NHS Electronic Care Records and 'Spine' | Forum profile

I noticed on your home page, you have something about the NHS spine. Now I don't want my details on that database but am I to late? It says we should of had a letter about it but I have had nothing. I have printed a copy of the letter off and going to take it to my doctor next week. But what happens if it has been put on the NHS spine, without my permission? Thanks. http://www.no2id.net/ http://www.thebigoptout.org/optoutletter

If you've had no letter from the NHS about uploading your records to the Spine then in theory you're in time, and no "Summary Care Record" has yet been created about you. However, a word of warning - some doctors who've surveyed their patients in areas where the uploads are happening report that a percentage have no recollection of receiving the letter. We don't know if this is because they didn't...

ukliberty wrote: FishNChipPapers wrote: ... on the Additional Uses of Patient Data http://www.dh.gov.uk/en/Consultations/Responsestoconsultations/DH_109310 Quote: A Department of Health consultation has explored the issues around patient consent and confidentiality in relation to using their medical data for researching treatments. It is clear that the public expects their consent to be sought if the data used is identifiable. This means we...

... on the Additional Uses of Patient Data http://www.dh.gov.uk/en/Consultations/Responsestoconsultations/DH_109310 Quote: A Department of Health consultation has explored the issues around patient consent and confidentiality in relation to using their medical data for researching treatments. It is clear that the public expects their consent to be sought if the data used is identifiable. This means we need to test out how best to secure that...

FishNChipPapers wrote: ... on the Additional Uses of Patient Data http://www.dh.gov.uk/en/Consultations/Responsestoconsultations/DH_109310 Quote: A Department of Health consultation has explored the issues around patient consent and confidentiality in relation to using their medical data for researching treatments. It is clear that the public expects their consent to be sought if the data used is identifiable. This means we need to test out...