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Brain Tumors Forum | Forum profile
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Forum profile page for Brain Tumors Forum on http://www.cancerforums.net.
This report page is the aggregated overview from a single forum: Brain Tumors Forum, located on the Message Board at http://www.cancerforums.net.
This forum profile page summarizes the general forum statistics such as: Users Activity, Forum Activity, and Top Authors, which are reported in either a table or graph below for a given reporting time period.
Additional forum profile information for "Brain Tumors Forum" on the Message Board at http://www.cancerforums.net is also shown in the following ways:
1) Latest Active Threads
2) Hot Threads for Last Week
Warning: These statistics are generated using 'best efforts' and can experience delays and reporting errors at times. Please note that such statistics do not constitute a forum's popularity and/or exact posting volumes at any given reporting period.
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Posting activity on Brain Tumors Forum:
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Week
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3 Months
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Threads:
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7
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50
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160
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Post:
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237
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Brain Tumors Forum Posting activity graph:
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Top authors during last week:
user's latest post:
brainstem diffuse lesion, nausea...
Published (2009-12-21 15:55:00)
yonca, what have you heard? I am sorry about your health concerns and the presence of this lesion. Let us know what they find.
user's latest post:
How long does the 1p/19q screen...
Published (2009-12-21 01:30:00)
My neuro/onc told me that it "wasn't a huge deal", but that may have been because I do not have the deletion. Maybe she didn't want to worry me. I think she told me (it was a while ago) that I would be "slightly less likely" to respond to chemo...so I guess that would mean that your wife would be more likely to respond well to chemo Good luck Anjie
user's latest post:
silent
Published (2009-12-26 09:19:00)
Hi Tammy. I've been reading through your posts, because my wife has the same diagnosis (oligodendroglioma gr2). Her tumor is smaller than yours, but it has spread deep into her brain. The new areas are poorly defined, and without a doctor to point them out, we can't tell what we're looking at. One doctor has told us that the spread of the cancer indicates that it's probably actually a grade 3, but it's too risky to do...
user's latest post:
silent
Published (2009-12-20 20:49:00)
OMGosh Tammy You have been throught alot in 2+ years , I too had an oglio grade 2 in my left frontal lobe in 2005 had a total gross resection ( which basically means " they had removed it all " ) I have been having MRI's every 3 months for " wait and see" treatment and then just this past MRI something showed up !! so now I am on the rollercoaster !!! Just finished my first round of Temodal and did...
user's latest post:
My hubby has what they call a...
Published (2009-12-26 21:42:00)
Hallo to all Hope everyone had a wonderful Christmas! Mark has his 2 month MRI on thursday, and the tumor is just sitting there, so yay! He will be stopping the Temo this coming april, and still continue with the VEGF trap infusions. Whoo, can we every just relax with these tumors?! I know Mark and I are very lucky ,but I just want to get to a place where I am not always thinking about his brain tumor, geez I even dream about it . Please pray...
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Latest active threads on Brain Tumors Forum::
Started 1 year, 1 month ago (2008-11-06 19:23:00)
by ksplat
Welcome & hello Krista
Yes this is good news. A higher grade tumour would be very difficult to contain & treat (with tentacles of tumour growth from the main tumour) although in saying this there are treatments available for higher grade tumours.
Good news that they were able to "debulk" most of the tumour & with the oral chemo & radiation & the "slow" growth factor I'm certain this will ...
Started 2 years, 1 month ago (2007-11-28 08:51:00)
by Tammy
Started 1 week ago (2009-12-21 15:55:00)
by brainman
yonca, what have you heard? I am sorry about your health concerns and the presence of this lesion. Let us know what they find.
Started 1 week ago (2009-12-21 15:51:00)
by brainman
Tinman12, no one here is qualified to give you a diagnosis. You should seek help from your own medical team. It does not sound like the symptoms I had or those that I have heard about. However, this does not mean it is not cancer or some other issue. In any event, these symptoms are significant enough to warrant a visit to your doctor.
Good luck.
Started 1 week, 1 day ago (2009-12-20 09:18:00)
by jefuchs
I'll answer my own question: genetic tests come back quicker than forum responses. She does have the deletion.
Another question: we know that's good news, but just how good? Is this just statistically better, or is it a big deal?
Started 1 year, 6 months ago (2008-06-17 17:00:00)
by ksplat
Hello Anjie
Fristly, I would like to say I am sorry for your current health problems, you are in my thoughts & prayers.
I am not familiar with the type of tumour you mentioned so am unable to answer your questions. I am certain you will receive replies soon from other members. We are a great community of support, comfort & sharing personal experiences with others here.
You...
Started 2 weeks, 5 days ago (2009-12-09 07:49:00)
by brainman
I am so sorry that your husband has a GBMIV My mother died of one back in 1998 so I know how that was for me and my father.
I do not know anything about cilengitide but will do some research into it. I know any info you get now will be too late to help in the decision to start or not to start the Temodar.
You and your husband are in my thoughts and prayers.
Started 8 months, 3 weeks ago (2009-04-10 04:51:00)
by brainman
Oh dear plugh, I can only imagine who worried you must be. In 2005 when my grade II returned, I had to wait for months before the cancer board gave their opinion. The waiting was indeed hard but during that time, the tumor did not noticeably change even though from 1992 to 2005 it had changed from a grade II to a grade III.
Plugh, you know that you are in my thoughts and prayers. My your ...
Started 3 weeks, 2 days ago (2009-12-05 01:31:00)
by plugh
Very best of luck and let them get it all. Mine was 2 years ago and still going strong.
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Hot threads for last week on Brain Tumors Forum::
Started 1 week, 1 day ago (2009-12-20 09:18:00)
by jefuchs
I'll answer my own question: genetic tests come back quicker than forum responses. She does have the deletion.
Another question: we know that's good news, but just how good? Is this just statistically better, or is it a big deal?
Started 2 years, 1 month ago (2007-11-28 08:51:00)
by Tammy
Started 1 week ago (2009-12-21 15:51:00)
by brainman
Tinman12, no one here is qualified to give you a diagnosis. You should seek help from your own medical team. It does not sound like the symptoms I had or those that I have heard about. However, this does not mean it is not cancer or some other issue. In any event, these symptoms are significant enough to warrant a visit to your doctor.
Good luck.
Started 1 week ago (2009-12-21 15:55:00)
by brainman
yonca, what have you heard? I am sorry about your health concerns and the presence of this lesion. Let us know what they find.
Started 1 year, 1 month ago (2008-11-06 19:23:00)
by ksplat
Welcome & hello Krista
Yes this is good news. A higher grade tumour would be very difficult to contain & treat (with tentacles of tumour growth from the main tumour) although in saying this there are treatments available for higher grade tumours.
Good news that they were able to "debulk" most of the tumour & with the oral chemo & radiation & the "slow" growth factor I'm certain this will ...
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