published (2009-12-05 16:26:30)
Replying to: CCVSI: what does the doc say? My MS specialist said the concept was 'surprising', but worth exploring, though he wouldn't advise any investigations yet! See him again Jan 6 with my MRI, so will follow up. GP knew what iit was too (Maybe because the UK is closer to Italy?) but said "There is no proof yet and until it comes in every MS patient will be running to get tested". So -- skeptical response, but...
user's latest post:
CCVSI: what does the doc say? -...
Published (2009-12-05 16:26:30)
Replying to: CCVSI: what does the doc say? Hi robyn, I'm off to see my neuro on Jan. 14th. I'll let you know how it goes. It's frustrating though isn't it...when we have to be the ones to inform the doctors. Urgh. My family doc was very skeptical about the whole CCVSI. But we'll see how the neuro is next month. Hugs to you, Caroline
user's latest post:
Could this be anything but MS -...
Published (2009-12-04 06:23:31)
Replying to: Could this be anything but MS Good morning: I have alot of balance and vertigo issues, plus right foot drop that comes and goes, so walking is really hard for me as well. Currently I use a cane all the time. I have taken a few tough falls, so I rarely walk without it. That might help you for the time being until your doctors decide the treatment for you. I have 3 canes in different colors to help accessorize my outfit . They...
user's latest post:
Please contact Oprah! - Multiple...
Published (2009-12-05 16:17:00)
Replying to: Please contact Oprah! Hi Bridget, The follpwing link explains it pretty well-- http://.ctv.ca/servlet/ArticleNews/story/CTVNews/20091202/ms_latest
user's latest post:
Another one... - Multiple...
Published (2009-12-02 18:01:11)
Replying to: Another one... Glad to hear some good news I'm having some pretty radical foot pain & burning. I'm having trouble making it througha day of work, any ideas? Hugs Tammy
user's latest post:
giving blood - Multiple...
Published (2009-12-06 21:57:17)
Replying to: giving blood UR are most certainly entitled to your opinion Lynn
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Latest active threads on Multiple Sclerosis: Support Group::
Started 6 days, 20 hours ago (2009-12-02 01:44:59)
by Always14989
Replying to: MS & Osteoporosis HELP !
Hi Jude, (close to "Hey Jude" ) I have pretty severe Osteoporosis as well as MS. It is a bummer because I have to be EXTRA CAREFUL about watching my step. I have fracured my ankle once when I slipped on my ceramic tile floor. Sure did hurt, but didn't know about the Osteo (or the MS for sure) at that time. I have fallen several times ...
Started 6 days, 20 hours ago (2009-12-02 02:25:37)
by hackwriter
Replying to: Could I have Multiple Sclerosis?
Hi, Cathy, Muscle weakness and mental disturbance are symptoms that porphyria and multiple sclerosis share in common. The only way to rule out MS is to undergo MRIs, spinal taps, and EVPs. It's not unreasonable for you to want those tests, especially if a neurologist suspected MS early on. I'd suggest that you push for a referral to an MS...
Started 1 day, 10 hours ago (2009-12-07 12:32:34)
by bear27312
Replying to: Tysabri Treatments
I have been on Tysabri for #7 infusions and there are no side effects. Great drug. I was on Rebif before but switched because it was not working. Infusion is every 28 days and takes about 2 hrs of time. It works Jim
Started 6 days, 20 hours ago (2009-12-02 02:28:49)
by Camilla100
Replying to: Advice on job/MS secret
Debb, I struggled for months with that question! In the end telling my employers was really liberating and they were supportive, but then they had 'known' me for nine years and knew I was good at my work! Personally I suspect someone employing you for threemonths may be more willing to let you go -- especially if they can do so legally. Its really ...
Started 3 days, 7 hours ago (2009-12-05 15:35:10)
by behap2day2
Replying to: giving blood
Personally, I have issue with the 'unknown' aspect of MS patient blood donation. Initially, the Red Cross said NO. Then they said DEPENDING ON YOUR MEDS. Now they say YES??? And no explanation for the flip/flop. I would not want to unknowingly pass this illness on to someone else - that's for certain! Lynn
Started 3 days, 6 hours ago (2009-12-05 16:18:50)
by sunshine0407
Hi, my name is Bridget, I'm 25 years old, and I have recently been diagnosed with a mild case of relapsing-remitting MS, just this Mid October. I have three lesions, right and left brain, and one on the cervical part of my spinal cord. My symptoms included numbness waist down, and hand numbness. My doctor started me on 2 day steriod treatment right away, and waist down numbness is ...
Started 16 hours, 38 minutes ago (2009-12-08 05:59:50)
by Camilla100
Replying to: Should i get further tested?
I think you need to see a doctor who can decide what you need! Maybe start with your GP/PCP and see if he/she thinks you should see a specialist. No one here can guess as to whether you have MS or whether the treatment you are getting for vertigo is Ok. Take care Camilla
Started 17 hours, 32 minutes ago (2009-12-08 05:05:23)
by swampster1952
Replying to: Me, venting about MS stuff...
Hello Terry, Here is the response I received from WebMD, -----Original Message-----
From: davemaddux@wetlandsoptions.com Sent: Tuesday, December 01, 2009 7:40 PM
To: WebMD Community
Subject: Censorship gone awry! Rather than try and "improve" what you already have I suggest you
Improve the quality of your censorship criteria. Over ...
Started 16 hours, 43 minutes ago (2009-12-08 05:54:25)
by hackwriter
Replying to: MS international research
Thank you, Sarika, I'll visit your sites. Kim
Started 5 days, 10 hours ago (2009-12-03 11:50:54)
by swampster1952
Replying to: rocks and stuff
and some people are like stuff...all over the place! Dave
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Hot threads for last week on Multiple Sclerosis: Support Group::
Started 6 days, 20 hours ago (2009-12-02 02:28:49)
by Camilla100
Replying to: Advice on job/MS secret
Debb, I struggled for months with that question! In the end telling my employers was really liberating and they were supportive, but then they had 'known' me for nine years and knew I was good at my work! Personally I suspect someone employing you for threemonths may be more willing to let you go -- especially if they can do so legally. Its really ...
Started 3 days, 7 hours ago (2009-12-05 15:35:10)
by behap2day2
Replying to: giving blood
Personally, I have issue with the 'unknown' aspect of MS patient blood donation. Initially, the Red Cross said NO. Then they said DEPENDING ON YOUR MEDS. Now they say YES??? And no explanation for the flip/flop. I would not want to unknowingly pass this illness on to someone else - that's for certain! Lynn
Started 6 days, 4 hours ago (2009-12-02 17:50:11)
by bear27312
Replying to: Another one...
Hi Dave, That is Outstanding. I too am very satisfied with Tysabri. I have #8 on Dec 23rd. Jim
Started 3 days, 6 hours ago (2009-12-05 16:18:50)
by sunshine0407
Hi, my name is Bridget, I'm 25 years old, and I have recently been diagnosed with a mild case of relapsing-remitting MS, just this Mid October. I have three lesions, right and left brain, and one on the cervical part of my spinal cord. My symptoms included numbness waist down, and hand numbness. My doctor started me on 2 day steriod treatment right away, and waist down numbness is ...
Started 5 days, 10 hours ago (2009-12-03 11:50:54)
by swampster1952
Replying to: rocks and stuff
and some people are like stuff...all over the place! Dave
Started 1 week ago (2009-12-01 09:30:45)
by Terrie95
Replying to: Censorship getting out of hand...
Good morning everyone: I agree, I responded to Tammy's post, and was looking forward to feedback because I wanted to make sure I was still good with the group and we are all still friends, and it disapeared. Now I don't know what feedback I got. This is where I come for help, questions I have, companionship with people who are going ...
Started 6 days, 20 hours ago (2009-12-02 02:25:37)
by hackwriter
Replying to: Could I have Multiple Sclerosis?
Hi, Cathy, Muscle weakness and mental disturbance are symptoms that porphyria and multiple sclerosis share in common. The only way to rule out MS is to undergo MRIs, spinal taps, and EVPs. It's not unreasonable for you to want those tests, especially if a neurologist suspected MS early on. I'd suggest that you push for a referral to an MS...
Started 1 week, 1 day ago (2009-11-30 18:18:45)
by gmacarol14
Hi
I just found out I have MS. One minute I'm ready to fight with all I have and the next I don't care about anything. I'm worried about my future. People I talk to say others do just fine with MS. Well, I'd like some positive words from those of you who actually have been where I am now. I go to the Dr. on Friday to discuss meds. Can't wait, HA HA!!!
Waiting to here from you, Carol...
Started 1 week, 2 days ago (2009-11-29 15:23:12)
by bear27312
Replying to: New Protocol MRI
Sweet Caroline, First, you are very brave and are doing all of us a great favor by being right on this. I would not be too discouraged, it won't help to stress about it. I think by having the specialist in Detroit that is part of a group establishing the protocol for all this is very good. In the future, hopefully the medical establishment will have ...
Started 5 days, 10 hours ago (2009-12-03 11:38:14)
by swampster1952
Replying to: HELP! My MRI is normal!
Hello Angela, You should of had an MRI done of your spine also, with and without contrast. You should also have had a lumbar puncture. Having just an MRI of your brain does not give enough information to dx MS. You should probably find yourself a neurologist that specializes in treating people with MS. A regular neuro will not necessarily have the ...
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