Cancer: Support Group | Forum profile

Replying to: Metastatic Paraganglioma A friend of mine had similar issues with her chemo pills being covered and after contacting doctors and pharm company, somehow it was paid for. Look into all options, there are ways to get it paid for. Good luck, I'm sure that as difficult as it seems, it can be worked out. Hugs, Angie

Replying to: Metastatic Paraganglioma HI, I see that your message is over a year old so I hope you get this. I also have metastatic paraganglioma. I was diagnosed this February . There is a tumor wrapped around my aorta in the abdomen as well as around my ureter in the kidney, on top of that they say there are "too many tumors to count". I am currently on the oral medication Sutent and have had some shrinkage of the main tumor. I...

Hello, I am an undergraduate at Georgetown University. I'm conducting my senior thesis project on the immune status of breast cancer patients undergoing chemotherapy. It is a very easy survey study. If you are interested, please e-mail me at ltb5@georgetown.edu! Thanks, Laura Boitano

I know it's been a long time- I hope you and mom are doing well. I got my report B9!! I told my surgeon I could have done without the 8in scar, the pain, and the trip to the ICU! However I've decided to wear the scar as a badge of honor, I'm just so thrilled with the outcome. I go back in 6mo for another CT scan, and I guess they will continue to follow my kidney function. I'm just so glad this is over. My best to you and...

this is all so new to me. i found out in 2008 that i had copd and lung cancer.did not have a clue about either of these, just thought life was over had a lobe removed on august 20 2008 on my right lung, started chemo in oct, had to stop in dec, my body could not do it anymore. have been cancer free for 9 months now, but still have a hard time with all of this anyone who has advice for me i would love to read about it, my family does not...

Replying to: lung cancer Hi and Welcome, Oh yeah, I know what you mean....the spectre just outside of view is always there. It just takes time. Every time I get a cough, or weakness, I have to try very hard not to panic. I just clicked over my 7 year mark of being cancer free, but the thought is always there. I don't know what to tell you about the family, mine has always been very supportive in my continuing recovery. It takes quite a...

I don't usually post much to any of the boards. Most of my questions are answered within other posts. So here goes, I had a MRI of my brain last week, to rule out a brain tumor. The MRI showed several abnormal areas on my brain. Which my family doctor won't tell me anything in an effort to keep me calm. All I know is that my abnormalities are on the area that control mood. I ended up in the doctor's office because I totally...

Replying to: Need some advice If you want to "freak out" do it! When you do, let everyone know that it is your time to do so and THEY need to be strong for you! Let them know your emotions, and let them know how YOU want help! Sometime people just don't know what to do or say. So guide them, hopefully they will follow your "cue"! Best wishes Tina

Replying to: Need some advice For what it is worth, it is good, if you could have someone go to the Dr. with you. I always try to have my wife with me as two people can hear it better than one. Two people can also ask good questions better than one. I do hope you can get this treated soon. The waiting is almost the worst part. Dave K

Replying to: Bone marrow ? Hi, There are two ways to give bone marrow. The traditional way involves anesthetizing you and inserting hollow needles into your hips to take out the bone marrow, in a process called needle aspiration. This can leave your hips feeling sore for a little while, but most people recover within a week. A process called apherisis can also be used to extract bone marrow. Apherisis is less invasive. and painful, and it...