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OMG Katie, I can't believe it was Cooks. I find it strange that you can't see the other docs. They are a clinic but don't work like every other CF clinic we've gone to, as a collective practice. You only see one doctor, exclusively, unless it's urgent or you are admitted and your doctor is "off" or on vacation. That is one thing I found strange about the clinic. I don't even remember the names of the...

Liza, unfortunately it is Cook's that has kicked us out. There were other doctors that I have met during our span of 4 yrs going there that seemed really great but thanks to Dr. X I can not even see them. Thanks anyways. Sara, yes I would like more info on your doctor. It is Medical city that I mentioned that is supposed to be awesome. They don't take Chips insurance though. I am trying to figure how to get something else. All this...

can someone else post this on cysticfibrosis.com? for some reason it won't let me get on the website. i want everyone to be aware of this recall. FOR IMMEDIATE RELEASE January 6, 2009 Release #09-084 Firm's Recall Hotline: (800) 646-4106 CPSC Recall Hotline: (800) 638-2772 CPSC Media Contact: (301) 504-7908 Jardine Expands Recall of Cribs Sold by Babies"R"Us; Cribs Pose Entrapment and Strangulation Hazards WASHINGTON, D.C....

Hi there, my name is Jen - I live in St. Pete, FL. I just joined this forum last night, after recieving the results that my hubby is definitely a CF carrier, as am I. I found this out when I was preggo w/ my daughter, who does not have CF. We want to have one more child, but don't think we should just get pregnant knowing (tested 2x each)we both have the gene. Can you help me find more info about the IVF procedures and if there is any...

I pm'd you ------------------------- Sarah, mom to beautiful Ellie w/ CF (born 11/20/2007)DDF508

I was wondering the same thing as Sakem, why can't you see another doctor at the same clinic? And that other doc seems like a pretty suspicious character to me anyhow; paranoia is NOT a desirable characteristic in a doctor, trust, I work for one like that. ------------------------- Valerie, mother to Trystan, 11, w/o CF, and Noah, 8, w/ CF, Autism, ADHD, and GH deficiency, unknown mutations, pancreatic insufficient

WOW! I've heard of doctors firing patients for non payment or non compliance, but to refuse to treat a child is questionable. I don't understand why u can't see the other doctors at the hospital. Have u spoke to anyone in the hospital administration? What r u suppose to do? It's not like there is a CF doc on every corner in the city? I wonder if the CF Foundation would have any suggestions? If there is not more to this...

If I take the whole day off we go to lunch and sometimes a movie. We usually giver her a video or new crayons and coloring book as well. Going every two months now makes this hard because I can't always take a whole day off sometimes it is just a half day so we rush to get her dropped off and me back to work. ------------------------- Lynsey mom to Avery 5yrs. old w/CF and Rhett 3yrs. old CF Carrier

We always go somewhere fun afterwards even if it's just to lunch. We used to go to the zoo or a park when they were younger. I think it helps them to have something fun to look forward to afterwards. It can be really hard being in clinic for 2-3 hours seeing all those specialists. (Especially for mom!) I also used to bring a new coloring book or a new small toy (so they wouldn't be tempted to touch the yucky ones there at the...

I responded in the adults thread but here it is again here: Garran has Pulmonary Rehab three times a week and for a treat for doing well at rehab (cause sometimes he can be a pill for the PT, because sometimes he is just not in the mood to exercise) we go to Starbucks afterwords. He always gets a Short Mocha Latte with extra whipped creme and extra chocolate, and I get a Tall of the same On Tx clinic days we usually go to Target or Walgreens...