Special Needs Parenting | Forum profile

Owen is most likely going to start school (preschool through the public school district) this fall. He is currently on Medicaid, which is paying for all his therapy at a private place (ST, OT, feeding). Once he starts school we'll, obviously, do the whole IEP thing. The question is... I don't want to take him out of the private therapy. But if I don't put the ST/...

Welcome to MDC and the Special Needs Board. I hope the adoption goes through quickly and smoothly. I don't know the answer to your question. I hope someone here does. You could also cross-post in our Adoptions Forum. There might be some mamas there who can answer your questions. I don't want to drive you out of the SN Board though. We're a supportive bunch and you're welcome ...

Quote: Originally Posted by calgrowing I've run into this, too, people simply won't believe my son has serious, potentially life-threatening issues because "he doesn't look sick". I've found that my son's clasmates (elementary school) are wonderful, though, they seem to have a shrugging "he's just that way" global attitude of ...

My daughter has epilepsy with different types of seizures than your son and a different medication (Depakote). I also went through, and still do, denial and definite fear of the medication. I realize there are long waits for neuro appts - but am surprised they didn't fit you in immediately considering your son is actively having seizures.

I'm so glad you guys got an appointment this week, that's great! We'll be sending you good thoughts.... keep us updated!

Just wanted to send hugs. I have also decided not to do any metabolic or genetic testing on my dd right now, though there is most likely something serious going on (she has multiple lesions or "white spots" in the right hemisphere of her brain). However, for us the main focus right now is finding the right med for her and getting the seizures under control. It's like, one thing at a time....

Dd has been on Tegretol since May, and stable with no seizures. However, at the end of June she had a fairly big partial seizure that turned into a general seizure and landed us a trip to the hospital. Anyway, neuro decided that the Tegretol was being absorbed too quickly and we would either need to break it up into 4 doses daily (omg no, getting her to take 2 ...

I think my DD may have SPD or some other issue that manifests primarily in her sleep habits. She can't power down to relax and sleep very well. Hardly naps. Does somewhat better at night, but requires extensive parenting in order to sleep otherwise she just cries and cries. If I tire her out properly she sleeps better, but that entails 3 big activities a day ...

ds (a month shy of 3.5) started asking "what is that?" a couple days ago. His first "w" word question. It is so cute because he has so many articulation challenges, but this sentence...you can just tell he is working hard to make it as clear as possible. It is quite possibly his most articulate sentence. It is so sweet. It's not, "What's that?" (or "Wat dat...

I struggle with this also because ds2 is very advance in some ways and ds2 is behind in most areas. We were told a couple of years ago that ds2 would probably be more advanced in most things by a certain time. Luckily he is on the spectrum too so their prophecy didn't become totally true. But it is a classic aspie versus a more classicly autistic child. I don't have any real answers in that ds2'...