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Special Needs Parenting | Forum profile

Forum profile page for Special Needs Parenting on http://www.mothering.com. This report page is the aggregated overview from a single forum: Special Needs Parenting, located on the Message Board at http://www.mothering.com. This forum profile page summarizes the general forum statistics such as: Users Activity, Forum Activity, and Top Authors, which are reported in either a table or graph below for a given reporting time period. Additional forum profile information for "Special Needs Parenting" on the Message Board at http://www.mothering.com is also shown in the following ways:

1) Latest Active Threads
2) Hot Threads for Last Week

Warning: These statistics are generated using 'best efforts' and can experience delays and reporting errors at times. Please note that such statistics do not constitute a forum's popularity and/or exact posting volumes at any given reporting period.

Site: MotheringDotCommune Forums - Special Needs Parenting (site profile, domain info mothering.com)
Title: Special Needs Parenting
Url: http://www.mothering.com/discussions/forumdispl...
Users activity: 32 posts per thread
Forum activity: 123 active threads during last week
 

Posting activity on Special Needs Parenting:

  Week Month 3 Months
Threads: 123 393 1,189
Post: 446 1,322 3,824
 

Special Needs Parenting Posting activity graph:

Posts by:  day  week  month 

Top authors during last week:

Name
Posts
sbgrace
21
user's latest post:
Did anyone know their toddler...
Published (2009-11-10 23:27:00)
Quote: Originally Posted by baileyann3 i saw this in new posts, excuse my ignorance. Is loving books a sign of autism? Is it the repetitiveness of it that makes it a red flag? My typical child absolutely loves books. He has favorites of course. He would listen to stories all day long if I could just sit and read. His brother attaches to certain (train related) books. He will study them all day long. He memorizes stuff about the trains and...
2boyzmama
20
user's latest post:
Cleft team appt
Published (2009-11-11 17:57:00)
The surgeon is the "head" of the team, so we can't really "fire" him, but that's why I sought out another surgeon at a different hospital (besides, the other surgeon is rated higher anyway). I kept Connor on this team because I like speech, audiology, the genetics counselor (not the geneticist she works for, but we never see him, we only see the counselor), and we *love* the dev ped. So it's...
kme
15
user's latest post:
I just requested an early...
Published (2009-11-11 15:49:00)
I second clicksab. EI won't give a "diagnosis" - they will let you know if and in what areas she is delayed. At her age you would most likely get "developmental delay" as a "label" (if anything). It is harder to get a dx than most people realize. However, without the dx it is often hard to get needed services. I too was worried about having some dianosis or label follow my son around...
BookGoddess
14
user's latest post:
Did anyone know their toddler...
Published (2009-11-11 01:39:00)
Quote: Originally Posted by baileyann3 i saw this in new posts, excuse my ignorance. Is loving books a sign of autism? Is it the repetitiveness of it that makes it a red flag? The short answer is no, loving books is not a sign of autism. If loving books is a sign of autism then I would be autistic because I adored books as a child and I still do but I'm not on the spectrum. Loving books isn't in and of itself anything to be...
Satori
14
user's latest post:
How to approach pedi about...
Published (2009-11-10 22:07:00)
Quote: Originally Posted by MotherWhimsey welcome to nursing. this is the drama I was talking about. As far as the tube goes, I don't know that they would do it until they had exhausted all the other options (like a bit glass of cornstarch before bed). They'd need to document a whole night inpatient to prove the need. In order to get the port, my son had two life threatening episodes that were observed before it was decided that it...
Linda on the move
11
user's latest post:
Son newly diagnosed and DH about...
Published (2009-11-10 12:19:00)
Hello Michelle! I been thinking about you and your sweet babies and wondering how you are doing. . Linda
khaoskat
9
user's latest post:
Cleft team appt
Published (2009-11-11 14:56:00)
I am beginning to think it is all the Ped specific docs that practice in there. We have had many issues with the Ortho group out of the Hospital. Hope things are looking better for you and the kiddos. And yes, the boys will really like to push your buttons right now. They know mommy is tired, they know the new baby is keeping mommy up and taking all her energy. They are trying to see how far they can push and what they can and cannot get away...
anj_rn
9
user's latest post:
Cleft team appt
Published (2009-11-11 14:13:00)
Sorry about the mean surgeons. I agree that if they work with kids, they should be good with kids. Can you fire one member of the cleft team? I used to work with our team in Houston, but it never came up (mainly because our surgeon is the sweetest man on the planet).
MotherWhimsey
8
user's latest post:
Hospital time and home routines....
Published (2009-11-11 09:10:00)
This isn't really routine, but we always make sure that dd gets to do something special while ds is in the hospital. If she's staying with my mom (one of our hospitals is local to my mom) then they have a "vacation" while we're in and a lot of the time she doesn't even want to visit very often. If we're in our local hospital, dh keeps her and they do stuff like go out for chinese food and go to the...
sammysmammy
7
user's latest post:
Need insite - 1 in 9 chance baby...
Published (2009-11-09 20:27:00)
oh...you totally didn't offend me I just always feel like i'd rather people know the correct "term" for Down syndrome than to feel silly once they realize!
 

Latest active threads on Special Needs Parenting::

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Started 3 days ago (2009-11-11 14:13:00)  by anj_rn
Sorry about the mean surgeons. I agree that if they work with kids, they should be good with kids. Can you fire one member of the cleft team? I used to work with our team in Houston, but it never came up (mainly because our surgeon is the sweetest man on the planet).
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Started 3 days, 1 hour ago (2009-11-11 13:51:00)  by KCMichigan
We have used it twice (2x a day for 4-6 weeks- a year apart) and it was helpful. Once at age 2.5 and once at 3.5. My DD has SPD and PDD_NOS. Her OT 'rented' it out to us and we switched CDs every week. Out of pocket cost was $50. I was very happy with the results- she is a lot more tolerant of 'noise' and unexpected noises than she was, we also saw 'calmer' behaviors after most of the CDs. ...
Thread:  Show this thread (3 posts)   Thread info: Therapeutic Listening?? Size: 859 bytes
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Started 3 weeks, 2 days ago (2009-10-22 06:40:00)  by kme
My son has diagnosed SPD. He is mostly a sensory seeker but has some defensiveness as well. He also doesn't like crowds and gets very overwhelmed and tantrumy in large crowds. He doesn't like people "coming at him". So if another child comes running over or an adult swoops at him for a hug they are likely to get slugged. He is rough, unpredictable, immature and I do make concessions for him...
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Started 2 days, 23 hours ago (2009-11-11 15:27:00)  by clicksab
well, to ease some of your fears... state run early intervention programs do not give a diagnosis. They will evaluate and tell you if your DD has a delay in an area, but they won't say "you're daughter has this wrong with her!" And this is not something that will stick with her for life, if there is any kind of delay! That is what early intervention is about...getting them help so that they ...
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Started 1 month, 3 weeks ago (2009-09-19 23:44:00)  by Lindsay1234
Ooooh Ill be watching for this book!! My ToF babe is 4 months old and had surgery for a temp shunt at 6 weeks old. Id also love to find a book for parents about parenting a cardiac kid. It seems like none of the parenting or special needs books apply to cardiac kids and its SO common! This is the one we were given Simple and put my 7 yr old dd at ease about what they were going to do to ...
Thread:  Show this thread (53 posts)   Thread info: The "heart" thread (CHD) Size: 554 bytes
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Started 3 days, 22 hours ago (2009-11-10 16:43:00)  by beckyand3littlemonsters
sorry don't really know what to say just wanted to send you and your ds some hugs
Thread:  Show this thread (6 posts)   Thread info: Seriously? Let him meltdown all day then send him to the principals
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Started 4 weeks ago (2009-10-17 11:59:00)  by BookGoddess
I agree with the PP who said trying GFCF and living 100% GFCF are completely different. For many GFCF isn't enough there has to be a 100% committment to going GFCF with personal care items, toys, etc. Some kids won't see benefits from GFCF if they come into contact with nonGFCF thiungs like Play Dough for example. It's true the GFCF diet will not work for everyone. Nothing ever works for...
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Started 4 days, 9 hours ago (2009-11-10 05:43:00)  by bandgeek
Is that the route they'd go if she wasn't nursing? If so, I think it's reasonable. She won't nurse forever, and sleep IS a necessity. I don't know anything about your DD, but if food during the night is necessary, I'd be putting in a tube. Sleep is necessary for HER too. It's normal for babies to wake often to eat, but most 3+ kids aren't waking like that and it's not the thing they're meant...
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Started 3 days, 15 hours ago (2009-11-10 23:15:00)  by sbgrace
We do and always have. But my kid is closer to 5% so it's more stressful. I wish he'd eat a significant amount of anything. Even "his foods" he doesn't eat much of. He likes starchy carbs. That's it. And even that he's picky. Dinner is always a struggle unless it's (rice flour) pancakes. Oh, he will drink smoothies so I can get some fruit in him that way. He will also eat yogurt. Which is why ...
Thread:  Show this thread (3 posts)   Thread info: Beyond picky eating - PDD-NOS Size: 518 bytes
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Started 4 days ago (2009-11-10 14:11:00)  by BookGoddess
I don't see huge red flags in your post. If you are truly worried you can always call your state's Early Intervention or Child Find office to get a free evaluation. The red flags to me would be if she doesn't point things/people/items to get your interest, not bringing anything to you to share her interest in the item, not nodding or shaking the head for "yes" or "no", lack of emotional ...
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Special Needs Parenting
Started 6 days ago (2009-11-08 14:48:00)  by sbgrace
Is he just cold? Caleb tends to get blue lips whenever he is chilled. It happens a lot. His temp tends to run low too. His tongue is never blue and I think that's significant based on what the ped. checked. Anyway, I know heart issues can cause cyanosis. Caleb was sent for a heart echo as he also had a loud murmur. They were looking for congenital heart things. I was under the impression ...
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Started 1 week, 1 day ago (2009-11-05 16:57:00)  by Sleepyheaded_Mama
I have to make this quick as the natives are restless around here (nearly dinner time) but I am dying to hear someone else's opinion on this because I have just been reeling all day over it: My DS has severe behavior issues, recently was DC'd back home after his 2nd inpatient stay at our Children's Behavioral Hospital in 5 months. He is home on a new course of meds and this time we ...
Thread:  Show this thread (19 posts)   Thread info: Is this right? Can this be a positive thing? Size: 1,969 bytes
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Started 1 week ago (2009-11-07 14:49:00)  by ernalala
We had the same 'dilemma'. It was not so much a dilemma but a conscious choice NOT to have an amnio that would still hold a certain risk regarding the pregnancy/baby. If the outcome would be DS or not, we would certainly have this baby :-)! So, yes, we were worried sometimes, and we looked up information about Down Syndrome, just in case. We had the special echo around 20 weeks and acc. to this ...
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Started 6 days, 5 hours ago (2009-11-08 09:16:00)  by sammysmammy
51 views and no one has ANY input?
Thread:  Show this thread (16 posts)   Thread info: please provide input..my hearts cry right now Size: 166 bytes
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Started 1 week, 2 days ago (2009-11-05 13:27:00)  by sbgrace
I feel so badly for you. No wonder you're overwhelmed. I like the ideas about a social story and especially Skype. I so wish you had someone to help you. I love the idea of a mother's helper to play with your older son. Are you religious at all? If so, I wonder if finding a faith community might provide more options both for support and help. I wanted to reply about the reflux ...
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RE: Mad at a "friend" - 11 new posts
Started 1 week, 1 day ago (2009-11-05 15:37:00)  by LionTigerBear
She sounds well-meaning and lonely but kind of self-absorbed. I'm so sorry that you got such a tough diagnosis for your daughter. That is so hard.
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Started 1 week, 1 day ago (2009-11-05 15:12:00)  by EJP
my son's anxiety really holds him back - it is, in my opinion, one of the biggest issues that he grapples with - he is only 6 and so, we have been reluctant to pursue meds....that being said, has anybody had any success stories with or without meds for a young child with HFA? (thinking naturopathic, etc.).
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Started 6 days, 22 hours ago (2009-11-07 17:02:00)  by askew
I have not used it, but I have heard great things about it from people on another list serve I am on. I can also tell you that my 3 year old has his own iPhone and has for over a year. (it's an older version we have him when we upgraded) He can work it better than my husband. He can navigate all the menus well, select and play different games. Find the movies we have loaded on it and play them. ...
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Started 4 days ago (2009-11-10 14:11:00)  by BookGoddess
I don't see huge red flags in your post. If you are truly worried you can always call your state's Early Intervention or Child Find office to get a free evaluation. The red flags to me would be if she doesn't point things/people/items to get your interest, not bringing anything to you to share her interest in the item, not nodding or shaking the head for "yes" or "no", lack of emotional ...
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Started 1 week, 1 day ago (2009-11-05 18:37:00)  by mommy2maya
I had the same thing happen with my first grader as well. We are doing outside therapy though. However, we are in PA, where children with delays are covered under medicaid, which covers all copays.
Thread:  Show this thread (10 posts)   Thread info: getting my son to qualify Size: 199 bytes
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