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Newly Diagnosed | Forum profile
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Forum profile page for Newly Diagnosed on http://www.cysticfibrosis.com.
This report page is the aggregated overview from a single forum: Newly Diagnosed, located on the Message Board at http://www.cysticfibrosis.com.
This forum profile page summarizes the general forum statistics such as: Users Activity, Forum Activity, and Top Authors, which are reported in either a table or graph below for a given reporting time period.
Additional forum profile information for "Newly Diagnosed" on the Message Board at http://www.cysticfibrosis.com is also shown in the following ways:
1) Latest Active Threads
2) Hot Threads for Last Week
Warning: These statistics are generated using 'best efforts' and can experience delays and reporting errors at times. Please note that such statistics do not constitute a forum's popularity and/or exact posting volumes at any given reporting period.
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Posting activity on Newly Diagnosed:
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3 Months
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Newly Diagnosed Posting activity graph:
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Top authors during last week:
user's latest post:
Newly diagnosed with the S945L...
Published (2009-01-08 22:56:00)
Hi there. I am soooo glad I found this website and you all!! These last two days mine & my husbands heads have been whirling from the confirmed diagnosis of our littlest guy, Colin, born last August. So far he has no symptoms (Thank God!) but during his newborn screening, F508 was identified. The results from the newborn screening were sent to the wrong pediatrician's office for over a month before our doctor got them. And after 10...
user's latest post:
Newly diagnosed with the S945L...
Published (2009-01-09 00:02:00)
Nope, I've not heard of it, but wanted to welcome you to the site! ------------------------- Mother of two great kids ~ 20 and 22 years old, both w/CF normal sweat tests but genetic testing revealed two common CF genes ~ Delta F508 & R117H ~ full details on the first entry of my blog page Alyssa's Blog
user's latest post:
Newly diagnosed with the S945L...
Published (2009-01-09 08:18:00)
I would suggest posting to Steve from Ambry Genetics in the Ambry thread under the Family Section. He is very knowledagle & IF anyone knows ANYTHING about ANY CF mutations, he would. Just remember that its not written in stone, but is a "guide" of sorts only. Welcome to the site BTW! ------------------------- Melissa ~ 40 Year Young Gal; Mom & Wife at 30; Daughter, Sis, Cousin, Aunt, Niece, Friend & Awesome Person at...
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Latest active threads on Newly Diagnosed::
Started 1 day, 5 hours ago (2009-01-08 22:56:00)
by TeamColinD
Hi there. I am soooo glad I found this website and you all!! These last two days mine & my husbands heads have been whirling from the confirmed diagnosis of our littlest guy, Colin, born last August. So far he has no symptoms (Thank God!) but during his newborn screening, F508 was identified. The results from the newborn screening were sent to the wrong pediatrician's office for over a month ...
Started 1 week, 2 days ago (2008-12-31 15:32:00)
by duckfam
Hi everyone. My son is 11 years old and has struggled with asthma since he was a baby. He has had 5 sets of tubes in his ears, with his first ear infection at 1 week old. He has complained of stomach pains and has had reflux for years. However, he has no issues with failure to thrive. He weighed over 9 lbs at birth and now weighs more than I did when I got married. His feet are bigger ...
Started 3 months, 2 weeks ago (2008-09-24 18:08:00)
by kelliannesmom
Here is our history. My daughter, Kellianne, 9 years old was a sick baby. She has severe reflux as an infant, then had an intusseception & had emergency surgery at 17 months of age. She had a few colds that seemed to last forever, but we were assured she was fine. She has always had intestinal issues. She usually has to stop in the middle of a meal to use the potty. She was under the care of...
Started 1 week, 3 days ago (2008-12-31 00:14:00)
by bmombtoo
It does sound difficult. I have one child with diagnosed CF, and 2 with asthma. I also have respiratory problems and am being worked up for CF or something like it. My older boys wre three years apart. The youngest is nine yers younger than the middle boy. With the first two we lived at the doctor and it seemed I gave neb treatments to someone 24 hours a day. My youngest has been getting neb ...
Started 3 weeks ago (2008-12-19 22:54:00)
by Aricia
I am a new mum and we are waiting for the gene testing to come back for my 6 week old. He came up positive for one mutation in his newborn screening and had a borderline sweat test. Now, his bloods came back fine for his vitamins etc. but my question is about the loose or oily stools. I thought babies just had loose stools? How can you tell its oily or whatnot? My fellow sometimes poops ...
Started 1 month, 3 weeks ago (2008-11-18 20:05:00)
by JazzysMom
Now in Session! ------------------------- Melissa ~ 40 Year Young Gal; Mom & Wife at 30; Daughter, Sis, Cousin, Aunt, Niece, Friend & Awesome Person at Birth; CF Dx @ 7; CFRD; PA & MRSA; DDF508
Started 3 weeks, 1 day ago (2008-12-18 12:17:00)
by websterhome
Hello! I'm having a frustrating time dealing with our insurance company (Regence PPO) on covering the RSV antibodies called Synagis. Does anyone out there have a recommendation or experience in this area? We are just beginning the second & final appeal. An attorney I spoke with recommended providing the insurance company with lots of peer review literature, abstracts - as many articles as ...
Started 2 weeks, 6 days ago (2008-12-21 02:26:00)
by hmw
I will 1st apologize in advance for how long I know this will be. I need to get this all out to people that I know will understand and this is my first opportunity to do so... I am still just starting to come out of the early stages of shock, I think, after being told that my daughter has cf. At the time I was told, I knew nothing about it other than to associate it with severe lung ...
Started 2 weeks, 5 days ago (2008-12-21 13:41:00)
by tmdj06
For testing our younger son, the doctor wants to start with a stool sample. For anyone that hasn't done this, they give you little vials of chemiclas with a built in spoon so that you can scoop the "product" into the vial. Although this is incredibly icky, I can live with that part. My only question is, how do you scoop watery stool out of a diaper? The diaper is soaking it up and there's ...
Started 1 month ago (2008-12-08 02:55:00)
by JoannaGar19
I got the dreaded call when my son was about 3 months old. He tested positive at his newborn screening. I jumped online to see what it was and immediately went into shock. After a few hours of crying and making phone calls I called my local CF center to set an appointment. He had several tests done and according to the Dr. he has a very rare mutation that even he (and the other Dr.) couldn't tell...
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Hot threads for last week on Newly Diagnosed::
Started 1 day, 5 hours ago (2009-01-08 22:56:00)
by TeamColinD
Hi there. I am soooo glad I found this website and you all!! These last two days mine & my husbands heads have been whirling from the confirmed diagnosis of our littlest guy, Colin, born last August. So far he has no symptoms (Thank God!) but during his newborn screening, F508 was identified. The results from the newborn screening were sent to the wrong pediatrician's office for over a month ...
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