Interstitial Cystitis | Forum profile

You're lucky to have private medical cover. I didn't actually have any but paid the costs anyway as it was worth it rather than having to wait weeks and weeks,plus the local private hospital is very nice. I spent £1600 altogether although I did get an ultrasound and a laparoscopy done on the nhs.At the end of the day i had been off work for a while and would have gone down to half pay if i hadn't got sorted so it was...

I will be near enough pain free for a few days and then my symptoms will return to 'normal'.  I am intending to keep the instills going for the time being or until the nurse/uro suggests otherwise. I have one every 6 weeks at the moment but if I wanted them more regular I could reuqest that.

thank you for the explanation about the milk / yeast issue.

thank you hansel , its so reassuring to hear from someone that understands the symptoms , exspecialy the odd butterflly feeling , its like your bladder is nervous . I too am lucky enough to have a form of private cover that provides me with £1,500 for tests and diagnostic consultation, so hopefully that should cover urology checks if the gynie ones show nothing. Will look up the medication that you mention as it will be handy to go in armed....

Hi all, I began cystistat instills in approx May this year + I must be one of the lucky ones.  At first I had them weekly for 4 weeks then  monthly.  I am so lucky as I have a fantastic nurse who really knows her stuff about IC.  I am due for another instill in a couple of weeks but not sure if I can carry on with it as I have just found out I am pregnant!  I will still go + just see what she...

Hi. Volvodynia is very uncomfortable.I find it is very closely linked to I.C.Since I have adopted a low acid,wheat and gluten free diet I have noticed a great improvement. I am going through an acupuncture course of treatment also.The anaesthetist is very supportive of the efforts I am making of helping my-self. The only medication I take are natural products eg: Hypericum 30,Quercertin,Aloe Vera. glucosamine with chrondroitin ,potassium...

Sorry to hear you're in such pain, and that (as per) you're not getting much help from the medical profession right about now. Have you tried the IC diet? Do you know If what you eat triggers you?

So happy for you Louise.  It's lovely to have some good news on the posts!!  Sorry I can't help you though as I had had my 2 children before the IC started.  I do hope all will go well with you. Sara X

Hello Sorry to hear that you have been having problems. My suggestion would be to ask to be referred to a urologist.  I say this because I was referred to a urogynaecologist in the first instance, who was so patronising he could not see past his own ego to see the cause of my problems (apologies for the cynicism!). I was then referred to a urologist. I gave the same information and history and he immediately knew what was wrong and...

Hi Louis   Congratulations on your news.  Thanks for replying to my email.   I am still counting down the days help.  Your email was reassuring but some of the others bless them, i felt unnerved me a bit.   Will just have to be philosophical about it.   Kind regards,   Jackie H.  Happy new year.