Lupus | Forum profile

My attorney in the end felt it went well. I wasn't nervous at all (thank goodness). There was a voc. and DR. there. the judge did ask the DR. if what I described as my symptoms, be due to the Lupus/fibromyalgia and other conditions I have, DR. said yes. The Judge asked if my list of symptoms would cause me to miss work more than 2-3 days a month, DR. sad yes. My attorney asked ...

Hi Everyone! I know this has been a topic of discussion many times but I was wondering...how do you deal with other people who dont have lupus, and dont really know what its like? I am in college and it seems that obviously most people forget that I have a disease so people are asking me to go out at night or kinda make fun of me sleeping all the time. I am not really sure how to react ...

ok so...i was on my computer got up and had sudden pain in my right side. i can't tell if its kidney height or just under it. Its worse when i cough or move pretty much, i have no reg doc so im on no meds, i take up to 3 aleve or 6-8 tylenol a day depending on which the house has, its normally aleve though. is this something i should sleep off, or call someone to go to the er, i haven't...

Hi everyone, Just got back from an emergency visit to my rheumy. I woke up at 3am with such muscle spasms, hives everywhere, swelling. When I called to see what i could do to relieve the symptoms the doc had me come in. This is the first time she was able to see me in this bad of shape. Back of prednisone (oh yuck). She drew blood and did a urinalysis. I have no official...

Hi everyone, I was just wondering if anyone has had phoresis treatment for SLE? I'm going to be admitted for a week and receive it for 5 days and then my cytoxan again right after. Just curious??? Thanks

They say when you start seeing rainbows (halos)around streetlights/headlight its not a good thing. Its supposed to be caused when light is not filtering in through your eyes properly (though that information is not enough to pinpoint the cause.). I recently found that I see floaters a lot, outside in the daylight it always looks like there is ash falling (or little white lights.). The ...

Barb, I'm so sorry you're feeling so bad and that your life is so difficult for you. Every time I read your posts or talk to you I can tell that you hold out no hope for your future and although I hardly know how to respond to that, I so admire to strength and courage. You're always here for all of us even though you hardly feel good enough to get on the computer. And when I ask what I...

I know this is a fairly vague question, but I was just curious as to what signs/symptoms any of you have experienced as far as kidney involvement with the lupus. Thanks MJ

Hi everyone, I've been lurking for a while and decided to introduce myself. I am an almost 40 year old "girl" diagnosed with lupus when I was only 23 yrs. old. I have four kids ages 11,10,9 and 8 (youngest is the only boy). I have a pretty crazy life with all the kidsa and adding to it my youngest has a brain injury from having meningitis when he was only 3mos. old. I came here to see ...

Hi everyone. I just have a quick (hopefully) question for some of you. We believe my husband has restless leg syndrome/periodic limb movement disorder (yes, it really is a disorder :O). We share a queen size bed. My husband jerks, kicks, and thrashes every 20-30 seconds for most of the night, especially in the earlier stages of sleep. It drives me crazy. Just when I initially ...

I know all about the moon face from steroids but I was wondering if anyone ever noticed days when you face just looks really puffy? It comes and goes. My Brother and sil say they notice it a couple times a week. Of course they think it's because I need to be up moving around when I'm sick and the laying around is making it puffy. I think they are full of **** as far as the reason goes.. ...

I just came from the pharmacy. they rejected my refill for generic brand prilosec. First it was Nexium, and then prilosec was the only thing medicaid would pay for. Now they have rejected this prescript ion also. I have a huge hiatal hernia, and get heartburn drinking a glass of water. Acid reflux is sometimes a daily/nightly happening. Have any of you had these same ...

I'm not even sure why I feel depressed but I'll tell ya what happened. First my lung function used to be 23% now it's up to 29%. I was thrilled. He was not. He said I need a lung transplant. I have to go to hospital tomorrow for a ct scan of my lungs. He said if there is any lupus or scleroderma or anything in there he will see it. He's trying to hook me up with a transplant team in OKC...

Well, I actually just got sprung from the hospital today! I went to get a procrit shot on Wednesday and met up with Dr. Creighton in the parking lot and she sent me straight to the hospital! I was given 80mg of lasix twice a day! From Wednesday afternoon to Friday morning I lost 20 pounds! I can breathe much better! I also had to have IV antibiotics for my leg infection! In ...

For the past week I have barely been able to hear out of my left ear. This has happened before after a really bad sinus infection, my ear became completely clogged by wax. I used similasan wax remover and it cleaned out all the wax. This time, however, I didn't even have a cold. I used the similasan again, and everything came out clear. It hurts, but not real bad; more annoying ...

I'm wondering if its hard to dx lupus? I've heard its hard to dx fibro and they have to rule out other things first, is this true with lupus? I've been jerked around by drs so long I'm afraid of another run around. Is there an actual test for lupus, how do they determine this is what you have? Back to Top

Hi Everyone! I know this has been a topic of discussion many times but I was wondering...how do you deal with other people who dont have lupus, and dont really know what its like? I am in college and it seems that obviously most people forget that I have a disease so people are asking me to go out at night or kinda make fun of me sleeping all the time. I am not really sure how to react ...

Hi everyone. I just have a quick (hopefully) question for some of you. We believe my husband has restless leg syndrome/periodic limb movement disorder (yes, it really is a disorder :O). We share a queen size bed. My husband jerks, kicks, and thrashes every 20-30 seconds for most of the night, especially in the earlier stages of sleep. It drives me crazy. Just when I initially ...

I'm interested in other peoples coping techniques concerning raising a child/children on your own while sick, especially keeping up with school. I am raising my 7 year old daughter alone. She is scheduled to visit her father 2 hours on Monday and Wednesday, along with every other Saturday. The lack of alone/adult time aside, I don't know how I am going to make it through...

I was just wondering if lupus can cause weight gain? Not meds just the lupus itself. I know that it seems that over the past 4 yrs now since I've been feeling relly bad I've gained alot of weight. I know it could be due to less activity, I was just wondering. I read that you tend to lose weight with flares. Back to Top