Newly Diagnosed With Interstitial Cystitis | Forum profile

I agree with Donna. I would call on Monday morning her Dr. and see what could be done. I wish her Mother lasts of luck and pain free soon. DIAMIC65

Thank you curlycue,music lover, and statesboro.It's nice to meet you all. I was going to take both Cystoprotek and Elmiron as well but,I read that Cystoprotek has shellfish extract (or something along those lines) and I have a mild allergy to it.I'm probably being overly cautious but,I am scared to try it.I know I probably should just to see if anything happens.

Please be carefull when she increases the dose. Get the doctor's OK before doing so. I know what it did to me with only 25 mg's. Used it one time only. That was enough to convince me other wise.

Still no diagnosis Two more doctors I've seen,a psychiatrist said that is due to stress and prescibed me cipralex,and another urologist said that I should try oxybutin. Has any of you guys tried either or both together,and if you have what is your opinion and results? thanks, Marios.

You've found the right place. Have you had a cystoscopy or a hydrodistention? A cystoscopy is when a camera is placed into your bladder via your urethra to look into your bladder to see what is going on. A hydrodistention is when your bladder is filled up with saline solution. While this is going on, this is done under general anasthesia because it is very painful. Blowing up your bladder with the saline solution promotes healing for...

Hi Bri, It's crazy! I'm going to talk to my uro and give PT a try to loosen those pelvic muscles...the heating pad just isn't enough right now! This aching pain is way worse then the pain I feel while peeing or after! Have you tried any pain meds that have worked? Thanks for confirming this is in fact "normal" haha best wishes, and happy turkey day! xo, kate

Hi Littlewun, I've been on the Elmiron for almost 2 months. Nothing miraculous to report yet. I did try it years ago for 4-5 months with no positive change, but I saw Dr. Parsons back in late July for my sweet little daughter whom he diagnosed with mild IC. He started asking me some questions about my IC and I told him I had been on Elmiron for 4-5 months with no change. He recommended I go back on it and felt that I very well might have...

It can be tested by using a specific urine culture, swab tests, or blood tests. I've been looking into it a lot though and think even if I could get a dr to test me for it it wouldnt be accurate since I've been on ABs in the past two months and am still on them. I asked my uro that says I have IC about it and she said she didn't test for that kind of thing and was kind of like whatever you have PBS lets get this going so I can...

You are welcome! I'm sorry you're on the boards. I was diagnosed in October and, since starting meds and the diet I've been much better. Some days, I even feel like my old self again, so don't get too discouraged. I know it is hard especially the very beginning. I did the urodynamics and they cysto/hydro. Made it through both and you will make it too. Don't give up!

I think there's some debate about whether the trigger type foods could still be hurting the bladder - even when you're in remission. I've been eating whatever I'd like for several years now with no ill effects at all. (Did NOT start doing that until I was pretty much symptom free - I totally did the IC diet before that.) Depends who you talk to on whether or not they think it's advisable or not. It's very...