For Parents and Teens | Forum profile

I hope the doc will clear things up - even if it's an infection it needs treatment! I know from experience with a chronic rash (derm doesn't know what it is.....) that sometimes if you scratch a rash you can spread it due to increasing the local irritation/inflammation. Maybe that's what happened to your son? Let us know what happens!

I am in the thread years ago, but I think it is a truly wonderful book to fill parents into the family of diseases.

Take him! I think with your history and a mother's intuition it would be a good time to go. But, go to a pedes rhumy. They are quite different. In children, they like to treat it aggressively relatively to the symptoms. Sometime if caught early enough they can put them into a medical remission. Also, it will lessen future issues if they start a treatment regime. If your son is still ...

Unfortunately this is pretty typical behavior for teenagers with chronic disease! Kids don't want to be different from their friends and oh by the way, didn't you know they are invincible and immortal? We have entire teams of people at my hospital working on innovative ways to manage these kids, teach them to manage THEMSELVES and take their various diseases (mostly stuff like asthma and ...

For a 14 year old you seem quite informed about your potential treatment options(and equally able to express yourself without having to resort to "dope, cool, awesome, etc." every two seconds). Frankly I'm impressed. Make sure you keep that mindset, you are the best possible advocate for your health possible since you understand exactly what you're going through.

I have 2 children with spondy. I do not have experience with TNFs, but I do know most peds Rhumy want to be fairly aggressive in their treatment plans. The hope at lease with the peds patients is to shut down the disease and put them in remission. I don't know the percentage, but some kids do go into remission.

I can feel your pain. It was so hard to see my son limp around prior to a dx. I hope you can find a dx soon. We brought our son to college a week or so ago. He's to manage his enbrel and keep it stored in the dorm fridge. I'm worried about something going wrong w/ the fridge and losing the medicine. Has anyone had experience with insurance replacing damaged enbrel?