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Special Needs Parenting | Forum profile
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Forum profile page for Special Needs Parenting on http://www.mothering.com.
This report page is the aggregated overview from a single forum: Special Needs Parenting, located on the Message Board at http://www.mothering.com.
This forum profile page summarizes the general forum statistics such as: Users Activity, Forum Activity, and Top Authors, which are reported in either a table or graph below for a given reporting time period.
Additional forum profile information for "Special Needs Parenting" on the Message Board at http://www.mothering.com is also shown in the following ways:
1) Latest Active Threads
2) Hot Threads for Last Week
Warning: These statistics are generated using 'best efforts' and can experience delays and reporting errors at times. Please note that such statistics do not constitute a forum's popularity and/or exact posting volumes at any given reporting period.
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Posting activity on Special Needs Parenting:
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3 Months
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Threads:
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161
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491
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1,268
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Post:
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507
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1,665
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4,168
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Special Needs Parenting Posting activity graph:
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Top authors during last week:
user's latest post:
please tell me im reading too...
Published (2009-11-30 23:22:00)
Try to relax until a year if you can. At a year if she's pointing to things to draw your attention and responding consistently to her name I would feel reassured. Take a look at this article for things to watch for. Here is one example: Quote: In contrast, infants later diagnosed with autism often fail to respond to their own name. That is, when called by name, they tend to turn and look at the person only about 20% of the time Another:...
user's latest post:
Tell me why I'm doing...
Published (2009-11-30 22:13:00)
Roar... I posted a new thread about the eye contact and as a result am making an appointment with a developmental opthamologist. But I hear you on waiting until he can "get" the need intellectually given the uselessness of what I've been doing. I agree with you. I had contacted Davidson Young Scholars back in July and they were very helpful about deciphering the scores I had (which did qualify him) and how to submit...
user's latest post:
Tell me why I'm doing...
Published (2009-11-29 20:08:00)
About the eye contact issue - it may be that he has a hard time processing two sets of sensory information (from his eyes and his hearing) so he chooses to focus on what he's hearing. I know with my daughter she hears what I'm saying and is processing what's said even if she doesn't give me direct eye contact. She responds. She does what she's asked. Her teacher says she has noticed the same thing. However, her eye...
user's latest post:
I just need to reach out to...
Published (2009-11-29 21:38:00)
I'm so sorry. I hear you. I am feeling particularly alone with something going on with my daughter and I know what it's like not to have real life support. I reached out to people here and people have really reached back. My suggestion is do it often. Being heard is so important and I HEAR YOU.
user's latest post:
SERIOUS lack of eye contact......
Published (2009-11-30 15:33:00)
I second the developmental ophthamologist. We just found out my son has all sorts of visual problems (not the same as near/far sightedness). He has trouble recognizing people and often closes one eye and looks out the side of his other eye. He has problems with tracking and convergence and will most likely need vision therapy. Some kids with visual problems have a hard time with eye contact. Anyway, just something to rule out.
user's latest post:
Calm me down...
Published (2009-11-29 16:18:00)
i understand. i try to remind myself that what seems trivial to me NOW are things that I used to think were pretty darn important. you know, before i had a child that could have dies as an infant and who now faces a life of struggles. i also *try* to remind myself that no matter how trivial it seems to me, that other person is genuinely facing what may be the hardest thing in their life. but yes, it's very hard, and i do want to scream...
user's latest post:
Anyone else have a 1+ year old...
Published (2009-11-30 19:27:00)
Just to give you a little hope, my DS was like that. He has low tone, too, and needed pureed foods far beyond the average age and had a very strong gag reflex. As it turned out, he was just on his own timetable. By the time he was three he could eat most foods except for things like meat that really take a lot of work to chew. He's seven now and eats anything and everything. So, no idea if your DS will go the same way, but I wanted to...
user's latest post:
If you could tell the...
Published (2009-11-25 06:38:00)
These are awesome! Thanks so much! (and keep 'em coming if you have more)
user's latest post:
what do you do when
Published (2009-11-29 09:31:00)
i will have to get that book. a big issue is -- with any check list -- he doesn't check them all .. so no matter what Dx we get his treatemetn (quote) is going to be personal. (i guess that is a no duh statment, sorry). I guess i just feel i would have more help, more direction, more _____ if we have some actual idea what we were dealing with in the big picutre way -- yk? stupid i guess. thanks for teh book title i will request it ILL. Aimee
user's latest post:
Katie Beckett Medicaid?
Published (2009-11-26 10:54:00)
Unfortunately it looks like we have very little chance of getting it, all my DD disabilities are mental health related. http://www.bazelon.org/issues/childr...EFRA/fact3.htm TEFRA (Katie Beckett) Medicaid Option: State Policies Issue Families of children with serious mental or emotional disorders are often unable to obtain the specialized and intensive services their children need through their private insurance policy or by paying...
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Latest active threads on Special Needs Parenting::
Started 3 weeks, 4 days ago (2009-11-07 14:49:00)
by ernalala
We had the same 'dilemma'. It was not so much a dilemma but a conscious choice NOT to have an amnio that would still hold a certain risk regarding the pregnancy/baby. If the outcome would be DS or not, we would certainly have this baby :-)! So, yes, we were worried sometimes, and we looked up information about Down Syndrome, just in case. We had the special echo around 20 weeks and acc. to this ...
Started 2 days, 22 hours ago (2009-11-29 21:57:00)
by Kailey's mom
Quote:
Originally Posted by darien
I've been pondering this.
My (now) stbx and I have been having marital troubles for years. He spends nearly all of his time in front of his computers-- when he's not doing work, he's watching movies or playing games. * I have to focus on something, either movies that I have seen before, or ...
Started 4 days, 12 hours ago (2009-11-28 07:18:00)
by JSerene
Quality elemental formulas?
My doctor told me that elemental formulas are not regulated so therefore they were unable to say which brand was the best. How do you determine quality? The main ingrediant seems to be corn syrup. This is nothing I would have historically fed my kid, but, of course, she's ...
Started 1 day, 21 hours ago (2009-11-30 22:41:00)
by PikkuMyy
I'm not sure but I will say that the 8 month old I nanny for has recently learned how to move that much and she wants to be on the move all the time. She's even having trouble napping because as soon as I lay her in her crib, she scoots back, pulls herself up and sits up! Over and over and over. I've been bouncing her to sleep and then laying her down even though she normally falls asleep on ...
Started 1 week, 1 day ago (2009-11-23 21:01:00)
by Momma Aimee
DS is 4. I am in the same place -- kinda -- i can't tell what is normal, what is his age, what is a SN ...and so on to the point of dizzy
Quote:
So I guess maybe somewhere deep in my heart I'm questioning my ability to objectively see my son. On the other hand, I'm not sure the dx ( or lack thereof) is going to make a difference.
Hmmm... maybe watching ...
Started 2 days, 21 hours ago (2009-11-29 22:35:00)
by TanyaLopez
Have you already considered, and maybe rejected, looking at vitamin A and eye contact issues? I've read about them being related, it's not an issue for my kids, though my son was quite vitamin A deficient. I don't know the typical dosing to see changes, it's higher than typical ongoing daily dosing would be.
I guess from a relating-to-people standpoint, I'd want to try to address it, but...
Started 2 days, 20 hours ago (2009-11-29 23:22:00)
by stik
"Spacing out" is a really different thing than petit mal or absence seizures. For example, a person who is spaced out can be called back into attentiveness. That doesn't happen during absence seizures. But it can be hard to tell because petit mal seizures are typically short.
Absence seizures are also often associated with repetitive, tic-like behavior.
Descriptive websites:
...
Started 2 days, 22 hours ago (2009-11-29 21:38:00)
by NiteNicole
I'm so sorry. I hear you. I am feeling particularly alone with something going on with my daughter and I know what it's like not to have real life support. I reached out to people here and people have really reached back. My suggestion is do it often. Being heard is so important and I HEAR YOU.
Started 1 day, 22 hours ago (2009-11-30 21:08:00)
by Stephenie
When SPD was first suggested to me as an issue my son might have, I thought the OT who suggested it was nuts. The only sensory things I really had noticed were his hate for shoes/socks and fear of the vacuum. And I figured he would just outgrow it. When I talked to our neurologist about it (he's got a separate neurological condition) he said two things that encouraged me to go ahead with an eval...
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Hot threads for last week on Special Needs Parenting::
Started 1 week, 1 day ago (2009-11-23 22:01:00)
by QueenOfTheMeadow
"Listen to what I'm telling to you!" That would be the very first inportant thing in these cases. I've heard so often that parents aren't being listened to. So profesionals make up their minds without truly hearing what a parent is saying.
Started 1 week, 1 day ago (2009-11-23 21:01:00)
by Momma Aimee
DS is 4. I am in the same place -- kinda -- i can't tell what is normal, what is his age, what is a SN ...and so on to the point of dizzy
Quote:
So I guess maybe somewhere deep in my heart I'm questioning my ability to objectively see my son. On the other hand, I'm not sure the dx ( or lack thereof) is going to make a difference.
Hmmm... maybe watching ...
Started 2 months, 1 week ago (2009-09-19 23:44:00)
by Lindsay1234
Ooooh Ill be watching for this book!! My ToF babe is 4 months old and had surgery for a temp shunt at 6 weeks old. Id also love to find a book for parents about parenting a cardiac kid. It seems like none of the parenting or special needs books apply to cardiac kids and its SO common!
This is the one we were given
Simple and put my 7 yr old dd at ease about what they were going to do to ...
Started 1 week, 1 day ago (2009-11-24 13:45:00)
by APToddlerMama
I am in a similar situation except that my son is 19 months. I have that same "what path are we on" feeling as you do though and it is hard. I also worked in EI years ago. Has your speech therapist considered apraxia? I know it can be difficult to diagnose. How is his receptive language? If it were me, I would consider a referral to someone else, even just another SLP for a second opinion ...
Started 2 days, 22 hours ago (2009-11-29 21:38:00)
by NiteNicole
I'm so sorry. I hear you. I am feeling particularly alone with something going on with my daughter and I know what it's like not to have real life support. I reached out to people here and people have really reached back. My suggestion is do it often. Being heard is so important and I HEAR YOU.
Started 1 week, 2 days ago (2009-11-22 22:59:00)
by sbgrace
Oh.
I am crying reading your post because your pain and fear for her and, really, agony over this is just palpable. I'm so sorry you are going through this.
I don't have experience in this area but I very much identify with the emotions you're expressing. I've been there several times (and am there presently again) with my son. I know how desperate you feel for her.
I will pray for ...
Started 1 week, 3 days ago (2009-11-21 22:49:00)
by sbgrace
Is cost a factor? If it is you want to move to a state with good autism insurance laws (that require insurance to pay for services as any other medical expense).
Quote:
Arizona, Colorado, Connecticut, Florida, Illinois, Indiana, Louisiana, Montana, Nevada, New Jersey, New Mexico, Pennsylvania, South Carolina,Texas and Wisconsin—specifically require insurers to ...
Started 1 week, 2 days ago (2009-11-23 08:34:00)
by meg-momto2
i'm subbing. DS isn't quite 6 but i'd love to give him some coping skills. rationalizing just doesn't work with him. it's very frustrating for both of us.
Started 1 week ago (2009-11-24 20:06:00)
by KCMichigan
One of my DDs was a 'base of the thumb' biter. She did it in anxiety, for comfort, and to fullfill her need to chew. She never broke skin, but it often had teeth marks and was red.
The PT/OT put a thumb splint on her to prevent damage & change the texture...she did not like to chew on it, but them transfered her 'chewy' needs to non-edible things.
We have had the most success with a chewy ...
Started 6 days, 10 hours ago (2009-11-26 09:37:00)
by NightOwlwithowlet
This year it means NOT driving three hours each way to eat with my family. Especially, since I have to work at 6 am tomorrow morning and DH just returned from two weeks overseas. Plus my son is a CF diet and I have to bring most of his food with us because "We have to use real butter!" Add in the family drama; one sister is declaring bankruptcy, my brother left his wife after 30 years for ...
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