Lupus | Forum profile

you over did it, now you are paying for it would be my guess. take it easy and tell your rheumy everything you did and what has happened as a result.

Hey everyone! Just wanted to wish you all a happy Thanksgivinga and hope everyone has a wonderful and pain free day!

Hi! Britt(?) and everyone, I, too, will have another MRI/ MRA and my first spinal tap the next time I get sick enough for a hospitalization. Which was thought a "reasonable" deal by by neurologist who I liked alot, and said, just come and see him when I want to, and implied I was in good hands with my rheumy. They are both affiliated with our big university teaching hospital which has a renowned lupus research clinic. My neurontin...

I recently wrote about being put on Lyrica for fibro and how much it helped me. I spent a week feeling more normal than I have since I was diagnosed 5 years ago. The holiday wore me out and I admit that I overdid it. Friday I started hurting all over but pushed myself to get the house decorated for Christmas. After the 7th of Dec I won't be able to do much because of my foot surgery. By yesterday I was in bed, barely able to get around....

Every case of mctd is different and so is coping with the effects of it.  My case hit me very hard.  Lupus symptoms were fatigue, joints, and cognitive problems.  Scleroderma -  primarily raynauds.  Polymyositis hit me the worst and crippled me.  Once under control I worked very hard to recover and now lead an active life even though I am almost 70.    You are young and...

Thank you for your imput. I do have guidance, but like me they arent Lupus experts. Although I've done a bit of research, I know I still have a lot to learn. I don't want you to think I just slopped words on a survey, and Im sorry if I for some reason offended you.   I will take all your imput into concideration, but the survey source im using may not let me change a lot of things.   I do appreciate all...

thanks redrose! I really appreciate you sharing your memories of what you've been told before....I'm not looking forward to a spinal tap, but will go that route if necessary. I do plan to call another neuro today to set up an appt...my PCP recommended one to me.

Hi,   I'm sorry to hear your wife is in so much pain. I'm sure you will get several different answers on this question since we are all different.   My headaches are usually one sided. The whole side of my head will hurt. Even my face, ear and neck. After, my head will be sore to the touch.   Other times the back of my neck will hurt along with the back of my head.   I hope your wife feels better...

i will step out on a different not the kidneys regulate your blood pressure..is she monitoring her blood pressure at home? i too have bleeding from my kidneys fro vasculitis and it had increased my blood pressure..just have her monitor her blood pressure at home go and get her a blood pressure machine..not the wirst one either you can get digital ones that go on the arm.. had my dad not given me his blood pressure machine one night i never...

Sounds like you've made a homemade magic bag Suetoo...I was just given a magic bag and when you heat it up in the microwave it lets off a nice steamy heat for 30min or so...really nice around the neck, on the belly or wherever...haven't had it more than two days now..the one I was given lets off a nice lavendar scent. Fancy stuff. I was blessed by a friend who heard I was cold. Nice, eh? I wonder, could you use popcorn kernels? Oh...