Trigeminal Neuralgia | Forum profile

I hope for the best and that you get a hunky looking doctor or nurse to look at. Take lots of things to read or do as it is boorrrring in the hospital. There is only so much bad TV you can look at. Hugs Alli

Hi Grace, Ditto - I don't know what they are calling you in for, but I wish you all the best, and hope that you get good results on your tests. Warmest holiday wishes for a good EEG and monitoring! Hugs, Lily

dear Stephanie; I, too, am pleased to hear an uplifting and positive thread. Often, my openings are addressed to "dear Family and Friends", as I know in my heart to be true. Especially at this time of year, what with more social activities...we too often become a prisoner to our disease. Between the cold weather, the interaction of alcohol and meds, lack of certain foods we can eat, sometimes talking to much, etc; we...

Whoa & wow. I can't believe it is finally happening! Glad they are sneaking you in you teensy little lab rat. Have fun with the nurses and doctors....Maybe you'll get a MrDreamy or McSteamy like on Grey's! Hugs to you. Keep us posted if you can. Love, Stephanie

bob - no problem sorry to hear about all that...ive only had this for about 1 yr i dont think i would have brain surgery cause im convinced its related to herpes simplex 1. anyway your instincts were prob correct the pot did feel nice but the next day my face was inflamed very bad on the right side still hasnt got back to normal i wonder if ir ever will

Hi Grace, I hope it will go well for you. Let us know what the outcome is? Take care and enjoy the weekend! Anne

My daughter takes it when her ears flare up from myofascial pain and it works for her also. I have read waaaay to much about muscles...but it seems that the muscle that is right under the ear and more to the back also connects to the jaw and the SCM's and when they pull, or spasm....it affects the ustation (sp?) tube..... weird I know but true- if you google some diagrams you can see the nerve that runs right through the ear...

Ok sorry I maybe didn't explain this lot too well, my neuro was going to refer me to the surgeon to assess 3 months ago, she couldn't read her notes and didn't, and first I heard about this was last week when I phoned for an update. I wasn't expecting anything to come of the referal since I'd been told that the surgeons in the hospital had said there was nothing they could do and they didn't know of anyone in the...

Heya, I got all 8 electrodes switched on last week - and he let me come in for it and then go straight home which was great. I did feel quite odd afterwards mind. Anyway, strangely I have been worse since then - pain levels at the 5-6 mark rather than the 3-4. Why this should be is bemusing, but there you go. I am hopeing that he'll get me in soon and return it to how it was before!! Today the horses had to come in for the foot trimmers -...

Looks like I was wrong... Past couple night i've had bad attacks and tonight was at the most the worst one! felt it all the way to my temple and this time i even felt small electricity like shocks(which i've never felt before), this is something i was mistaken about with tramadol. maybe my dosage needs to go higher, ,but what i wanna know is that, since taking topomax (anticonvulsant everyday) could it be possible that that's...