Treatment | Forum profile

Quote: Originally Posted by bmac1918 I just got my second Remicade infusion on Dec 3, the next one in 4 weeks. I had no negative side effects from the first infusion. I must say that the last couple of weeks have been pretty good, the best since as long as I had this disease, the Remicade is working very well for me. It seemed that from the moment I left the clinic on Nov 17, that my Crohns symptoms were greatly reduced. I can only hope that...

Quote: Originally Posted by xX_LittleMissValentine_Xx I'm sorry to hear this, but hopefuly she will start to feel better I get rly confused about all the different -ostomies! xxxx this is a bit graphic!!! there are 3 types of stomas. 1 is urostomy this is for urine and attached to the bladder. the 2nd is colostomy, this is for poo and is on the left hand side of the tummy and is attached to the colon. poo is alot thicker and more poo...

Very sad. And it's even sadder that there are conglomerates and entities that push for that to continue as the status quo.

I had a course of tinidazole, which is not identical but similar, and it made me MUCH worse for a couple of days.

Yay Beth for it healing! It is a bit amusing though what the letter said, as if the guy had no faith at all in what he was doing and is baffled that it worked! Oh well, it DID work and that's great as it seems to be the first good news you've had so far! YAY

I have been to see the consultant and he has agreed with me (strangely) that he cannot guarantee I will be painless and symptom free after a right hemicolectomy. He is starting me on azathioprine but forgot to do the blood test last month for the rogue enzyme! So got to go back in 4 weeks to see if i'm okay to start AZA. I have downgraded my pain to moderate discomfort! i think I would rather carry on knowing how to handle the...

Just got back from talking with the surgeon. She recommends a proctocolectomy. My gf is so distraught. I guess she's got some thinking to do. We'll probably go get another opinion too just to be on the safe side and be sure this is what's necessary.

So, I've been weaning off Prednisone. My last dose was last night. While I was weaning off (I can't remember what amount I had gotten down to), I began to develop a bit of a rash on the back of my neck. I also started getting itchy eyes, and styes on my eyes pretty frequently. I showed the rash to my GI doctor, but he said he didn't see much, and that it could be related to the pred, but he didn't elaborate. Is this a side...

Quote: Originally Posted by dingbat having mine today.... am going to try & forget about it once it's done, got a feeling i won't be happy with the results. Good luck ding. I'm sure you have bones of iron

Questran is the bile binder....I take that too. I hate it!!It's like drinking liquid plaster. It mixes well with juices. You can't take it with your regular meds because it will bind them, and they won't work. Be careful that you take your meds a few hours between the Questran.