|
More site info...
Elmiron For Interstitial Cystitis IC/PBS | Forum profile
|
|
Forum profile page for Elmiron For Interstitial Cystitis IC/PBS on http://www.ic-network.com.
This report page is the aggregated overview from a single forum: Elmiron For Interstitial Cystitis IC/PBS, located on the Message Board at http://www.ic-network.com.
This forum profile page summarizes the general forum statistics such as: Users Activity, Forum Activity, and Top Authors, which are reported in either a table or graph below for a given reporting time period.
Additional forum profile information for "Elmiron For Interstitial Cystitis IC/PBS" on the Message Board at http://www.ic-network.com is also shown in the following ways:
1) Latest Active Threads
2) Hot Threads for Last Week
Warning: These statistics are generated using 'best efforts' and can experience delays and reporting errors at times. Please note that such statistics do not constitute a forum's popularity and/or exact posting volumes at any given reporting period.
|
|
|
|
|
Posting activity on Elmiron For Interstitial Cystitis IC/PBS:
|
|
Week
|
Month
|
3 Months
|
|
Threads:
|
11
|
53
|
152
|
|
Post:
|
51
|
208
|
504
|
|
|
Elmiron For Interstitial Cystitis IC/PBS Posting activity graph:
|
Top authors during last week:
user's latest post:
Frustrated with Elmiron,...
Published (2009-12-01 15:44:00)
When I had my Cystoscopy , the Urologist gave me 3 Bactrim DS Tablets for any infection that "might" occure from the procedure.
user's latest post:
Question re: Dr. Parsons &...
Published (2009-12-04 10:42:00)
Hi Amylynn~ Thanks for your reply! I would love to hear what he has to say to you. You know what? Another gal on the boards named Jill also has an appt. with him this same day! Maybe you two will run into each other! So you had to keep a voiding log for 3 days? What did this consist of? Is it to see how many times a day you pee or to see how much volume you pee out? Please keep me posted on how it goes! I'm excited for you!! Hope all goes...
user's latest post:
Frustrated with Elmiron,...
Published (2009-12-01 09:08:00)
That is too bad Glenda. I really feel like it helps me.
user's latest post:
Frustrated with Elmiron,...
Published (2009-12-01 15:31:00)
Musiclover- Thanks for the information! Do you start the macrobid before or after the instill? How often do you get the instills?
user's latest post:
Frustrated with Elmiron,...
Published (2009-12-01 15:38:00)
I did one round of instills, one a week for six weeks. I took one macrobid as soon as they finished the instill, or usually within a few minutes at least, to ward off any UTIs from catheterization. Maybe your doc would be willing to give you an RX for one pill each time.
user's latest post:
Elmiro & platelets ?
Published (2009-11-30 01:40:00)
Hey there, I have ITP also. The elmiron is a blood thinner so therefore causing problems with the thinning of your blood, which may have worsened your ITP. If you can stay away from other things that cause blood to thin, like grapes, wine (I know we can not drink this anyway...but some may..so figured I mentioned it), asprin, advil, ibiprofin, vinegar (we can not take this anyway, but vinegar is a blood thinner).... IF you can eat organic...
user's latest post:
Frustrated with Elmiron,...
Published (2009-12-01 09:11:00)
I use a single pill holder for all of them. I usually don't forget to take any of my meds- the Elmiron I take twice daily first thing when I get up and within an hour of going to bed.
user's latest post:
Question re: Dr. Parsons &...
Published (2009-12-04 12:51:00)
Quote: Originally Posted by jvr Yes, isn't that funny we have an appointment on the same day?! They got a cancellation for their 11:00 appointment so we got moved up to that time. I'm wondering if Amy has the 11:30 appointment? Too funny. Amy, one thing that Peggy told me is that if your insurance will not pay for the appointment, make sure you tell Dr. Parsons you're a cash patient so he knows to be a little more careful with...
user's latest post:
Question re: Dr. Parsons &...
Published (2009-12-04 17:59:00)
Hi Amy, I'm envious that your insurance will cover it It's expensive to drive down there and stay in a hotel and pay for the appointment too. I guess it's well worth it in the end if he can help my daughter and I feel better Definitely lets compare notes next week. We'll be driving half way home after the appointment and returning home on Wednesday afternoon. We'll have our lap top so hopefully I can still use that to...
|
|
|
|
Latest active threads on Elmiron For Interstitial Cystitis IC/PBS::
Started 1 day, 21 hours ago (2009-12-04 10:38:00)
by amylynn75
Hi Lttlewun,
I think if you have an HMO you will need a referral through your PCP before you can see any specialist (I'm assuming you had to get one to see the Uro you see now, unless he/she is your PCP?). Anyway, I have been seeing a Uro who actually recommended me to see Dr. Parsons. I called about 2 months ago and and was told by Dr. Parson's office that the first available appt was in...
Started 3 weeks, 3 days ago (2009-11-11 15:47:00)
by vm
I bet that is very frustrating. I remember wishing it didn't take so long to work when I was in the early months, too. Tough decision of whether or not to forge on with it, huh?
Started 1 week, 5 days ago (2009-11-23 11:47:00)
by leelee88
I am sorry you are dealing with this.. I am glad you made an appt to see your Dr..
Started 6 days, 21 hours ago (2009-11-29 10:28:00)
by ICNDonna
I've never heard of it, but am glad you will be following up to identify the problem.
Sending warm well wishes,
Donna
Started 1 month ago (2009-10-31 17:08:00)
by purpletomorrow
My IC dr says I can take all three at once, before bed, if I haven't eaten for 4 or 5 hours. So, early dinner, late bed, pills before bed. I think this is also good because it sits in my bladder for 6 hrs instead of getting peed out all day.
Started 11 months, 1 week ago (2008-12-28 11:52:00)
by vm
Did it just start or has it been happening since you started Elmiron?
I'd definitely talk to your uro - see if he can rule out other causes as well. That seems like a lot of hair loss to just be the Elmiron, but I guess it certainly could be. If it is the Elmiron I think the only way to make it stop would be to stop the med, unfortunately. Some people here have said they stopped it for 2 ...
Started 1 week, 4 days ago (2009-11-24 12:19:00)
by ICNDonna
Is the elmiron keeping your symptoms under control? Sometimes we have to make some difficult decisions. I have heard, but don't have any confirmation at all, that taking a break from the elmiron helped some people. I also know several people who stopped taking it due to hair loss.
I had a different side effect (headache) and had to stop taking it.
Donna
Started 1 week, 6 days ago (2009-11-23 07:38:00)
by tigger_gal
urgh the endless loop of office stupidity, hugs, hope you get it soon.
Started 2 weeks, 2 days ago (2009-11-20 05:56:00)
by vm
I have been on since 2001 and haven't experienced that. I hope others will chime in, too.
I do wonder if the diuretic is playing a role in your symptoms returning.
|
|
Hot threads for last week on Elmiron For Interstitial Cystitis IC/PBS::
Started 3 weeks, 3 days ago (2009-11-11 15:47:00)
by vm
I bet that is very frustrating. I remember wishing it didn't take so long to work when I was in the early months, too. Tough decision of whether or not to forge on with it, huh?
Started 1 day, 21 hours ago (2009-12-04 10:38:00)
by amylynn75
Hi Lttlewun,
I think if you have an HMO you will need a referral through your PCP before you can see any specialist (I'm assuming you had to get one to see the Uro you see now, unless he/she is your PCP?). Anyway, I have been seeing a Uro who actually recommended me to see Dr. Parsons. I called about 2 months ago and and was told by Dr. Parson's office that the first available appt was in...
Started 6 days, 21 hours ago (2009-11-29 10:28:00)
by ICNDonna
I've never heard of it, but am glad you will be following up to identify the problem.
Sending warm well wishes,
Donna
Started 1 week, 4 days ago (2009-11-24 12:19:00)
by ICNDonna
Is the elmiron keeping your symptoms under control? Sometimes we have to make some difficult decisions. I have heard, but don't have any confirmation at all, that taking a break from the elmiron helped some people. I also know several people who stopped taking it due to hair loss.
I had a different side effect (headache) and had to stop taking it.
Donna
Started 1 month ago (2009-10-31 17:08:00)
by purpletomorrow
My IC dr says I can take all three at once, before bed, if I haven't eaten for 4 or 5 hours. So, early dinner, late bed, pills before bed. I think this is also good because it sits in my bladder for 6 hrs instead of getting peed out all day.
Started 1 week, 5 days ago (2009-11-23 11:47:00)
by leelee88
I am sorry you are dealing with this.. I am glad you made an appt to see your Dr..
Started 11 months, 1 week ago (2008-12-28 11:52:00)
by vm
Did it just start or has it been happening since you started Elmiron?
I'd definitely talk to your uro - see if he can rule out other causes as well. That seems like a lot of hair loss to just be the Elmiron, but I guess it certainly could be. If it is the Elmiron I think the only way to make it stop would be to stop the med, unfortunately. Some people here have said they stopped it for 2 ...
|
|
Size: 1,593 bytes
