Lupus | Forum profile

Hi Laurie, My pain is all along my left side, face, back of skull, left arm and leg with some weakness and numbness. Some joint and muscle pain that comes and goes. It's true that Plaquenil can take many months to "kick in" so it may be too early to give up on it. And don't feel like a nut case because you're not feeling better yet. Everyone is different and you may need a stronger or different mix of drugs to...

I have a cardiac arrhythmia (ventricular ectopic beats) this was diagnosed well before SLE. I take Atenolol daily to keep things balanced. Apparently, this is more an "electrical" problem, rather than physical. I have low cholesterol and low blood pressure. I asked both my GP and Rheumatologist if this was Lupus related....I got an honest answer....they have no idea...I would take Helyn's advice, and ask for a cardiac...

I have all of the sudden gotten this terrible craving for salt the past couple of weeks. I mean it's so bad that I am putting salt on my 12 grain toast in the mornings. I will snack on 12 grain toast with salt on it. Does this make any sense at all to anyone? I just don't get it. Thanks for any input you can give me.

hi does anyone have flares for certain length of time and your ill,say with lung probs,? then it clears up?then it like kidney pain for so long?then something else after that.then that clears up?..i feel im in a vicious round of hit that organ,then leave it alone,then hit this one..no wonder docs confused with me.any advice on this much apreciated,as i know now my life never be the same again with this hugs lozzy

My face is diffrent shades - light brown to white- my elbows are coarse with a bad rash this sticks to my colthes when i put them on so annoying, my elbow is also a diffrent colour to the rest of my skin. hard to cover up your face. Ann

to tracy.. the doctors told my fosters that because my lupus is in the late stages, i needed a stem cell transplant because the medication more than likely won't help me. they have me on the medication as well, but i did have the stem cell transplant for lupus. the anemia group (if that's what you meant) is because of my son, he's got sickle cell. by major organ involvement do you mean lungs, kidney, liver, etc? if so,...

In the 11 replies, no one stated the obvious: no doctor can say you have lupus from ONLY bloodwork. It is IMPOSSIBLE to make a lupus diagnosis simply from bloodwork. Plain and simple. What kind of doc was this? Was this a rheumatologist or an internist? If an internist, get yourself in to see a rheumatologist to have him/her look at your test results and to discuss other criteria you need for a diagnosis. Many old school docs make this...

thanks for all your replies. For me what helped is discovering my risk factors, and things that I CAN control. I now no longer work at a stressful job that makes me sick all the time. The money was mid-great but health is wealth. Now I have all the time to cook my own food and I see my doctor and nutritionist regularly. I take alternative theraphy not just rely on medications. I try not to be dwell on negative things or negative people and I...

dalesw, I have never had kidney involvement. I'm sure ibuprofen would not be prescribed for you or any one with kidney or liver disease. My point in mentioning it is to encourage people to talk with their Rheumy doc about ALL the possible non steroidal anti-inflammatory options before resorting to prednisone . Sometimes a simple solution can be the best and can be easily overlooked. The 800 mg Ibuprofen I took was coated and by...

Nope don't know what is going on with that. But watch how much salt you do eat. You know that right?? Hope you get over this quick. God bless. Linda