Started 1 week, 2 days ago (2009-11-01 18:35:00)
by selmaS
Hi we do have a member here that had one and surgery for it as well...I will notify her to contact u.
"
selma"
Started 1 month, 2 weeks ago (2009-09-21 10:28:00)
by shanmomof3
Good one Selma! The last NL I went to was a complete idiot! He never looked at my list of symptoms until after I got upset and then he just glanced at it! When I asked him about the
herniation, he admitted he saw the "ectopia" but he "didn't think I had Chiari"!!!! (Please keep in mind that I was dx with Chiari 11 years ago, so I know what I have!) I also asked him why then was my...
Started 1 month ago (2009-10-06 12:36:00)
by rod44
I have noted a worsening of my symptoms since Saturday night and an improvement today. Interesting…
Ray
Started 1 week, 1 day ago (2009-11-02 19:53:00)
by ChiariWolf
Wow, I'm too new at this to really give you a long term answer. I'm only 7 weeks post op. But I do feel for your daugter and commend you for supporting her. Believe me the headaches, occasional nausea and some of the other seemingly weird symptoms are very weird to us as well, not just to the onlooker.
One hard thing to digest is that there really is no cure for
Chiari. Has ...
Started 1 week, 1 day ago (2009-11-02 19:59:00)
by selmaS
Hi Angie...yeah I heard stories like that too.....be very careful......just ask he
do not manipulate ur neck.
crossing my fingers for u
"selma"
Started 1 week, 1 day ago (2009-11-02 16:56:00)
by selmaS
Hi...it has been awhile...glad to hear u r doing well.
It could be u r tense and u carry that tension Drug induced hypertension Drug-induced hypertension Essential hypertension High blood pressure (hypertension) Hypertension Hypotension Ileus - x-ray of bowel distension Mixed tension migraine
Multiple system atrophy Preeclampsia Pseudotumor cerebri in ...
Started 1 week ago (2009-11-03 15:22:00)
by selmaS
HI Meg...Congratulations!!
How long a travel
Travel sickness time will u have?...r u driving up or flying?
Thanks for sharing and I look forward to ur updates from the visit : )
"selma"
Started 1 week ago (2009-11-03 21:02:28)
by rod44
Thinking about you big sis and hoping like meg said the you get those answers you are looking for. Good luck Elizabeth and I will keep you in my thoughts & prayers.
Ray
Started 1 week, 1 day ago (2009-11-02 12:55:00)
by selmaS
Hey Megan...sounds great!!
Will continue to pray and send those good vibes...things seem to be
falling into place for u.
Keep us posted
"selma"
Started 11 months ago (2008-12-15 12:33:00)
by selmaS
Julie, it appears u were to see a NS that is not a chiari expert.U need a specialist for ur son.
We have a thread with names of chiari
drs members have used....if u don't find one close to u , we can help u locate one. U may find that u might have to travel to get to one.
A chiari specialist will know that chiari without a herniation can cause issues.
I don't know what else u son has endured...