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General Message Board for Ankylosing Spondylitis and Related Diseases | Forum profile

Forum profile page for General Message Board for Ankylosing Spondylitis and Related Diseases on http://www.spondylitis.org. This report page is the aggregated overview from a single forum: General Message Board for Ankylosing Spondylitis and Related Diseases, located on the Message Board at http://www.spondylitis.org. This forum profile page summarizes the general forum statistics such as: Users Activity, Forum Activity, and Top Authors, which are reported in either a table or graph below for a given reporting time period. Additional forum profile information for "General Message Board for Ankylosing Spondylitis and Related Diseases" on the Message Board at http://www.spondylitis.org is also shown in the following ways:

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Site: General Message Board for Ankylosing Spondylitis and Related Diseases  - General Message Board for Ankylosing Spondylitis and Related Diseases (site profile, domain info spondylitis.org)
Title: General Message Board for Ankylosing Spondylitis and Related Diseases
Url: http://forums.spondylitis.org/ubbthreads.php?ub...
Users activity: 34 posts per thread
Forum activity: 127 active threads during last week
 

Posting activity on General Message Board for Ankylosing Spondylitis and Related Diseases:

  Week Month 3 Months
Threads: 127 439 1,310
Post: 398 1,425 4,417
 

General Message Board for Ankylosing Spondylitis and Related Diseases Posting activity graph:

Posts by:  day  week  month 

Top authors during last week:

Name
Posts
Banana
24
user's latest post:
I'm Back! Update on my no...
Published (2009-12-29 04:46:00)
We are learning more and more about AS daily, and as you said your disease was mild by the time you started the diet. I just wanted to make sure there wasn't any confusion about your results. Like I said from my 20's till 40's my disease came and went and I frequently thought various diets, "cured" me until it returned 6 months or a year later. Good luck, why don't you test it and eat some starch?
mariposa
24
user's latest post:
This is kinda weird but cool!!!...
Published (2009-12-28 20:12:00)
Mark, you are too funny!
lilbluesmurf
24
user's latest post:
What about a Second opinion?...
Published (2009-12-27 09:02:00)
OMG yes! My hands swell when I really use them for work and are sore the next day. I just broke a glass from a glass set my daughter bought us for xmas. Having matching kitchenware, mainly my glass collection is a pet peeve of hers. I am alway breaking glass or chipping dishes due to my hands just dropping stuff. To the point where I am going to buy strictly plastic. The pain with me is also in the tendons of the hands. Really feel pain in my...
KellyChristal
21
user's latest post:
read this article from the UK -...
Published (2009-12-28 20:59:00)
Nice. Love people given AS a bad name.
JenInCincy
19
user's latest post:
Anything holding you back? -...
Published (2009-12-29 08:55:55)
With all due respect, have you thought about placing hope in a good rheumatologist and physical therapist?
winelover
18
user's latest post:
wondering if i have AS -...
Published (2009-12-28 20:56:00)
 Originally Posted By: mjk ....... i'll probably be seeing a rheumatologist in the near future. that sounds like a good idea make a list of all your symptoms, even if you think they are not related, including problems with eyes, where the pains are and if they happen at a certain time
mrye4709
17
user's latest post:
Do not have AS - Spondylitis...
Published (2009-12-28 07:04:00)
I have been pushed around by so many drs. It's like they don't listen or have to have a picture in front of them that shows something. I have a decent one now, only problem is I wish we would move a little faster on treatment. I have often thought about trying another, but at least this one has tried and not sheved me out the door saying fibromyalgia. I think some of us just don't have enough markers in our blood and on films...
sequoia
15
user's latest post:
Anything holding you back? -...
Published (2009-12-28 19:55:00)
hi book, we have ALL been there. never give up and never give in. life here is nothing compared to the promise, but we need to live here all our natural days. write here every day, or every few hours. tell us more about your life, do you have siblings that you used to be close to? do they live far away? what about friends? wish i had a buck for every dead end job i had in my life. guess what. everything we do and everything we are, and every...
aslee9
13
user's latest post:
What about a Second opinion?...
Published (2009-12-27 12:33:00)
Most definitely the hands! The pinky finger on my right hand is bent straight down at the end joint. My rheumy paid particular attention to it. But my blood word is negative for rheumatoid. I've had five surgeries on my hands (trigger finger releases) which is ligament (or tendon) can't remember which, that snags on sheath running to fingers. I think constant inflammation caused mine to swell and then snag, requiring surgery to...
Jean Angel
13
user's latest post:
Son of AS patient needs support...
Published (2009-12-28 19:19:00)
SO sorry you are on the other end of this terrible disease. I am 49 and was put on disability becaue of AS and the pain I am going through. I am basically in a wheelchair. Just one question-does your Dad have Humira or Enbrel treatments which are shots? Some of us have had those. I can say that if it were not for the Lord who guides me daily-that this disease would enable me to have no joy at all. It is a very painful type of arthritis and we...
 

Latest active threads on General Message Board for Ankylosing Spondylitis and Related Diseases::

General Message Board for Ankylosing Spondylitis and Related Diseases
Started 2 days, 10 hours ago (2009-12-28 16:38:00)  by KellyChristal
BR, I had a tooth that was cracked, and it hurt so badly that I had to have it pulled. They sedated me and it was pulled in about 5 seconds. Is there any way you can have that done to get rid of that pain? It took about a month to heal completely, but now my mouth is free of pain. I hope that is an option. I will eventually have an implant put in, but for now it is fine just being out of ...
Thread:  Show this thread (8 posts)   Thread info: Anything holding you back? - Spondylitis Association of America - Message
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Started 2 days, 6 hours ago (2009-12-28 20:35:00)  by winelover
Originally Posted By: mjk ....... they drew blood to test for arthritis and found nothing....... ....... i get blurred vision once every couple months or so........ do you know what they were testing for? inflammation markers? rheumatoid factor? HLAB27? re the eyes, I suggest you get a referral and go to an opthalmologst next time they are giving you problems
Thread:  Show this thread (7 posts)   Thread info: wondering if i have AS - Spondylitis Association of America - Message
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Started 2 days, 5 hours ago (2009-12-28 20:59:00)  by KellyChristal
Nice. Love people given AS a bad name.
Thread:  Show this thread (4 posts)   Thread info: read this article from the UK - Spondylitis Association of America -
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Started 1 week ago (2009-12-23 04:33:00)  by hydropsyche
Has anybody had success with this diet who didn't have intestinal problems?
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Started 5 days, 6 hours ago (2009-12-25 19:59:00)  by sequoia
thanks, byron's mom. you came to the right place, we support each other here. i don't take enbrel, but others do and they will respond to your questions. just know, we care and want you to write anytime you want to know what has happened to us. thanks also for asking for help on behalf of your son. having families involved and be understanding and supporting, is excellent. have byron write ...
Thread:  Show this thread (14 posts)   Thread info: Need Advice...Worried Mom... Enbrel - Spondylitis Association of America -
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Started 2 days, 16 hours ago (2009-12-28 10:13:00)  by JenInCincy
It was recorded directly into your phone? How odd! Any chance you were in a drug/pain induced haze (happens to the best of us lol!) and downloaded it and don't remember? Or could someone in your family have borrowed your phone and recorded this unbeknownst to you? I searched on various portions of the statement and can't find any reference to this as a "thing" that has been published anywhere ...
Thread:  Show this thread (14 posts)   Thread info: This is kinda weird but cool!!! - Spondylitis Association of America -
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Started 2 months ago (2009-10-31 00:11:42)  by winelover
it works for some but not others - all you can do is try it and see what happens
Thread:  Show this thread (16 posts)   Thread info: Low Starch Diet - Spondylitis Association of American - Message Boards &
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Started 3 days, 17 hours ago (2009-12-27 09:02:00)  by lilbluesmurf
OMG yes! My hands swell when I really use them for work and are sore the next day. I just broke a glass from a glass set my daughter bought us for xmas. Having matching kitchenware, mainly my glass collection is a pet peeve of hers. I am alway breaking glass or chipping dishes due to my hands just dropping stuff. To the point where I am going to buy strictly plastic. The pain with me is also in ...
Thread:  Show this thread (16 posts)   Thread info: What about a Second opinion? & Do your hands hurt? - Spondylitis
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Started 2 days, 13 hours ago (2009-12-28 12:52:00)  by JenInCincy
Hi, Rob. You're among friends here. I'm so sorry to hear about your father's long history of health problems. It's obvious that it's taken quite a toll on you, too, which is sad to see. You probably already know, since you've experienced his alcoholism, that you can do little to help him unless he is willing to ask for/accept help. If you haven't seen him much in the past year, he may not ...
Thread:  Show this thread (5 posts)   Thread info: Son of AS patient needs support - Spondylitis Association of America -
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Hot threads for last week on General Message Board for Ankylosing Spondylitis and Related Diseases::

General Message Board for Ankylosing Spondylitis and Related Diseases
Started 1 week, 1 day ago (2009-12-22 17:01:00)  by winelover
Originally Posted By: wegajane ... if it sounds like AS enough that I should ask to be tested for AS......... yes! any chance you can get to see a rheumatologist?
Thread:  Show this thread (19 posts)   Thread info: AS likely? Or am I nuts? - Spondylitis Association of America - Message
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Started 1 week ago (2009-12-23 04:33:00)  by hydropsyche
Has anybody had success with this diet who didn't have intestinal problems?
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Re: Do not have AS - 18 new posts
Started 4 days, 16 hours ago (2009-12-26 10:10:00)  by sequoia
hi david, good luck, and remember mri's are not always inconclusive. just keep track of your symptoms and pain levels in the daily diary i always talk about. you do have something! were you HLA B27 positive? have you had iritis? don't recall your story personally, but keep track. you should not just be dismissed on the basis of one mri. mostly the history and the pain location are front ...
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Started 3 days, 17 hours ago (2009-12-27 09:02:00)  by lilbluesmurf
OMG yes! My hands swell when I really use them for work and are sore the next day. I just broke a glass from a glass set my daughter bought us for xmas. Having matching kitchenware, mainly my glass collection is a pet peeve of hers. I am alway breaking glass or chipping dishes due to my hands just dropping stuff. To the point where I am going to buy strictly plastic. The pain with me is also in ...
Thread:  Show this thread (16 posts)   Thread info: What about a Second opinion? & Do your hands hurt? - Spondylitis
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Started 6 days, 7 hours ago (2009-12-24 19:15:00)  by mom2many
Ugh! I hope it gets better quickly.
Thread:  Show this thread (15 posts)   Thread info: Worst Christmas ever so far...... - Spondylitis Association of America -
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Started 5 days, 6 hours ago (2009-12-25 19:59:00)  by sequoia
thanks, byron's mom. you came to the right place, we support each other here. i don't take enbrel, but others do and they will respond to your questions. just know, we care and want you to write anytime you want to know what has happened to us. thanks also for asking for help on behalf of your son. having families involved and be understanding and supporting, is excellent. have byron write ...
Thread:  Show this thread (14 posts)   Thread info: Need Advice...Worried Mom... Enbrel - Spondylitis Association of America -
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Started 2 days, 16 hours ago (2009-12-28 10:13:00)  by JenInCincy
It was recorded directly into your phone? How odd! Any chance you were in a drug/pain induced haze (happens to the best of us lol!) and downloaded it and don't remember? Or could someone in your family have borrowed your phone and recorded this unbeknownst to you? I searched on various portions of the statement and can't find any reference to this as a "thing" that has been published anywhere ...
Thread:  Show this thread (14 posts)   Thread info: This is kinda weird but cool!!! - Spondylitis Association of America -
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Started 1 week, 1 day ago (2009-12-23 00:36:00)  by winelover
yes - see towards the bottom of this page: http://www.spondylitis.org/about/complications.asp x
Thread:  Show this thread (13 posts)   Thread info: heart complications from spondy? - Spondylitis Association of America -
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Started 1 week ago (2009-12-23 16:02:00)  by NotMeToo
You should call your doctor now. This is a question that s/he should be happy to answer over the phone. The answer is probably going to depend on the type and location of surgery, as well as your overall health. I know that I would be mad with myself if I waited until the scheduled appointment only to be told that I needed to be off the TNF longer then I expected before surgery. My daughter ...
Thread:  Show this thread (11 posts)   Thread info: Surgery early Jan. & Need some Info. - Spondylitis Association of America -
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Re: Merry Christmas. - 10 new posts
Started 1 week ago (2009-12-23 20:40:00)  by mrye4709
Merry Christmas Cookie!!!! Hope you are doing well.
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