Clinical Trials | Forum profile

Thanks ladies for the support. After going to the bathroom 37 times in a 24 hour period and vommiting they took me off the drug for 10 days. After one missed dose I feel like a new person, almost back to normal. This will at least get me through the holidays. I plan to try it again. They are not sure yet if I will challenge the dose a gain or since my reaction was so violent start me at a lower dose. Steph, what kind of changes did they make...

Re: Neratinib Clinical Trial Hi Kriss - Nice to see you, but not your symptoms. At least you must be getting the anti-cancer effect along with the side effects. Let us know how the rest and restart goes. Perhaps your diet must be adjusted as well. The gals on Tykerb found that to be usually the case. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to...

Re: Neratinib Clinical Trial Kriss, Hang in there, hopefully they will be able to find the right dose for you. I remember last year at San Antonio when they reported the results out on the initial Neratinib trials, diarrhea was universal (In the study participants, not among the people hearing the report) Afterwards Dr. Love commented in the Alamo Mentor session that it sounded like prep for a colonoscopy! But interestingly enough NOBODY had...

Kriss, When I was on Tykerb, I had problems, but they were not as severe as yours. I learned to take two imodium along with one Lomotil as the very first sign of a cramp. I had no diary and went on a low fiber diet. I could not eat fresh fruits and veggies. If you Google "low fiber" diet you will find some helpful information. The only green vegetables I could eat without problems were green beans and asparagus. I also...